I am new to HealingWell but have enjoyed everyone’s comments and experiences. My husband also has end stage liver disease, he was diagnosed over a year ago and has been alcohol free for the same amount of time. He is doing real well considering. We have been to the ER twice with high pneumonia levels and upper GI bleed but we have had no other reoccurrences since. He takes 80 mil of Lactulose a day as well as Spironolactone and Lasix. We did have a problem recently with his legs swelling again and couldn't seem to get it under control but they seem to be improving.
The reason I am writing now is a couple of things. He has had some dark black stools, he hasn't pooped for a couple of days even with the Lactulose so were not sure if their still black, we did talk to the Dr. at a recent visit and all his blood work looked good nothing to indicated a bleed but his kidney function was a little low. Also, he is have muscle cramping all over, not just in the legs but his hands, chest, shoulders and arms. Has anyone else had to deal with these problems?
Thank you for your feedback, and if there is anything I can do to help you let me know. My husband is 56 and quit drinking cold turkey, he is truly an inspiration to me.
Hi Vickiers. My husband is close to the same age as your. He's 58 and quit drinking almost a year ago. I can tell you first hand he had muscle cramps from hell!!! It was horrible. The first few times we were home. It always happened in the middle of the night. I can't tell you how many night we went with no sleep walking the floors or me beating on his legs. What was awful was both his hands would twist up and he couldn't us one hand to pull his fingers out with the other. It was horrible. A few time we were in the hospital when it happened and the nurses could believe it. It looked like he was posessed. They even had to give him demerol at one point because he was screaming in pain. Anyway we had a kidney Dr. that came up with something new they were having good results with. We are in the hospital now so I don't have the bottle with me. I might have the spelling wrong. You could ask his Dr. I think its spelled Klonopin. They use it for restless leg syndrome. Let me tell you it works. My husband is on high doses of diaretics but now does not have cramps much at all. Welcome to the forum everyone here is wonderful and very helpful. If there is any other questions you have there will always be someone to help. Hang in there.