Thank you ,Butterflythree and all! I feel very comfortable and welcomed here at this forum.
Butterflythree, I have to ask you if your husband has cirhosis and if he has had problems with belching alot? My hubby just wants to sleep now; has no appetite but drinks V-8 (not low-sodium), but like Shelly has, we cannot make decisions for our loved ones; we can only guide them and pray that they make the right decisions. SO frustrating at times!
angiesmommy, I often wonder myself if certain people have a deathwish. I would suspect that it does happen but not for the reasons we think. I personally feel it's because they think there is no hope for a full recovery so why bother? It is a very selfish attitude but on the otherhand I can somewhat understand it. I just refuse to give in to it so I continue to argue and try to give them back some self worth. I think especially men suffer from it as they can no longer have the control over their own body that they once had. They usually at some point deteriorate and are unable to work or unable to work and support their family the way they once did. I won't subject myself to be a part of any pity parties. Things are what they are and I try to encorage them to move forward not backward. Sometimes it works and sometimes it doesn't. The ultimate decision is theirs.
Butterfly three, I sympathize with you and your situation. You are already preparing for a loss that you have not experienced yet. Please try not to dwell on the possibilty of a bleed. It may or may not happen so don't bring on a plague. It is hurting you more than you realize. Your stress levels must be a 10. I think that you are so very kind and loving and I would suspect very sensitive am I right? Don't even bother to answer that I know I'm right. For those of us that are nurturers we seem to be all of the above. I can tell you from a clinical perspective that you have to somehow get some control over these emotions. It is difficult I know but it can be done. One day at a time, some are good days and some are not. Above all try to remember a saying that I live by "If you lose control someone else has control". God Bless and you know I just love ya.
Angiesmommy, it is pretty common for people with liver disease to have that "sweet smell" to their breath. Is he a diabetic too?
Hi everyone. Hugs to all of you. My Dad is in ESLD right now. We've been thru one paracentesis procedure and the doc is attempting to use diuretics to keep the fluid build-up at bay. I don't think it's working but my Dad is semi-comfortable at the moment.
Thanks for sharing - it's been comforting to read your posts just to know that we're not alone on this journey. My Dad has been the sole caregiver for my Mom who suffers from crippling arthritis, so my Aunt and I are staying with them to make sure they're properly cared for.
The doctor for the first time advised my Dad that he was "on the other side of the mountain" now. He spends more than 20 hours a day in bed now and his legs have taken on a bluish-purple hue. It's a very hard thing to witness and all of us are riding a roller coaster of emotions.
angiesmommy, the bluish leg is usually caused by poor circulation and is often associated with swelling of the leg or legs.It can be from a number of causes such as a clot, obesity (causing vaicose veins), injury, or swelling (edema) to name a few. In the end stages of some diseases the organs begin to fail. The brain reroutes what it needs to survive and will sacrifice circulation to the extremities (usually legs first) to keep the blood circulating in the upper part of the body. If the bluish/purple area is cool or cold to the touch it is pretty safe to assume it is a circulation problem. The brain will sacrifice anything to keep itself alive. I have tried to explain a very complex medical situation in terms that we can all understand so I know it sounds rather simplistic the way I have decsribed it here. If you just remember that the brain dictates everything and will save itself first that may help a little. It is so traumatizing for family to see such awful physical deterioration of a loved one that there is no explanation that will take it away or fix it. I truly wish that we could fix these things. But sometimes knowing what is causing it does help us to understand the process. To some degree it takes a little of the fear away I guess. I have always maintained that the NOT KNOWING is worse than knowing. At least that is my opinion.
Leslie, welcome to the forum. We are here for you. The people that participate in this forum are absolutely wonderful, compassionate, and intelligent. They will be able to answer questions or direct you to a source that can. I am so sorry about your dad and mom. Sometimes it just doesn't seem fair does it? You are a wonderful daughter and I know that both of your parents love you very much and are proud of you. You will all be in my prayers.