Welcome chefbonnie

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Pink Grandma
Veteran Member


Date Joined Nov 2006
Total Posts : 2445
   Posted 2/25/2008 1:40 PM (GMT -7)   
Hi everyone, I am new to this so I may appear to be mixed up lol. My husband was diagnosed with cirrhosis and hep c 3a July/07 after a trip to the local emerg with what we thought was a flu of some sort. They ran routine blood work and found elevated blood work results and scheduled a ct scan for the next day as well as sending him to a local internist for 5 days later. They drained 500 cc of fluid from his abdomen and the ct scan showed shrinkage of the liver and obvious signs of cirrhosis as well as enlarged spleen. To make a long story shorter, we asked to be referred out of town and were sent to London Health Sciences Hospital the end of August. They put him on furosimide and spirolacolone and lactolose, told us he couldnt be treated for the hep c because his platelets are in the 50's
and they fear his liver will not tolerate the hep c treatment in the condition he is in. We were told to wait 6 more months to see how he is doing. Its frustrating because now he has severe daily headaches, dizziness, hand cramping so bad he cant even finish his meals because he cant hang on to his fork long enough to eat without cramping. Went to see family doc here in Guelph, she says these are the lows and you will have them from time to time. Called London and they bumped up his appointment 2 months but secretary says doc told her hand cramps and headaches are probably due to something else and back in November they felt he was doing much better and Guelph should be handling it ( holy s**t does anyone know what they are doing ) I feel like we are being pushy but its my hubbys life here, and they dont seem to care much. Can anyone suggest anything ????? How should we handle this and is there things that we should be asking for ??? Thanx for listening and thanx for just being he

Bonnie

Just wanted to start you a new thread to introduce you to all of HealingWell-
Pink Grandma
Forum moderator-Hepatitis

When the going gets tough....the tough get going! Don't always know where I going but I get there anyways.


1Shelly1
Veteran Member


Date Joined Oct 2007
Total Posts : 502
   Posted 2/25/2008 1:59 PM (GMT -7)   
Hi Bonnie and welcome to the forum. Boy, I can understand your frustration-what a mess huh? Let me say that if he is on Furosimide (Lasix) I would hope that his GP is checking his electrolyte levels. If not then I would request the bloodwork be done. Most often Lasix is given in combination with Potassium tabs. As the lasix makes him pee in excessive amounts to get rid of the extra fluid he loses potassium every time he urinates. The body requires potassium to survive so if he is deficient that would explain some of his symptoms. One of the ways the body uses Potassium is in our muscles. If his levels are low then it would cause muscle cramping and headaches. This can become quite serious because as you know the heart is a muscle and could have some potentially adverse effects and even a heart attack. There are several other possibilities but I would check his electrolytes first. I hope this helped a little.
Shelly

Pink Grandma
Veteran Member


Date Joined Nov 2006
Total Posts : 2445
   Posted 2/25/2008 6:43 PM (GMT -7)   
Chefbonnie, I want welcome you to HealingWell. I came home for lunch and was only able to start this new thread for you before I had to go back to work.
My husband died of Liver Cancer caused by Hep C/Cirrohsis. He experienced a lot of hand cramping and headaches. He was on the same 3 meds along with others. I don't believe that your husbands symptons are caused by "something else". It's part of the balancing act that the doctors should be doing with his meds.
Google End Stage Liver disease symptons, check out what it says. Print it out if necessary and take it to his doctor. Google the meds and print out the symptoms that they can cause. Take that to your doctor also.
You are right it is your husband's life you're talking about and don't be afraid to step on some toes if needed to get good healthcare. The more knowledgeable you are the more the doctors will listen to you and not just try to placate you.

Good Luck Chefbonnie. Thoughts and prayers............
Pink Grandma
Forum moderator-Hepatitis

When the going gets tough....the tough get going! Don't always know where I going but I get there anyways.


1Shelly1
Veteran Member


Date Joined Oct 2007
Total Posts : 502
   Posted 2/25/2008 7:36 PM (GMT -7)   

Bonnie, hi again. I was thinking about your post and thought I would re-read it. You asked the question " holy s**t does anyone know what they are doing". I would propose that you listen to Pink Grandma. Read everything you can and print out things as much as possible. Yellow highlight the things that stick out most in your mind. Make a list of questions you would like to ask the Dr when you go and don't be intimidated by them. If you have a basic understanding of the disease process then it will be much easier to communicate with the Dr. He is then more likely to give you some direct answers. Educating yourself is the best thing you can do for your husband and for yourself. This forum has so much information available to us all and you have the internet too. The paticipants that post here are very well versed in the disease and will either answer your questions directly or give you websites that will answer them.

I guess what I am saying in relation to your comment/question is yes. You'll know what they are doing and what they should be doing. And, if they are not you'll be asking why not.

 Shelly


frustrated_n_wv
Regular Member


Date Joined Aug 2006
Total Posts : 469
   Posted 2/26/2008 5:19 AM (GMT -7)   
Welcome ChefBonnie to the forum.

First of all I am so sorry to hear that your husband and you are dealing with this disease. Dealing with doctors or several doctors can be very frustrating, howver Pink Grandma and Shellyare right, go in prepared. This is your husbands life and he deserves to be treated in a respectful and knowledgeable way. Educate yourself as much as possible and arm yourself with the questions that you want answered. I have fouond that keeping a small notepad handy to jot things down when they come up is helpful to me, as during appointments at times things become overwhelming and I forget what I wanted to ask. I also take lfurosemide (lasix) for fulid retention and have experienced cramps. I have found that adjusting my diet to include banans and other fruitsvegies helps with this problem. Banana shakes are very good. I also really like the low sodium V8 juice and infusions.

Good luck on this journey

Lucy

Butterflythree
Veteran Member


Date Joined Oct 2007
Total Posts : 954
   Posted 2/26/2008 8:29 PM (GMT -7)   
Welcome to the forum ChefBonnie. I'm really sorry to hear that your husband is dealing with this terrible illness. My husband also suffers from cirrhosis. He was diagnosed in July of 2006. I agree with Pink Grandma regarding his symptoms being caused by something else. Cirrhosis causes so many things. Do as the others have suggested and get educated on the disease so that you can be prepared when some new symptom arises. I have learned a lot by coming hear and researching on the internet. Please continue to come here for support. We are all in the same boat or have been in the same boat. It really helps talking to others that understand how you are feeling.

You and your husband will be in my prayers.
Butterflythree
 
There is always hope!

New Topic Post Reply Printable Version
Forum Information
Currently it is Sunday, December 04, 2016 1:23 AM (GMT -7)
There are a total of 2,732,430 posts in 301,020 threads.
View Active Threads


Who's Online
This forum has 151182 registered members. Please welcome our newest member, Sean C..
197 Guest(s), 3 Registered Member(s) are currently online.  Details
THE HAPPY TURTLE, pressurehead, gilly2


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer