Transplant Eligibility & Testing

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4boys4me
New Member


Date Joined Jan 2008
Total Posts : 10
   Posted 2/26/2008 1:24 PM (GMT -7)   
Hi Everyone,
 
My dad is finally scheduled to have all of his testing done to see if he can be put on the transplant list, so that is good news.  He still has good and bad days though.
 
I was wondering if anyone knows how well you have to do on the tests to be placed on the transplant list?
 
Right now we see the two biggest challenges are going to be the psychiatrist and the stress test.  We don't know what he will say about the past drinking, even though we have told him to be honest.  We're also concerned about the endoscopy & colonoscopy too, but they are the last tests that he will have.
 
He's always in a lot of pain, and was taking a lot of pain medications behind my mom's back, but now that she realizes what he was doing, she has hidden the medication and only gives him what he can have.  I am not sure how well that is going to work since he often is awake at night and that is when he looks for things.  My husband and I feel that he may have been replacing his alcohol addiction with the pain meds, but it's hard to say for sure.  He has taken the pain meds for as long as I can remember, so that is not good either.
 
The hospital says that the stress test takes 5-6 hours to complete, and that it is 2 parts with a break in between.  Our biggest concern is that my dad can get exhausted from a short trip to the store, let alone needing to do a really long physical test.  Both my husband and my mom have had a similar test done, although it was no where near that long, so we aren't really sure what to expect.
 
We're prepared that they may not recommend my dad to be placed on the list, so I guess we are cautiously optimistic.  Any insights that any of you have would be greatly appreciated.
 
Thanks,
 
 
4boys4me


Pink Grandma
Veteran Member


Date Joined Nov 2006
Total Posts : 2445
   Posted 2/26/2008 8:18 PM (GMT -7)   
Hello 4boys4me and welcome back.
As far as the testing goes. There's really no measure that they go by I don't believe. I think the one of the biggest thing to worry about is he past drinking and his current pain meds. They may say he has to go to AA first. And if he is taking anything the doctor did not prescribe for him that is a big no no.
When you are trying to get on the transplant list there are a lot of hoops to jump through. And he has to eat,drink and do anything the doctors want him to.
Wow that's a long stress test. My husband's was not nearly so long. I don't exactly remember how long but I know that if it was that long I would have remembered.
Also if they happen to turn him down it just maybe until he compiles with what ever they feel he needs to do. My husband and to lose weight and go to AA. And then they put him on the list.

Good Luck and take care.
Pink Grandma
Forum moderator-Hepatitis

When the going gets tough....the tough get going! Don't always know where I going but I get there anyways.


Butterflythree
Veteran Member


Date Joined Oct 2007
Total Posts : 954
   Posted 2/26/2008 8:48 PM (GMT -7)   
Hi 4boysforme, I will pray that your father makes the transplant list
Butterflythree
 
There is always hope!


lavendar
Regular Member


Date Joined Nov 2007
Total Posts : 450
   Posted 2/27/2008 3:51 AM (GMT -7)   
Hi 4boysforme: When I went for my evel. I had already had the colonoscopy, so I did'nt have to do it over. The endoscopy was a problem. They had intended to give me a capsule with a camera in it. But I had mentioned I had of feeling of a lump in my throat. So they were afraid the capsule would not go down easily. They did it the usual way and I was so stressed that the anesthetic would not take and my heard started to skip. Had to have the stress test first. The stress I did was an echo cardiogram,where they inject you with a solution that make your heart speed up till you feel as if you cant take anymore , (like running really hard) all that time they are taking photos of your heart. Don't worry you are monitered very carfully and they will stop if he is in distressThen they inject you with another drug to slow down your heart and bring it to normal. Took probably about an hour.
The cardiologist then looks at the photoes and lets you know what he sees. In my case I have a valvue that does not close properly. Causing a heart mummer. The said it was normal and I could go ahed with the endoscopy. Tlhe second one turned out fine. Now the phyco. that was a different story. First I had to explain to him that I was not in the right frame of mind because since I had been there for a week already and was not able to take my lactulose on a regular basis my brain was a bit fruzzy. lHis concern was that I should stop taking one of my meds because it is habbit forming. Who cares I've taken it so long . Anyway the label says to take it three times a day. I hardly ever take it and certainy not three times. What I failed to lmake him understand is that I take it when I have an anxiety attack. Without it I will probably end up in ER. The other dr.s did't have a problem with it. Tlhey said it didnt go through the liver so was safe. I agreed to stop taking it so as not to be held back on getting listed. june

4boys4me
New Member


Date Joined Jan 2008
Total Posts : 10
   Posted 2/29/2008 4:15 PM (GMT -7)   

Thanks for your replies.

My dad had the issues with his throat for at least two years before he was ever diagnosed with cirrohsis, actually most of his symptoms have been present for years before he ever had the offical diagnosis.

We hope that the stress test will be okay.  His hernia is really bothering him right now, but he is determined to go for the testing to get listed. 


4boys4me


exhaused
Regular Member


Date Joined Nov 2007
Total Posts : 445
   Posted 2/29/2008 4:58 PM (GMT -7)   

4boysfme  My husband has been trying to get listed since Sept.  and he is still not on the list.  Pink Grama is right.  There are all kinds of hoops.  We just received a copy of the first evaluation from his liver Dr.  It was done in Nov.  They found traces of morphine in his urine.  It stated that we had not mentioned morphine in his meds and that could hurt his chances.   Man was I upset.  First of all if they would have asked us we would have told them.  I had to take him to the emergency room one evening because his hernia had popped out.  It was really painful.  It was a horrible experience.  They coudn't find a vein to give him a pain med so they could push it back it.  They tried to go through his neck!!!  Finally they pumped him full of morphine and got it pushed back in.  The Dr. gave us a prespt for morphine tabs so if it happened again I could give him the medicine and push it back in myself.  It happened about three times.  Then it just quit happening.  WE think its because his fluid doen't build up as bad.  They usually drain him before it gets that bad.  But just do everything they tell you.  We are still not listed so I can't tell you much.  Just hang in there and don't give up.

JoAnn 

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