Connie, I am so happy for you. It will be great fun. BTW I am married to a Greek (born and raised until 1970's). I have learned to love the food too. We lived in Manhattan and went to alot of Greek resturants. Our favorite is in Astoria. Now we live in Florida and we have found a great Greek resturant in Ft Lauderdale. Yum Yum-love that food. I went to Greece in 2005 and we are going again (hopefully) around the 20th of March for about three weeks. My husband has business there so we are semi-planning the March trip. I just can't wait. Anyway, have fun.
Pink Grandma OH My I am from Washington State!!! What a small world. I was born in Eastern Wash. Lived there until I was out of school. Moved to Seattle area to live with my sister until I could convince my girlfriend to move there. We got an apartment together and both worked in down town Seattle. That is where I met my first husband. My oldest daughter just moved back because her husband did not like it here in the south. So three of the grand babies are gone. They've only been gone two weeks and I miss them so much. Also she is my rock. She would come clean out my frig if I was staying at the hospital with Jerry for any length of time. I miss her so much we try and talk on the phone alot but its just not the same. I just know I'm going to miss so much with the grandkids. They just grow up so fast. I know you will have a good time. I just talked to her today and the weather has been great. Have a Starbucks for me!!!
Well, apparently the last blood drawn was no longer available for the genotype testing (I didn't think it would be), and the hepatologist doesn't want to wait until May to have it drawn again. So I have to go to Mayo on Mon. for the blood work. Hopefully, after that, I won't have to go again until May.
The problem with my midriff has gotten worse, not better, and I've been having some tummy upset and pain. If I were not going to NY next month, I would go ahead and have the fluid drained. However, I have a lot of things to do before leaving, and just don't feel I can spare the time. Also, it may set me back in terms of energy, etc.
The weather has been so bad here lately (heavy rain, high winds, cold), that I have not been able to get out and try walking more. Hopefully, it will improve soon.
Hugs to all,
Post Edited (hep93) : 3/8/2008 10:58:38 PM (GMT-7)
Hi, Shelly. Yes, it's a post-op reaction from the hernia surgery. He said it could be drained, but may come back. However, he also mentioned draining it and putting some Betadyne in there to try to keep it from coming back. Since the med. records mentioned draining it and then placing a drain...I doubt this would be done outpatient...especially with my hx. of liver cancer and surgery. I think he would be concerned with infection and would want it done in the strictly sterile surroundings of an OR. However, it could be same-day, I believe. We were going to wait and see if my body would absorb it, but that doesn't seem to be happening. I have to be out every day this week, but will try to call and express my concerns. I feel hungry and full at the same time, which is an odd feeling. I also feel queasy at times. It's a large POCKET of fluid. There are no signs at all of infection. And thank God the burn that I got from the hot coffee has healed up beautifully, and I don't believe I will even have a scar. Thank you, Neosporin!!
Lucy, it not that my blood work didn't come back well, it's that it couldn't be used for a specific test...so I went today to have it drawn again, specifically for the hep C genotype. ;) Actually, my last blood work was near-perfect, except for one slightly elevated liver enzyme. My LFTs have never been sky high, nor has my alpha-fetoprotein (cancer marker), even when I had cancer. But thank you for the good wishes.
Connie, do you think he would be willing to drain it with a syringe in the office first? It doesn't have to be in a sterile environment if he does that although the area where he would insert the needle is. I just thought that may at least be worth try first. That is what they did with me anyway. They have very large syringes as you know.I was just hoping that they could drain it before you go and then you could really enjoy yourself on vacation. (A well deserved vacation too!) Let me know what they say OK?
Shelly, the Mayo offices are only set up for consult and computer review of recent labs/scans, and they'll write Rxs. There's an exam table, but other than that they have no equipment in the offices. So I knew that wouldn't be an option, to have it drained that way...that it would most likely be in one of Interventional Radiology's sterile ORs, and that was confirmed today. Mayo takes zero risks and has a standardized way of doing things.
Well, I got an appt. for this morning. For some reason, I had terrible insomnia last night and only got 2 hours' sleep. I wasn't as tired as I expected I'd be, though. The news was not good. After exam, both the P.A. and surgeon felt that I have another hernia, as well as fluid. I just can't seem to get a break!! (I know I shouldn't complain...I'm cancer free, and that's a miracle...but I'm SO sick of having surgeries!) Obviously, I can't have the repair done before going to NYC. So it's back to looking for some type of body shaper. The P.A. was going to set up a CT scan for me the week after I return. However, on the way home I started thinking that maybe we should have the scan done this week, to know for sure. When I got home, I put in a call to the P.A. and left a message to call me before she left the office today, but she never did. I'm sure I'll hear from her tomorrow. However, I'm thinking they must feel pretty sure that it IS a hernia not to have told me to have a scan right way. This is SO disappointing.
One positive note, though, is that the transplant center, now located at St. Luke's Hospital, will be moving to Mayo's new on-campus hospital which opens April 12th. So when I do have the hernia repair, it will be in a brand-new hospital with state-of-the art ORs and equipment. From their handout, Achieving the Vision:
"...16 new operating rooms each measure about 700 sq. feet, much larger than average. Most of the equipment is hung from the ceiling to free space and eliminate hazards in the operating rooms.
One of the most innovative aspects of the new hospital is the 'sterile core' in the surgery suite. Instruments and surgery supplies are ordered and assembled in a central service supply area located directly beneath the operating rooms. When ready, sterile supplies are transported via dedicated elevators directly to the operating room core. Used supplies are covered and removed through a separate exit and sent down a different elevator."
"...nurses' work stations are located between every two patient rooms"...and patient rooms are only along one wall of extra-wide hallways. Also, "each room is wired for use as an intensive care unit or typical patient room." The rooms are each 350 sq. ft. and have sleeper sofas!
(Bolding above is mine.)
The surgeon said that he used a "natural" mesh and that it could have failed. If so, he would have to place a prosthetic screen. I only vaguely understand this. Shelly, do you know what the mesh is made of that he placed originally? He said there is a higher risk of infection with a prosthetic screen.
I was also unhappy that I've gained 2 lbs. in about 3 weeks. I wasn't surprised, though, as I've been eating heavier meals and lots of nuts. I have to rein in my diet before my weight starts climbing upward again.
I'll post more when I know more.
Post Edited (hep93) : 3/17/2008 8:29:27 PM (GMT-6)
Connie, I agree with you...if they thought anything other than hernia they would have gotten the CT scan right away. I would suspect that the syntetic mesh screen will work out fine. I can tell you that I had an artificial tendon put in my right hand at age 19. It was an 8 hour micro surgery proceedure which included various other repairs to my hand. After 8 weeks my body had destroyed the artificial tendon. They told me that I had an elevated acid count and it had eaten thru the tendon can you imagine that? Several years later I had an IUD placed for birth control which are plastic and again my body destroyed it! Go figure.
I'm glad that you went to the Dr though. At least now you know what you are dealing with and why you have pain/discomfort and the swelling. I don't know about you but I do better when I know what is going on. I think everything will work out fine. Have a blast in NYC and enjoy every minute of it.
Shelly, thanks for answering. I absolutely do better knowing what is going on. That's a very strange thing about your tendon and IUD being eaten away by body acid. I've been Googling "mesh screens for hernia repair" and there are quite a few. However, I believe the type he used is a plant-based one that the body gradually absorbs within about a month. So do you just not have a tendon in that hand, or did it have to be redone? I had finger surgery once to release a boutonniere deformity, and they put me in a plaster cast up to my elbow for 6 weeks. I'll bet they have better methods now. That was around 1970.
Connie, after the tendon issue I had to have another surgery and they fused the finger. I had 5 surgeries total on my hand to try to repair it so I would have use of the finger but to no avail. Oh well, such is life I guess. I've gotten so accustomed to it I don't even think about it anymore. BTW I was in a cast for 16 weeks each. That was hard as I was so young and active. As for the mesh screen I really feel that it will work out OK for you. They are usually quite successful.
Hi, Shelly. Sorry you have gone through so much with your finger! Mine doesn't fully extend, but is quite usable. Like you, it was so long ago that I don't even think about it and it works fine.
The P.A. and I played phone tag since Mon. afternoon, but she finally reached me this morning. I told her I'd already gotten the answer to my question, though--that I felt sure it IS a hernia. She said she made an appt. for labs and a CT scan on April 22nd, and a f/u visit on the 23rd. That's when they will set the surgery date. I feel rather stupid now, not realizing myself that it was/is a hernia! As I told the P.A., though, I really don't know a lot about them. She said they didn't feel I'm at risk for strangulation since the belly button is not involved. I'm SO sick of being cut on, but I'm going to focus on the fact that I will be one of the first to use the brand-new hospital and what a great experience that will be, although I'll probably only be inpatient for 2 days (they actually let me stay as long as I want, until I feel up to going home...knowing that I live alone.) So I'm off this morning to Beall's to find a body shaper garment and a new bra. They're having a sale, plus today and tomorrow are Senior Days with an extra 15% off everything in the store! Hopefully, I'll find something that will work.
Post Edited (hep93) : 3/20/2008 9:50:07 PM (GMT-6)
June, they removed the entire lobe...there was nothing left to regenerate and they don't expect it to. However, the left lobe of my liver, even prior to the surgery, had grown to the size of the right lobe and obviously was/is taking on the work of the missing portion. My labs have been great--near perfect (one LFT was a little higher than normal.) So I'm doing well as far as my liver function--just have to take care of the hernia and try to prevent it from happening a third time. ;)