Info on cirrhosis... anyone???

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confussled
Regular Member


Date Joined Mar 2008
Total Posts : 46
   Posted 3/13/2008 11:55 PM (GMT -7)   
My mom was diagnosed with cirrhosis back in December 2007. She has since lived with me as she is unable to care for herself. Upon admission she was severely malnourished causing her to have diarrhea for four straight months prior. She did not want to be in hospital and discharged herself so I never found out any liver test results etc. They told me that it was end stage liver disease from cirrhosis and that she would get "brain fog" and go into a coma someday and die. Those are pretty close to the exact words. Now I am hoping someone can tell me what I am looking for.. how do I know when the end is near? How do I know what is going to happen next? I'll describe her now and hopefully somebody elses experiences will help me figure out where we are here.
She can't eat much...she feels really sick and gets a bad stomach ache when she does. She sleeps a lot and blames it on not sleeping well at night. (not true I check on her) She is unable to get up out of a chair/bed by herself and heavily relies on us. I don't know if it is just muscle deterioration or the incredible swelling. She looks pregnant and she used to weight 100lbs. I am buying new clothes for her; now resorting to maternity to fit around her belly. She is somewhat incontinent. She doesn't really urinate much; maybe once a day anyway. Her speech has become quite slurred over the last couple of days and she appears to be "out of it" most of the time now. She looks like she is staring right through me sometimes, her fine motor skills are like to what I would call equivalent to a toddlers. Oh she has nose bleeds and blood in her stool. I believe they said at the hospital that was caused by something... portal hypertension ???
I am at a loss. She won't see a doctor and to be quite honest she has become so swollen and immobile that I doubt I could get her in a vehicle to see the doctor anyway..
Any info you can provide based on education or experience would be awesome. I would really like to know how much worse this could get.. how long.. You get the picture I think I just want answers.

Post Edited (confussled) : 3/14/2008 1:06:10 AM (GMT-6)


frustrated_n_wv
Regular Member


Date Joined Aug 2006
Total Posts : 469
   Posted 3/14/2008 3:30 AM (GMT -7)   
Confussled

I am so sorry that you and your family are having to deal with this. There are several great post on here about ESLD, please read them, most of the answers to your questions can be found there. Your mothers refusal to seek any medical interventions will ceratinly make this a painful process for everyone. My thougthts and prayers and with you and your family.

Lucy

confussled
Regular Member


Date Joined Mar 2008
Total Posts : 46
   Posted 3/14/2008 3:47 AM (GMT -7)   
Lucy,

Thank you for your reply. I have read much of what has been posted. I read for a long time this evening. It seems to me that a lot of people have had the same symptoms but different. I suppose it is because others are willing to seek medical advice to slow or treat their symptoms. My mom is only taking two water pills, antidepressants and Pariet. She is to see the doctor every three months to keep her on these pills. No blood work gets done so I can't compare any of them. I get the point that she is a very sick woman and all.. I guess I just want information that I can't get. I mean; does it get worse than this? There seems to be so many factors to consider and so much info that I get overwhelmed reading it. It seems that doctors also avoid answering the "how long does she have" questions. I just want to know if we only have days, months or even a year left with her. It has been two days that changed everything..she can't walk and she slurs when she talks. It is stressful and more-so when you don't have a doctor to talk to.. or assess the changes. Thanks again I'll keep reading on...

Pink Grandma
Veteran Member


Date Joined Nov 2006
Total Posts : 2445
   Posted 3/14/2008 5:23 AM (GMT -7)   
Hello confussled and welcome to HealingWell. I hate it when children have to deal with a parent with this.
As you probably figured out it doesn't look good for your mom. You may want to get hospice involved if there's a chapter in your area.
And yes it can get worse. But only god knows really what is going to happen to your mom before she dies. I remember posting something on this subject months back. I will try to find it and bump it to the top. Take care......thoughts and prayers.
Pink Grandma
Forum moderator-Hepatitis

When the going gets tough....the tough get going! Don't always know where I going but I get there anyways.


1Shelly1
Veteran Member


Date Joined Oct 2007
Total Posts : 502
   Posted 3/14/2008 6:02 AM (GMT -7)   
confussled hi and welcome to the forum. I am so sorry that you are having to deal with this. Pink Grandma is right-this gets much worse. There is a wealth of information in previous posts that will help you a great deal. If I understood your post your mom is refusing hospital care. This really puts you in a rough perdicament doesn't it? Let's look at the facts for a minute OK? IF your mom has severely high ammonia levels (which you don't know for sure since there are no labs done) her confusion and restlessness will increase. At some point before that occurs you need to sit down with her and have a frank discussion about her wishes. If you have not already done so then you need to get legal power of attorney and a living will. As power of attorney you will have the authority to take control of your moms finances etc in the event that she can no longer do it. The living will expresses her desires concerning her care in the event that she can no longer make decisions. For example, if she chooses not to be resusitated if her heart should stop or if she does or does not want life support it is written into the living will. This eliminates the hard decisions when the time comes. These documents are very important for you to have as they protect you legally. As her caregiver and advocate you will be under some real stress so you must be as informed as possible. The more you know about this disease it becomes a little easier to understand what is happening to her. May I suggest that you read thru some of the posts that relate to education and print them out. That way you will be able to read them at your leisure and be able to refer to them later if needed. Just a suggestion. We will pray for you and your mom. Keep posting and ask questions or just vent. This site is absolutely the best there is.
Shelly

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 3/14/2008 9:44 AM (GMT -7)   
Confussled, I'm so sorry you are having to deal with this.  I agree with everyone who says to get Hospice involved, but a doctor is the one who has to order it.
 
Shelly, am I correct in thinking that she will also need a Medical Power of Attorney, in order to make medical decisions for her mother and to have access to information about her condition?  I don't think a plain ole PoA is good enough anymore for medical stuff, since HIPAA regulations went into effect.
 
Hugs,
Connie

Carls
New Member


Date Joined Oct 2007
Total Posts : 4
   Posted 3/15/2008 4:00 AM (GMT -7)   
Hi Confussled,
I found myself in a very similar situation to yourself back in August 2007. PM me if you would like to talk further. I have had a big week and I am off to bed now. See my earlier posts for more info. My thoughts are with you xox

Carly

1Shelly1
Veteran Member


Date Joined Oct 2007
Total Posts : 502
   Posted 3/15/2008 6:23 AM (GMT -7)   
Connie, yes...........she would need a medical POA also.
Hugs, Shelly

1Shelly1
Veteran Member


Date Joined Oct 2007
Total Posts : 502
   Posted 3/15/2008 6:25 PM (GMT -7)   
It is always better to retain an attorney to be certain that the forms are filled out correctly. The patient must sign the forms themselves unless they are mentally incapactated or medically inacapable. In the event that the later is true then the Dr will ask next of kin. This is always an uncormfortable situation for the family. That is why it is paramount that paperwork is drawn up before a medical emergency. The patient has the right to decide what measures they want done before the event. Also, if a family member has medical POA it is up to the POA to make medical decisions but it does not supercede the Living Will. Make it legal and then there is no debate when the time comes. Usually when a patient has an advance directive done while hospitaltized it is only good for that particular hospitalization and is not legal during other hospitalizations.
Shelly

confussled
Regular Member


Date Joined Mar 2008
Total Posts : 46
   Posted 3/15/2008 11:59 PM (GMT -7)   
Firstly; thank you to everyone for your great replies, advice and kindness. I wish I had time to sit down and reply to everyone individually but as you can imagine; there just is no time.
my mom will not accept medical care. She is willing and does make it to a doctor to have her prescriptions renewed every couple of months...since December/07. In December she had very high ammonia counts and does not recall much of her hospital stay. She was hallucinating and violent. She won't let doctors drain the fluid and she won't take pain medications.
To date she won't sign a power of attorney because she says she knows that I will take care of everything. She and my brother (the only other family member) haven't spoken in three years since my father passed away. She has signed a No CPR form and I have copies etc.
Just to let you all know I live in Canada; so I know our systems are a little different... ok very different lol. Anyway I just had a word about hospices etc with the doctor and he will send her when it is time. I would like for her to stay with me for as long as possible though. I do not intend on giving up on her. She does not want to defeat her illness.. she has given up. I'm just more curious than anything of what we can expect next... I mean; how much worse does it get in what ways? Is she as physically demanding as it can get or does she get less mobile? From my understanding the ammonia can cause so many different symptoms so I am questioning that part..
Her potassium is always so very very low. I have her drinking gatorade only because it has the highest amount of potassium I can find; plus it has electrolytes. Health nurses tell me that is probably what has been keeping her alive because of her utter refusal to eat.
Today she wouldn't do her exercises because she is complaining that she has shortness of breath. I think from what I have read that is due to the swelling.
I am loyally coming on this site with every spare minute in my day but that is becoming less and less. I have three children as well to care for and the days seem to short to spend much time reading or emailing or... I know you all understand which is why I think I am here. Thank you everyone for your support and I will keep checking in. I'll loyally read anything that anyone has to offer lol. Thank you so much.

Carls
New Member


Date Joined Oct 2007
Total Posts : 4
   Posted 3/16/2008 12:38 AM (GMT -7)   

Hi Confussled,

The shortness of breath may be due to the kidneys struggling. You mentioned that she was only urinating on occasion, and this too may be another sign. When the kidneys are struggling, the acids build up in the blood making it hard for the blood to carry oxygen. My mum had renal failure aswell in her final stages, she was placed on life support to help her breathe better and also put on dialysis at the same time to help her kidney function. My mum also didnt want any treatment and refused to be placed into hospital and checked herself out overy time we called an ambulance to take her there.

Keep your chin up.

Carly


confussled
Regular Member


Date Joined Mar 2008
Total Posts : 46
   Posted 3/16/2008 12:48 AM (GMT -7)   
Carls said...
Hi Confussled,

The shortness of breath may be due to the kidneys struggling. You mentioned that she was only urinating on occasion, and this too may be another sign. When the kidneys are struggling, the acids build up in the blood making it hard for the blood to carry oxygen. My mum had renal failure aswell in her final stages, she was placed on life support to help her breathe better and also put on dialysis at the same time to help her kidney function. My mum also didnt want any treatment and refused to be placed into hospital and checked herself out overy time we called an ambulance to take her there.

Keep your chin up.

Carly


Are you serious? oh my gosh. I guess I really need to start reading the right material. Thanks. I thought renal failure was similar in symptoms? I guess I'll have to read up on that too. Yes she urinates very rarely and very little. It is always bloody or orange or.. something.. hard to explain. I would say dark orangy with red. .. Thanks for the info..

1Shelly1
Veteran Member


Date Joined Oct 2007
Total Posts : 502
   Posted 3/16/2008 7:43 AM (GMT -7)   

confussled, what a wonderful gift you are giving your mom. The time you are spending now with her is so precious and you have three kids too. As far as what to expect it is for certain that she will deteriorate quickly. If she becomes more demanding and even mean that is part of the toxicicity that is building up. The toxins travel up to the brain thru the blood flow and causes all the mental distress she is in. As the toxins build up she gets more and more confused. Combined with her not eating and drinking such a small amount of fluids she increases the toxicity. All these symptoms are very common with advanced encephalopathy. Her kidneys and other organs are all affected. It will probably come to the point that she goes into a coma and if so believe me it is a blessing for her. I just went thru this same issue with my own mother in November 07. It is heartbreaking to watch I know (as do many others who post on this site). We put her in our local Hospice facility when she started falling down and wondering in the house. She would have really hurt herself if we had not placed her there. It wasn't as difficult to put her in Hospice as I had imagined. For us it was a saftey issue. The care they gave her was absolutely wonderful. She was in agonizing pain toward the end and they kept her painfree with pain medication. It is depressing for us as caregivers but a blessing as well for everyone involved especially the patient. My thoughts are with you and know that your are doing everything you can to make her time with you memorable and comfortable. GOD Bless.

 Shelly


confussled
Regular Member


Date Joined Mar 2008
Total Posts : 46
   Posted 3/17/2008 4:41 AM (GMT -7)   
1Shelly1 said...
confussled, what a wonderful gift you are giving your mom. The time you are spending now with her is so precious and you have three kids too. As far as what to expect it is for certain that she will deteriorate quickly. If she becomes more demanding and even mean that is part of the toxicicity that is building up. The toxins travel up to the brain thru the blood flow and causes all the mental distress she is in. As the toxins build up she gets more and more confused. Combined with her not eating and drinking such a small amount of fluids she increases the toxicity. All these symptoms are very common with advanced encephalopathy. Her kidneys and other organs are all affected. It will probably come to the point that she goes into a coma and if so believe me it is a blessing for her. I just went thru this same issue with my own mother in November 07. It is heartbreaking to watch I know (as do many others who post on this site). We put her in our local Hospice facility when she started falling down and wondering in the house. She would have really hurt herself if we had not placed her there. It wasn't as difficult to put her in Hospice as I had imagined. For us it was a saftey issue. The care they gave her was absolutely wonderful. She was in agonizing pain toward the end and they kept her painfree with pain medication. It is depressing for us as caregivers but a blessing as well for everyone involved especially the patient. My thoughts are with you and know that your are doing everything you can to make her time with you memorable and comfortable. GOD Bless.

Shelly

I question how much she really is enjoying any time together. She wakes up in the morning and sits in her chair and watches TV or dozes. She asks for nothing and wants to have no part of food. We usually give her an "instant breakfast" each morning and it takes her until close to dinner time to finish it. She may get up once to use the washroom in that time period... but says nothing all day. My kids are starting to notice that she has no interest in what they are doing anymore. She doesn't ask them how school was etc. It is rather depressing if you ask me. The only words I hear come out of her mouth now is " I am such a bother" I remember hearing my grandmother say those same words as she neared her end days. I find now i have more frustrating days because she is unable to move. We were taught some tips and tricks on how to help her up out of the chair etc and she can't do that anymore. She can't get off the commode anymore either.
She acknowledges that she is sick but when the doctors etc were talking to her she still denied that she ever drank too much. I think she is going really downhill now because she doesn't even smoke like she used to let alone drink still. She only smokes about 7 cigarettes a day now and she used to smoke up to 3 packs a day. That scares me too.
I was told that end stage liver is actually cancer that would spread?? Anybody know anything on that? But what it sounds like to me is that she actually seems better in some ways than others and worse in others? I don't know but thank you everyone for sharing your stories; it helps me so much.

Pink Grandma
Veteran Member


Date Joined Nov 2006
Total Posts : 2445
   Posted 3/17/2008 5:19 AM (GMT -7)   
Hello Confussled, Cancer can develop in the end stage. There's a number of things that they can do to shrink it, stop it from growing or kill it until a transplant is done. Sometimes it works and sometimes it doesn't. I my husband's case it didn't. Or should I say they do anything about the cancer in time. 6 months after it showed up they finally did a chemoembulazation to hold it at bay until he got a transplant. By that time it had multiplied too much inside the liver. It never mastisized out side the liver though and liver cancer can do that as well.

As far as them enjoying the last few months.......I myself can not see anyone who is going through it enjoy life..... at that time. But they are aware of their surroundings.....just don't have the ability to respond to it. So even if she's not asking about her grandkid's school day I can guarantee she is thinking of them and wishing that she could still interact with them. She knows how much work that you do for her. It must be very hard for a formally independent women to handled. It's why she keeps saying "I'm such a bother." Just keep telling her how much you love her.

Thoughts and prayers.
Pink Grandma
Forum moderator-Hepatitis

When the going gets tough....the tough get going! Don't always know where I going but I get there anyways.


1Shelly1
Veteran Member


Date Joined Oct 2007
Total Posts : 502
   Posted 3/17/2008 12:41 PM (GMT -7)   
confussled, I am fairly certain that your mom is not enjoying anything right now. She is very ill and too sick and too tired to enjoy life. Pink Grandma is right tho-she knows how much you are sacrificng to take care of her but she just can't relate it verbally to you. As far as her stating that she is a burden I fully understand. She is not used to recieving total care from anyone and now she is incapacitaed and unable to care for herself. There has to be some sense of humiliation.guilt, and defeat on her part. Again, reassure her how much you love her and that you are willing to do anything to see her thru this phase of her life. Just knowing that you care is a comfort to her I'm sure. Her encephalopathy has advanced to the point that she has absolutely no energy to even eat. It is possible to request that her Dr RX an appetite stimulant. Maybe you can put in a call and ask for the Rx to be called in for her.
 Shelly

confussled
Regular Member


Date Joined Mar 2008
Total Posts : 46
   Posted 3/20/2008 12:23 AM (GMT -7)   
I keep asking myself how much more I can take. I fear leaving my mom alone at home just for her own personal safety. I mean she could drop a cigarette and set the house on fire; or there could be an electrical fire and she couldn't move to get out...etc etc. This is taking it's toll on the family. There are so many special events that my children wish to attend but there just isn't enough of my husband and I to go around anymore. I keep thinking that this has only been two months since she came home with us and we are already exhausted.
My mom goes to bed by 7pm every single night and then gets up anytime between midnight and 4am to start her day. I am sometimes still awake when she gets up to start her day and therefore I wind up with no or very little sleep. Going to bed at the same time as her is unreasonable with three children. Being spring break right now for the kids has been making things even worse. I can't give my whole family the attention that they want and deserve. It is just so tiring on all of us. She seems to spend so much time sleeping during the day but never for long periods of time. She dozes. I never would have thought that it was going to be this difficult when we got into it.
Today was a rough day. I am wired and can't sleep now. She has had great difficulties with her breathing and now refuses to get up at all during the day... resorting to asking if she can sleep on the couch... to which I reply no because I don't want the furniture ruined due to incontinence and I think that making her go to the bedroom etc keeps her at least moving a little. Her diet now consists of gatorade and meal replacement drinks. The Gatorade is to keep her potassium up if you are all wondering. It seems to be working quite well as long as she drinks it.
I am trying to set up a doctors appointment to see what we maybe able to do with some of the swelling because it really has interfered with her movement. She can't roll over in bed and can't even get into the positions we were taught to assist her in getting up. No socks fit her feet and no slippers.
My mom seems to be having a little pain but she won't admit to it; she frequently cries out in her sleep. Is it really painful and how or why, what causes the pain? I'm wondering if I should speak to the doctor about it myself. She seems to be deteriorating so much some days and then others...it is like magic; she is all better. Roughest ride I have ever been on; I tell you...
Thank you all for listening/reading and for all your support and even just dealing with my ramblings lol.
Confussled.

1Shelly1
Veteran Member


Date Joined Oct 2007
Total Posts : 502
   Posted 3/20/2008 6:58 PM (GMT -7)   
Hi Confussled, So many of us can empathize with you as we too have been in the place you are in right now. I really wish I could say something to make you feel better but there are no words that will take your frustration and pain away. It may be time to speak frankly with the Dr about how difficult it is for you and your family. Perhaps you should make a list of all her new symptoms etc. and tell the zdr everything. If you make a list it is easier to refer to it rather than trying to remember them all when you are there. These are trying times for your whole family I know. It may well be time for hospice care. I will continue to pray for you, your family, and your mom.
 Shelly
 
 When you fall - I'll get you up and help you walk,when you can't walk I'll carry you, and when I can no longer carry you I'll stay by your side.


Pink Grandma
Veteran Member


Date Joined Nov 2006
Total Posts : 2445
   Posted 3/20/2008 7:35 PM (GMT -7)   
Hello Confussled, Shelly is right as rain when she said that others could relate to what you are going through now. I have said it before and I will say it again. Caregiving for a terminally ill person has got to be the hardest job there is. Not only is it physically exhausting, but the mental stress that comes with it is over the top. That's why you need to try and take some time for yourself occasionally. And I know it's easier said than done. But please try to grab even 10 minutes a day for yourself.
I agree with Shelly about everything else also. Shelly is one smart cookie. I wish she was part of this forum when I was going through it. But I am glad that she is here now.

Take care...........thoughts and prayers..........
Pink Grandma
Forum moderator-Hepatitis

When the going gets tough....the tough get going! Don't always know where I going but I get there anyways.


confussled
Regular Member


Date Joined Mar 2008
Total Posts : 46
   Posted 3/20/2008 8:43 PM (GMT -7)   
I have already made a doctors appointment for next week. We are getting run thin here as she is no longer able to get up with assistance. We fully have to lift her now and that is becoming difficult on us. I have arthritis in my back and cannot be lifting her. I think it is time to at least get her on a wait list for a home of sorts. She refuses to do her exercises and thus losing her abilities all that much quicker. It is the most mentally wearing thing on a person...I never thought it was going to be this tiring... never.
She waivers between the good days and the bad days but it seems to me that todays good days are yesterdays bad days... if that makes any sense to you. I hope to keep her home as long as possible but it seems to me as if that may not be very long now. I feel guilty at the thought of putting her somewhere else because none of the places will allow her to smoke and she is not independent enough to go outside to smoke; they do not assist people in going outside to have a cigarette so really it would be just as hard on me because I would still have to be there to take her outside to smoke. That almost seems for now like it is more difficult. More difficult until she loses interest in smoking too.
I have been reading lots of forum posts and read all the stages and more and more info. Lots of great stuff written in here. I am so happy I found you all and found this forum. It is really great to find out that things like the messed up sleeping patterns are 'normal'. There are just some things going on that made me feel as though maybe we weren't doing our job properly but I am happy to report that I now know we are doing a good job; good as to be expected.
Today we took mom out for a day trip to the bank and to the grocery store. It exhausted her but it was nice for her to get the fresh air. I was surprised by her wanting to get out...
Msut run now and thanks again.. wonderful to have all you great people.

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 3/20/2008 9:39 PM (GMT -7)   

Confussled, I agree that it may be time for you to speak with her doctor about hospice.  Don't feel guilty--they can provide care that you are simply unable to.  They are also very knowledgeable about the stages of dying.  If she IS experiencing pain, they can coordinate her pain medication.  If your mom goes into a nursing home or hospice home, perhaps they can provide her with nicotine patches to get through the bad withdrawal stages.  The fact that they are probably not good for the liver is a moot point right now.  Knowing that I had hep C, but also being aware that I had a 2-pack a day habit for 40 years...when I was hospitalized in a spica (body) cast for weeks following a hip surgery, the medical staff provided me with a daily nicotine patch from Day 1.  And that was when I quit smoking for good...over 5 years ago (yay me!)

It's wonderful that you were able to get her outside for a bit today and that she wanted to go.  She may still have occasional "good" days like this one. 

I do understand how very difficult and stressful the caretaking is.  A former b.f. and I had his mother at home with us when she was dying of colon cancer.  We both worked full time and had a nurse there when we were at work, but as soon as one of us got home, the nurse left.  And there were several times when we got calls saying she had a high fever or some other complication, and an ambulance had been called, so one of us had to leave work and it was usually me, since my b.f. worked in the next state and commuted.  The nights were very difficult.  We both ended up losing our jobs (this was years ago before new laws), in great part due to the caretaking, and had to end up putting her in a hospice facility anyway prior to her death.

Some of the best advice that has been given to you is to take a little time for yourself each day.

Hugs and God bless,

Connie


confussled
Regular Member


Date Joined Mar 2008
Total Posts : 46
   Posted 3/20/2008 9:51 PM (GMT -7)   
hep93 said...
Confussled, I agree that it may be time for you to speak with her doctor about hospice. Don't feel guilty--they can provide care that you are simply unable to. They are also very knowledgeable about the stages of dying. If she IS experiencing pain, they can coordinate her pain medication. If your mom goes into a nursing home or hospice home, perhaps they can provide her with nicotine patches to get through the bad withdrawal stages. The fact that they are probably not good for the liver is a moot point right now. Knowing that I had hep C, but also being aware that I had a 2-pack a day habit for 40 years...when I was hospitalized in a spica (body) cast for weeks following a hip surgery, the medical staff provided me with a daily nicotine patch from Day 1. And that was when I quit smoking for good...over 5 years ago (yay me!)

It's wonderful that you were able to get her outside for a bit today and that she wanted to go. She may still have occasional "good" days like this one.

I do understand how very difficult and stressful the caretaking is. A former b.f. and I had his mother at home with us when she was dying of colon cancer. We both worked full time and had a nurse there when we were at work, but as soon as one of us got home, the nurse left. And there were several times when we got calls saying she had a high fever or some other complication, and an ambulance had been called, so one of us had to leave work and it was usually me, since my b.f. worked in the next state and commuted. The nights were very difficult. We both ended up losing our jobs (this was years ago before new laws), in great part due to the caretaking, and had to end up putting her in a hospice facility anyway prior to her death.

Some of the best advice that has been given to you is to take a little time for yourself each day.

Hugs and God bless,


Connie


Hi Connie;

Yes I do take time to myself each day it is just unfortunate that I do it after everyone is asleep and I should be too. I have a tendency to also go out and window shop or just take a very long hot shower. My house is terribly small. It is only a three bedroom rancher with three kids, my husband, my mom and myself living in it. There is not much room to run to when you want peace.
I did forewarn my mom that when she became immobile is the point that we would be unable to care for her. She would require help from people with the proper medical equipment... such as lifts etc. She doesn't say much but usually starts working really hard to get her strength back so she can continue to stay here. It has somewhat been motivation whenever I mention it to her. Again; speaking to a doctor maybe our best bet. If she really doesn't want to go I can look at other options from the doctor too.
It is funny I went to college and took some basic caretaking classes... i still never imagined it being this difficult. Kudos to all the people who do it for a living.

confussled
Regular Member


Date Joined Mar 2008
Total Posts : 46
   Posted 3/22/2008 10:57 PM (GMT -7)   
Holy cow; today she has been asking me how someone is doing that passed away 20 years ago!! She also stand of ammonia today. ugh. Stress just as she seemed to be improving over the last day or so. I was thinking it maybe like the calm before the storm..

JohnCT
Regular Member


Date Joined Mar 2008
Total Posts : 202
   Posted 3/22/2008 11:47 PM (GMT -7)   
Hi Confussled,
I'm sorry to hear about your mother. You are in a difficult situation and I wish you well in dealing with it. Have faith and know that you are not alone. I am a new member and have read a great many posts, leading me to understand the love and support that we can provide one another when we try.
Thank you, members, for giving so freely of yourselves. The good you do is obvious.
I just wanted to suggest that you do not minimize the abdominal fluid retention, Ascites. In my case I waited too long and the fluids became infected, causing Sepsis, a very serious internal infection. The other aspect of Ascites that hit me was the pressure buildup, making it difficult to breathe and placing stress on the other internal organs. I now have it under control and it's one less thing to worry about.
Your mother is lucky to have you watching over her -- bless you both.
It's Easter Sunday, expect a miracle.

Warmest hopes for you and your mother.

JohnCT

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 3/23/2008 12:34 AM (GMT -7)   
"I went to college and took some basic caretaking classes... i still never imagined it being this difficult. Kudos to all the people who do it for a living."

Amen to that!
C.
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