Jenna44, I am so sorry you are going through this, not just with your sister being ill, but with the entire family. I can only repeat what others have said: keep a notebook and write down all the questions you want to ask and doc's answers, keep reading about the disease, and pray for God's guidance. You have some wonderful support right here with all these people who have been and are dealing with the same disease.
Hi, Jenna! I can speak to the concern about "relapsing" on the pain medication your sister is receiving for legitimate pain. I had that worry myself when I had my first major surgery 5 yrs. ago, a hip replacement (and let me be the first to say that type of surgery is excruciating!) Anyway, they knew how to taper the drugs down, so when I got home I stayed on the regimen they gave me and had no problems. I don't know how much clean time your sister has. I had 17 years at the time, so that can make a difference, too. Just keep a watch on her meds when she is discharged.