I too have been wondering what happened to you. Sorry your husband is not responding well, but Grandma is right, you need to take care of you also. You continue to be in Nancy and my prayers as do all who suffer from this hideous disease. Thoghts and Prayers. Delivered by the mailman.
Butterfly I too have been thinking of you. Please just hang in there. They don't mean what they say when their amonia get high. Please try and explain that to your children. Hopefully they will understand. Its hard for young people to understand sometimes but I truely believe they forgive much faster then adults. My husband never would utter a swear word in front of a women if his life depended on it. A true southern Gentleman. But when his amonia got high he cursed like a saylor. So try and explain the disease to your children. My husband and I decided not to tell the kids at first and it was horrible. My daughters would get so frustrated because they couldn't understand why we were not asking more questions. We were but just were not telling them. Believe me it does help if they understand. I hope you are taking care of youself. Remember your children need you also. And you can't do for them if you are burnt out. I will pray for your husband.
Butterfly, Please know that you are in my thoughts and prayers. i know it is very tough, but your husband will be needing your strength also. Stay in prayer and contact with others who are going thru the same thing. You WILL find comfort and strength. Delivered by the mailman.
Butterfly. I just wanted to tell you my husband has never had a fever but has had some type of infections. The medicine he takes now is on for 14 days off for 14 days. He is like a totally different person. He's back to work and driving also. He hasn't been able to drive for months. He was just to goofy or just couldn't keep his eyes open. So it is possible he doesn't have some kind of infection. Also last months he had to have a blood transfusion. The way it was explained to me is he wasn't loosing blood his body just wasn't making enough. I know that whatever the reason the transfusion really helped him. The Dr. said the low blood will cause high amonia also. There are a few posibilities for you. Hang in there. Let us know if we can help. Just keep some hope and know you will have more good days.
Mailman That is so great about your grand daughter. WE have one named Ava Jay. She just turned 3. We have 11 total and to me there is nothing like it. They are so fun. OUr oldest is 9 and youngest is 5 months! I think that will be it Christmas is crazy but so fun. Could you tell me what it was like when you got your transplant. By that I mean how sick were you when you got the liver and what was your meld. Jerry's meld is 16. He's takng Neomysin now and is doing so much better. The only problem is is having at this time his his hernia won't stay in so we are constantly pushing it back. That does scare me. I'm so glad you are doing well and please keep us informed. Its so nice to hear the success stories.
Good Morning Butterfly,
Let me start out by saying that butterflies are my favorite,the have so much change that occur but the end result is Wordless. In our struggles is the strength to keep us strong. I know it has not been easy for you and your family, but rememer that your husband is suffering and unable to express hisself. Man can be stubborn sometimes, but I do not think doubt of your love for him has every cross his mind. I know that love conquer all and You have stood forth in all thats happen. Rememberr down time for you is important, because without YOU where would your family stand.Sometimes our jobs is overwhelming,but noone knows the rewards we store in heaven from our deeds on earth. Just be good to yourself Butterfly3 and know that we are here for you. Keep us posted and I send my prayers, in hope that all continue to be better and better for you.
Each and every day in every way, everything I do and say gets BETTER AND BETTER AND BETTER.
ONE DAY @ A TIME