Hello Everyone, I am Carol and I hale from SC!

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Caregiverx3<3
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Date Joined Mar 2008
Total Posts : 197
   Posted 3/25/2008 7:47 PM (GMT -7)   
cool   I am caregiver to my husband, Terry. I am 54 and Terry is  56. We'd rather be fishing or riding his Harley, but here I am with the rest of you.
None of us want to be here, but we all need info on something.
Terry has HH, HCV, Cir, and now HCC. Treatment for HCV was put on hold in 2004, due to an aortic valve replacement. A lot has happened since then, but I will go into that later. I plan to be here with you all for awhile.
 
Tonight, or sooner, I would like to know if anyone here has had any experience with Nexavar. I know it is a new chemo drug and have researched until I am overwhelmed with TMI, but cannot find anyone who has actually taken it. Terry is going to start on it tomorrow I am anxious about it. So many emotions are involed when you are responsable for another persons wellbeing. I went through this all last year, caring for my Dad. He had a stroke w/ multi infarct demintia. He passed away on Oct. 7. Since then I have been grieving and making more appointments for Terry. I am also a long distance caregiver for my mom, hence the name- Caregiverx3<1.
 
Bless you all,
Carol
 
I hope you all sleep well, have sweet dreams, and see the morning glory!


Pink Grandma
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   Posted 3/25/2008 8:00 PM (GMT -7)   
Hello Carol, And a big welcome to you. What a great first post.
You really must be a strong woman. Caregiving for one husband almost done me in. So a BIG high 5 to you on 3.
I haven't heard of anyone on Nexavar but there maybe a lurker out there who knows about it. So any lurkers if you or your loved one has been on Nexavar we would love to hear about it. So please get up the nerve and post. My husband was supposed to get a shipment on the day that he died. So I would love to hear about it as well.

Also please accept my sincere condolences on the passing of your father. You have had your hands full huh?

Take care........thoughts and prayer for Terry and you both.
Pink Grandma
Forum moderator-Hepatitis

When the going gets tough....the tough get going! Don't always know where I going but I get there anyways.


Caregiverx3<3
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Date Joined Mar 2008
Total Posts : 197
   Posted 3/25/2008 10:18 PM (GMT -7)   

Hello Pinkgrandma, and thank you for your condolences. I love my Dad and miss him so much.

My deepest sympathies to you also. I had read your husband was going to stsrt Nexavar, but didn't know that he had passed away on the day he was supposed to start on it. I'm sorry.  I've read that it can effect the heart and I'm concerned because of Terry's prosthetic aortic valve. The oncologist didn't seemed conerned though. I guess I'm the only one worrying, and that gets me nowhere, does it? 

I've been reading everyones post for awhile now, and I still can't keep everyones' story fresh in my mind. My short term memory is about shot.   I feel for you all and will try to help and inspire you in any way that I can. I just need some friends right now also.

Carol

 
I hope you all sleep well, have sweet dreams, and see the morning glory!


1Shelly1
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Date Joined Oct 2007
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   Posted 3/26/2008 3:46 AM (GMT -7)   
Hi Carol and welcome to HealingWell. My mom was on Nexavar last year. I can only share my experience with it. She had no side effects from the medication at all. In our particular case I don't think the Nexavar did much of anything to inhibit her lesions. She started the Nexavar in late May 07 and she lost her battle in Nov. However; there may be people here that had success with it. I can only relate what we experienced. I am so sorry that you lost your dad. It is really hard being a caregiver for just one person so hats off to you for having the strength to take care of 3 people. GOD Bless you. This site is so wonderful and helpful for all of us. There are the most amazing people here that give of themselves to help others. I feel truly blessed to have found them all. When my beloved mother passed away they were all here for me emotionally and believe me when I tell you I relied on that support to start healing. You have come to the right place Carol and we are happy that you are here with us.
 Shelly
 
 When you fall - I'll get you up and help you walk,when you can't walk - I'll carry you, and when I can no longer carry you - I'll stay by your side for there is always hope. 


Caregiverx3<3
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Date Joined Mar 2008
Total Posts : 197
   Posted 3/26/2008 5:26 PM (GMT -7)   
Hi Shelly,
I'm so sorry about your MOM. The whole experience with my Dad was very hard. I don't think I slept much that whole year. When he was able, we managed to have some great times. He wanted to go everywhere I went. I wouldn't have had it any other way and would do it all over again. I still go to Hospice meetings and have met some very good people through them. One woman evan gave Terry a mobile wheelchair that her husband had used. What a gift!
I'm glad to hear that your MOM didn't have sidefx from the Nexavar. Terry took his first dose of 400mg this morning. He only had a little nausea so far, but also seemed more tired than usual. Amazing the costs of the drug-$5300.00 for 1 month supply! We only had a $15.00 co-pay though. He has had 2 chemo-embolizations this year to shrimk his tumor. He will have another 4-phase liver scan in on April 21 to see if it is still shrinking. It has entered his portal vein, so I am hoping the Nexavar will keep it at bay and not spread to other parts of his body. I'm so scared for him. I don't think he has a clue what is going to happen to his body. He won't read about it, so I feed him bits of info when I think he can take it.
I've been reading a book titled "When the Man You Love Is Ill". It's been pretty helpful for me.

Carol
I hope you all sleep well, have sweet dreams, and see the morning glory!


1Shelly1
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   Posted 3/27/2008 3:59 AM (GMT -7)   
Carol, hang in there kiddo. Terry will accept the info as time goes on. It's very smart of you to handle it the way that you are by just giving him a little info at a time. Everyone handles things differently and you know him better than anyone else. The cost of the Nexavar is horrendous I know. My parents had a co-pay of $10.00 otherwise my mom wouldn't have been able to take the pills. Although I do know the Dr can intervene and contact the drug company and get them to donate the pills in certain circumstances. Try not to dwell on WHAT CAN HAPPEN.....you know what the side effects are and you know the facts about the disease so just try to take each day as it comes. Address any problems one at a time as they occur or you're going to drive yourself crazy. It doesn't help anyone if you make yourself sick. Expect the best - not the worst. Having been thru the same thing I fully understand what you are going thru (as do most people in this forum). I just know that you have to try to maintain a positive attitude. I'm glad the book is helping you so much. We all need all the emotional support we can get from wherever we can get it. GOD Bless and we are here for you.
 Shelly
 

“Life is not the way it's supposed to be. It's the way it is. The way you cope with it is what makes the difference."

 


Butterflythree
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Date Joined Oct 2007
Total Posts : 954
   Posted 3/28/2008 6:02 PM (GMT -7)   
Hi Carol, I just wanted to welcome you to the forum. I am sorry it has taken me so long. I don't have a lot of time to log on lately. I am glad that you have found us. There are many wonderful, caring people here. It has helped me a lot being able to come here and share with others that are experiencing the same things. You and Terry will be in my prayers.
Butterflythree
 
There is always hope!


Caregiverx3<3
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Date Joined Mar 2008
Total Posts : 197
   Posted 5/4/2008 10:00 PM (GMT -7)   

Oh, how time seems to be flying by. I'm not even sure what all we did during April. I guess I mostly watched after Terry after he started on the Nexavar. He seems to be doing alright on it. No bad sidefx. Sleeps more, some abdominal pain, and dry skin. There may be some hair loss, but not bad. He went back for another 4 phase liver scan after his last chemoembolization and the tumors must be shrinking a lot. His AFP levels have dropped to 14. At one point they were 50,000. He is having a radiofrequency ablation this Thursday. Hopefully, this will "kill" the last of the tumors in his liver. I just hope the Nexavar will keep the cancer from spreading throughout his body.

We did have to go to the ER Wed evening. He was having black diarrhea. They said he was having an ozzing GI bleed and to get back on his Prevacid. He was better the next day. Last night though, he was having a lot of confusion and it continued today. I finally got him to take some Lactalose and he seems a little better. How do you all get your loved ones to take the Lactalose when they refuse???  I think he needs more tonight, but he probably won't take it.

I did manage to take a trip home to see my family the last week and a half of April. Terry's Mom came and stayed with him.  As soon as my plane landed though, my Mom was on her way to the ER. My daughter dropped me off at the hospital. Mom had blood clots in her legs and some small ones in her lungs. Once again I spent my respite vacation running back and forth. I did get to spend time with my daughter and grand daughter though. It was wonderful. She is 17 months and very happy.  I had to spend a lot of time with lawyers, and accountants, because Mom messed up with her money. She stil won't come here though. She doesn't want to leave her farm. I don't blame her. It is beautiful! My son-in-law said he would help her out more and for that I am very grateful. He is a good man.

Since I've been home, I've been doing a lot of spring cleaning. I've just about wore myself out. I was just so glad to get back HOME. yeah Terryeven manages to come outside for a little while and do a little work to help me. Hey, even 10 minutes of  his help is a big thing to me!

I hope everyone here is feeling some better, now that sunnyer days are upon us!

Bless you all, Carol

 

 

   


exhaused
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Date Joined Nov 2007
Total Posts : 445
   Posted 5/6/2008 9:29 PM (GMT -7)   
Hi Carol You asked about the lactalose. We just kept trying different drinks to put the lactalose in. I make my husband part of the trial. He just kept trying different drinks until he found one he liked. But, he is just like a pregnant woman! His drink of juice does change. First it was orange juice then we went to Sierra Mist and now its fresh squeezed grapefruit juice. I juicer at Wal Mart for $10.00. We buy sacks of grapefruit and oranges at Sams. Sometime he mixes orange and grapefruit. He sits at the table and squeezes the juice himself. Which gives him something to do. Hope this helps. I also got a blender and make him smoothies. Sometimes I put it in the smoothies. You have to watch the fluid intake. You almost have to pick your battles and decide which is more important at the time. He may get a little to much liquid at times but the lactalose is more important. I hope this helps. Hang in there.

JoAnn

Caregiverx3<3
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Date Joined Mar 2008
Total Posts : 197
   Posted 5/6/2008 10:22 PM (GMT -7)   
Hey JoAnn,
I need to learn more about smoothies. I mix yougurt & fruit drinks for myself, but Terry won't have anything to do with them. I got the V8 Splash Mango & Peach last week and he likes that. I mixed his Lactulose in it and told him to "try it, you'll like it", and he did. He has been taking it every morning since. Thank me for little miracles!
How does Jerry tolerate grapefruit juice? That would really hurt Terry's gut. Carbonated drinks are now out for him. I've had to let erry learn on his own what and what not to eat or drink. It's useless to say," I've told you this many times." I think I have learned better ways to talk to him about what he should eat & drink, but when he has a craving for something, I sure don't denigh him. We try to keep everything in moderation.
Thanks for your reply JoAnn.

Carol
 


Pink Grandma
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Date Joined Nov 2006
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   Posted 5/6/2008 11:12 PM (GMT -7)   
Hello Carol and JoAnn,
Boy was it deja vu for me reading your posts about lactulose and mixing it in different drinks. I tried everything too. We even got the $10 juicer from Walmart too. I don't think that I ever found a mixture that he actually liked. So we gave up and he took it like a shot of whiskey. Gagged me with a spoon just watching him. But he was a trooper unless his ammonia levels went up and then the fight was on.
But I believe that there was one medicine that he took that didn't mix with grapefruit. I forget now what it was. And we have 2 grapefruit trees in our yard.

It got to where the only thing that he could tolerate was ucky soda that they mix with drinks.

Time for me to hit the hay. I can't think straight anymore.....

Both of you take care............thoughts and prayers.....
Pink Grandma
Forum moderator-Hepatitis

When the going gets tough....the tough get going! Don't always know where I going but I get there anyways.


exhaused
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Date Joined Nov 2007
Total Posts : 445
   Posted 5/7/2008 7:53 AM (GMT -7)   
Carol On the smoothies Jerry didn't like the yogurt in his either. I would buy the frozen fruit at wal mart. They have mangos, pinapple, and alot of the berry. My daughter told me to slice bananas and freeze them. Then I just useorange juice or apple juice for a base. The apple juice makes it sweeter. The reason I started making smoothies is because Jerry needed the the protein. His Dr at Vanderbilt wants me to dump the protein down him. I just watch to make sure his ammonia is not to high. He has educated himself extensively on nutrition. He believes several small meals a day is important. Which is easy for Jerry because he has always eaten that way. I really think he did that because if he stuffed himself it would ruin his high when he was drinking. Anyway this month he is off the smoothies. I think he got burnt out. He has two gift certificates for Smoothie King for about $100.00 his employees bought him for Christmas and Birthday. You almost need to take out a loan to get one of those. I don't care its cheaper then alcohol. Also I don't think it bothers his stomach because he takes protonix twice a day. Hey we are in S. Carolina right now. Small world We are at the bottom of the state near Beaufort. Hang in there you are right on top of things.

JoAnn

Caregiverx3<3
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Date Joined Mar 2008
Total Posts : 197
   Posted 5/7/2008 10:13 AM (GMT -7)   
Hey JoAnn,
Isn't the weather great here today!!! I've been sitting outside this morning. It feels so good.
We will be in Charleston tomorrow. Terry is having a radiofrequency ablation at the new Ashley River Tower hospital. This is is first time for this type of treatment. I hope all goes well. I don't think he has to stay overnight this time.
Are you here for vacation? Wish we had time to meet.
Carol
 


Caregiverx3<3
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Date Joined Mar 2008
Total Posts : 197
   Posted 5/7/2008 10:19 AM (GMT -7)   
Hi Pink Grandma,
Good to hear from you. I hope you are doing well and feel more refreshed today.
I have to go run errands in prep for our trip tomorrow.
Starting to get nervous and must keep moving.

Carol
 


exhaused
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Date Joined Nov 2007
Total Posts : 445
   Posted 5/7/2008 2:24 PM (GMT -7)   
Carol Yes we are on vacation. We started to build a house here right before Jerry got sick. A second home for now then later when Jerry was going to retire we were thinking of living here permanently. I did most of the work from a hospital room. Jerry was in the hospital more then out the first 8 months. It was a nightmare. He has actually had some time between Dr. appt. Nothing until the 19th in Knoxville (where we live) then the 28th at Vanderbilt. I'm not sure he will make it the two weeks. He can't keep his hernia in. Its horrible. I think we are 90 miles South of Charleston. I don't think he would make the trip. We are 7 hrs from home and I dread when we have to go back. We have to pack all kinds of food and snacks. Its a big ordeal. Let me know if you get close to Beaufort. I wish I could say how the weather is I haven't had a minute to enjoy it. Are you getting really grumpy. I can't help myself. I feel so bad afterwards. Keep me posted.

JoAnn

Caregiverx3<3
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Date Joined Mar 2008
Total Posts : 197
   Posted 5/7/2008 5:45 PM (GMT -7)   
No JoAnn, I'm not grumpy. I just get real nervous. I worry too much about crap. I'm always afraid that the alarm won't go off or the car will break down on the way to Charleston. We have to leave about 4:30 am. and we always have to watch for deer on the Hwy. that early in the morning.
I know Knoxville well. We used to have a lakefront home on Lake Cumberland, well actually it was the Big South Fork River. We were always driving through Knox or to their airport.
Well Terry is already asleep. I should really clean the kitchen and get some rest myself.

Oh, I did want to ask you something. Has Jerry's voice changed? Terry talks so low now that I can hardly hear him. I don't know if this is common with liver disease or because he also has cancer. Could be the Nexavar.
I think I've read that some people have trouble swallowing. Terry does sometimes. He about chocked to death on some Jello one night. It went down the wrong path. Really scared him. He does have esphagial & gastric varices.
I'll let you know how things go. I'm sure it will be an all day thing. They have to give him platelets before the RFA.
I hope you find time to get out tomorrow.

Carol
 


exhaused
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Date Joined Nov 2007
Total Posts : 445
   Posted 5/7/2008 6:40 PM (GMT -7)   
Carol Boy did you hit the nail on the head. Jerry has had trouble talking loud enough for anyone to hear him. Every time he says something I have to go stand by him and he still has to repeat himself. That is another reason I get so tired. I can be right in the middle of something and he starts talking to me. I have to quit what I'm doing and go listen. Then I forget what I was doing. I end up with 3 or 4 half done tasks. I think that is why I'm so snappy. I'm so scared. I just have to keep some home. I know what that is like getting up so early. I hate you have to do it. If you were closer you could stop and have a rest. Jerry's ammonia has been high today. That scares me also. The last time it got high he had to have a blood transfusion. Take care tomorrow and let me know how it goes.

JoAnn

Pink Grandma
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Date Joined Nov 2006
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   Posted 5/7/2008 7:46 PM (GMT -7)   
Hello Jo Ann and Carol,

You both got me thinking. My husband's voice got a whole lot softer too.
Could it be from the fluid build up in the chest? Whenever my husband started retaining fluids in his chest area he always complained that it was very hard to breath. If they can not take a deep breath because of the fluid retention it stands to reason that their voice could not be as loud because they are taking shallower breaths. Not to mention the extreme fatigue along with it.
The doctors were not only readjusting my husband's lactulose frequently they also readjusted his diuretics frequently too.

Had I only realised it sooner. But when your in the middle of it you are almost as fatigued as the patient from doing everything.
At least I was. I was going on pure adrenaline. I was reacting to the different crisis', didn't have time or the energy to figure out why it was happening.

There needs to be caregivers classes for all the different illnesses and diseases. Things to be made aware of in the course of the illnesses. What to expect and what to do. It really would help people get through it a lot easier.

I guess that this forum is kind of like the class. We all share information and give support on top of it. Darn we are good! Every last member pat yourself on the back. Because it's everyone that makes this forum so good.

Take care ..........Thoughts and prayers.......
Pink Grandma
Forum moderator-Hepatitis

When the going gets tough....the tough get going! Don't always know where I going but I get there anyways.

Post Edited (Pink Grandma) : 5/7/2008 9:19:59 PM (GMT-6)


exhaused
Regular Member


Date Joined Nov 2007
Total Posts : 445
   Posted 5/7/2008 8:16 PM (GMT -7)   
Pink Grandma I have always thought that Jerry's voice was due to diaratics he has been taking. His voice thing happened as soon as he started taking those water pills. He was on such high doses. And really still is. He is so dry. I just figured that was it was. Also now I think some of it is weakness. Now you have me thinking. Its really hard to know with this crappy disease!! What is bad is no one else can hear him. Poor guy wants to do some things but he is so limited. Talk on the phone is one thing he thinks he can do but no one can hear him. Maybe between everyone on this forum we can get it figured out. Thanks for your great support

Jo Ann

JohnCT
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Date Joined Mar 2008
Total Posts : 202
   Posted 5/7/2008 10:52 PM (GMT -7)   
Hi all,
Just a quick note about my voice when the Ascites is bad. Yes, I cannot get a breath and my friends tell me there is a noticeable drop in the volume of my voice. Fortunately, I'm still relatively strong so I have not reached the whisper level yet.
I forget what else I wanted to post so I guess that's it for now.
JoAnn and Carol - you are saints. I am very, very sorry that you have to deal with this, with the husbands that you love. It is my prayer that they return to their former selves so you can get on with the lives you planned. Hang in there and make sure that you make time for yourselves.
I'm losing it, so I'll put Sgt. Pepper on (loud) and think about sleep.
Oh, Pink Grandma - thanks again for all that you do for this forum. You wear your heart where we all can see it, sharing your experience and insights. You are a rare gem of a person
Please forgive me if this post it doesn't make sense, I don't know that I can get out what I want to say. I'm rambling. Until later.
Be well, John
I have to get up the creek! Now where's that paddle?
Mind-fogged again.


exhaused
Regular Member


Date Joined Nov 2007
Total Posts : 445
   Posted 5/8/2008 10:47 AM (GMT -7)   
Hi John That is interesting. We always thought his weak voice is due to dryness I just asked him and he said he can take a deep breath. His quiet voice has been on going for the last year. Do you have problems with itching. We have litterly tired everything. He takes Hydroxyzine three times a day and I have a different times rubbed him down with everything under the sun. The itching used to come and go but this last month it is constant. He goes nuts at night. Its really interfering with his sleep. I'm open to suggestions. Hope you are doing good.

JoAnn

exhaused
Regular Member


Date Joined Nov 2007
Total Posts : 445
   Posted 5/8/2008 8:39 PM (GMT -7)   
Carol How did it go today? I bet you are exhausted. Jerry didn't even leave the house today. Something that doesn't usually happen. He usually pushes himself pretty hard. He slept a lot which I have been watching for because everyone on the post talks about that. Still itching like a mad man. For a change I just did small things around the house and sat down in between. Man was that nice. No pressure nothing. Jerry is still eating good so I figure that is a good sign. Hope you are resting. Keep in touch.

JoAnn

Caregiverx3<3
Regular Member


Date Joined Mar 2008
Total Posts : 197
   Posted 5/8/2008 10:44 PM (GMT -7)   
Well, Hello Everyone!
What a nice thing to come home to.
We made it home around 8pm. Terry said this treatment hurts more than the chemoembolizations. He hollers everytime he has to belch or hiccup. They went in through his abdoman with the probe, very small, but still invasive. He told me to let the dogs out and he would be in soon, as I had to take a quick rest breck myself. I should have known better as I thought he did too. Sandy was so glad to see him that she jumped right up on his belly. I heard him holler clear from the bathroom! He took his meds when we got in and then called his Mom to let her know he was alright. He has been asleep ever since. I have been doing laundry and stuff and keeping a watchful eye on him. He is sleeping in the recliner, but maybe I can get him into the bed soon.
We go back in 1 month for another liver scan. His Dr. said that the tumor had shrank a little but the cancer is not active and they don't see it spreading any further than his portal vein. Thank GOD! We'll se what tomorrow brings.

JoAnn, have you tried Vitamin E oil for Jerry's itiching? It was a skin saver for my Dad and I use it on myself all the time. If it feels like too much, just mix it with your lotion. I also take the capsules everyday. Starting at Dad's last few days, when he was sleeping so much and his mouth would stay open, his lips and gums got so dry that they looked burned and started peeling. Lipbalm didn't help, so I started applying Vit. E oil on his lips and gums and it just all went away and looked healthy again. I'm going to get Terry to start letting me mix it with his lotion, which he finally started using 2 nights ago. Maybe I'll just put it in his lotion and not tell him. Dad always said he had never had so much "foo-foo dust" on him in his life. He liked it though! You can get it at Wal Mart in the vitamin section.
As for the voice, I think it is just such a loss of energy, but I sure don't know. I too have to get right up close to his face to hear him sometimes. I'll think we have finished a conversaton and walk away to my chores and have to come right back because he doesn't realize that I am gone and he is talking to me again. Then he'll get on me because the grits are burning. Oh, well. It is a learning experience for us both. Terry is not on diuretics and doesn't have much fluid buildup. He has never had to be drained, or else I just didn't know better. I sure didn't know that if the ammonia got really high that he might have to have a transfusion. Oh, my goodness! Who's supposed to tell me these things? I'm glad you all do! Think positive, think positive, think positive.

Hello JonnCT & Pink Gandma!
Nice to meet you John, but my adrenaline has finally burned out and I have to try and get Terry to bed. We may just both sleep here on the floor tonight.

Hope you all have a good day today,
Sincerely, Carol
 


JohnCT
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Date Joined Mar 2008
Total Posts : 202
   Posted 5/8/2008 11:29 PM (GMT -7)   
Hi JoAnn,
Regarding itching, I'm still at the early stage of the itching so it comes and goes. I think I was told that the itching was caused by irritation from bile salts excreted by the pores. I don't know if that means that with more bowel movements comes less itching (??) or if a change in stomach chemistry, like Prilosec or anti-acids, might reduce the amount of salts excreted. I have read some scratching nightmare stories so this issue weighs on my mind.
I have read posts that reported good results with drugs, but I don't remember what or where (or much of anything these days).
Regarding my condition, compared to others on this forum I am very well. I see my Dr. tomorrow and hope to map out a new path since my new insurer won't work with my two transplant teams. I have had five bad days but hope to be up and around full-speed tomorrow.
Emotionally, I'm a bit of a wreck. My family upbringing included our responsibility to volunteer for public or church service. With the growing mind-fog, I have resigned from most of my volunteer commissions. Except for my loss of participation, most were too not difficult to leave. But I still sit on one local environmental commission, so yesterday I met with the commission's staff person and the Mayor to let them know my health status and what the four stages of liver disease are. Thank you Shelly! for the posting on the stages. They will watch for the signs that it is time for me to give up my last public service position. I don't want to embarrass the Commission, the City, or the Mayor with stage 2 or 3 rants.
People just don't know what to say when you tell them frankly where you are and what to expect in the future. And I guess that I don't know what I expect them to say. I get very uncomfortable with the words of sorrow and sadness, but I know that they can't possibly be as neutral to it as I am (or think I am). I am fortunate to have caring, good people around me, and blessed with this on-line family.
Give my best to Jerry. I hope that you can find an itch solution that works for him.
I'm not ready for sleep -- it's only 2:30 am -- and tonight it's Fleetwood Mac in concert in my bedroom. While the music is good for my soul, the freedom of not disturbing a spouse with my music drives home the loss of not being with my ex-wife. I have slowed down too much to avoid thinking about the loneliness.
Tomorrow will be better.
Be well, John
I have to get up the creek! Now where's that paddle?
Mind-fogged again.


1Shelly1
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Date Joined Oct 2007
Total Posts : 502
   Posted 5/9/2008 5:08 AM (GMT -7)   
Hi everyone, I wondered if there might be some relief from the itching with an Aveeno bath. My mother used it sometimes and it seemed to help some. The itching is caused by the release of toxins into the tissues of the skin so it is actually an internal issue rather than a surface problem. However; it seemed to help her to soak in the Aveeno. It may be worth a try.
 
John, I felt so proud of you in reading your latest post. It has to have been very difficult for you to relinquish your volunteer positions as you did. I am glad that you are educating your co commissioners as well. Liver disease is something that more people should be aware of and educated about anyway. Although we are not able to help you because of distance I want you to know that we are your extended family and we will help in any way that we can. You are a tremendous asset to this forum and you have contributed so many worthwhile posts that have helped others. I want to thank you for doing so when I know that you don't feel well and yet you take the time to do it anyway. So a big hug to you!!!!!!!!!!!
 Shelly
 

“Life is not the way it's supposed to be. It's the way it is. The way you cope with it is what makes the difference."

 

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