Hello Pinkgrandma, and thank you for your condolences. I love my Dad and miss him so much.
My deepest sympathies to you also. I had read your husband was going to stsrt Nexavar, but didn't know that he had passed away on the day he was supposed to start on it. I'm sorry. I've read that it can effect the heart and I'm concerned because of Terry's prosthetic aortic valve. The oncologist didn't seemed conerned though. I guess I'm the only one worrying, and that gets me nowhere, does it?
I've been reading everyones post for awhile now, and I still can't keep everyones' story fresh in my mind. My short term memory is about shot. I feel for you all and will try to help and inspire you in any way that I can. I just need some friends right now also.
“Life is not the way it's supposed to be. It's the way it is. The way you cope with it is what makes the difference."
Oh, how time seems to be flying by. I'm not even sure what all we did during April. I guess I mostly watched after Terry after he started on the Nexavar. He seems to be doing alright on it. No bad sidefx. Sleeps more, some abdominal pain, and dry skin. There may be some hair loss, but not bad. He went back for another 4 phase liver scan after his last chemoembolization and the tumors must be shrinking a lot. His AFP levels have dropped to 14. At one point they were 50,000. He is having a radiofrequency ablation this Thursday. Hopefully, this will "kill" the last of the tumors in his liver. I just hope the Nexavar will keep the cancer from spreading throughout his body.
We did have to go to the ER Wed evening. He was having black diarrhea. They said he was having an ozzing GI bleed and to get back on his Prevacid. He was better the next day. Last night though, he was having a lot of confusion and it continued today. I finally got him to take some Lactalose and he seems a little better. How do you all get your loved ones to take the Lactalose when they refuse??? I think he needs more tonight, but he probably won't take it.
I did manage to take a trip home to see my family the last week and a half of April. Terry's Mom came and stayed with him. As soon as my plane landed though, my Mom was on her way to the ER. My daughter dropped me off at the hospital. Mom had blood clots in her legs and some small ones in her lungs. Once again I spent my respite vacation running back and forth. I did get to spend time with my daughter and grand daughter though. It was wonderful. She is 17 months and very happy. I had to spend a lot of time with lawyers, and accountants, because Mom messed up with her money. She stil won't come here though. She doesn't want to leave her farm. I don't blame her. It is beautiful! My son-in-law said he would help her out more and for that I am very grateful. He is a good man.
Since I've been home, I've been doing a lot of spring cleaning. I've just about wore myself out. I was just so glad to get back HOME. Terryeven manages to come outside for a little while and do a little work to help me. Hey, even 10 minutes of his help is a big thing to me!
I hope everyone here is feeling some better, now that sunnyer days are upon us!
Bless you all, Carol
Post Edited (Pink Grandma) : 5/7/2008 9:19:59 PM (GMT-6)