“Life is not the way it's supposed to be. It's the way it is. The way you cope with it is what makes the difference."
Thank you Shelly. No one as even mentioned liver cancer. I'm am just worried about it as if I don't have enought to worry about. I just don't understand the bone marrow thing. No one else has mentioned it on this forum. So I immediately start to worry about something else. I do remember in the beginning (about a year ago) they said Jerry did not have any tumor markers. I am going to check his blood work to look for what you said. The side pain has stopped but I can feel that his right side is larger then his left. That is probably why my mind went nuts. He gets another blood test done the end of this week so hopefully it will tell more. They're doing the blood test because of his tranfusion and also he will be finished with the neomycin. That has stopped the vomiting. Thank you so much Shelly.
Oh Shelly you are such a dear! I alway thought it was in through your nose and out through your mouth. Now I know why it didn't work. I know you are right some times I just get way ahead. The explaination the Dr. gave me for the blood loss is "he is not loosing blood his marrow is not producing enough". I did not know the liver had anything to do with the bone marrow. I haven't read anything on the forum about this happening to anyone else. Have you ever heard of that. What do you think.
JoAnn. I am such a dork..................it is thru your nose and out of your mouth. I said it completely backwards. So sorry honey. I was in a hurry (naturally) and gave you the wrong RX. So just reverse what I said before and again I'm sorry. Can you imagine that I was even doing it as I wrote it and still said it backwards? That's what I get for posting in a hurry...just make sure they are really really deep breaths then blow slowly out of pursed lips OK? It will work I promise. Make it a habit and you will notice that after awhile it becomes second nature when you are stressed.
As for what I think about the bone marrow...it needs further investigation for sure. I would pursue it with the Dr. Several chronic illnesses can cause the decrease in bone marrow production. The most common are leukemia and kidney disease. Now don't freak out. That doesn't mean he has either one but the fact remains that Jerry is anemic. What needs to be discussed is will this be an ongoing problem for him or not and what is causing it. Blood dyscrasias are not uncommon with liver disease and this may be something that they see and I just am not aware of it. So PLEASE don't get yourself upset and see what the Dr has to say first OK?
Shelly-Whats even funnier it was working for me. I think just concentrating on somthing besides liver disease and what COULD be wrong is driving me crazy and I know you are right so I will work on my breathing. Another question. Tumor marker what is a good number if there is such a thing! Thank you so much for the info.
Post Edited By Moderator (Admin) : 8/7/2010 10:38:05 PM (GMT-6)
YEAAAAA Jerry's AFP in February was 3.1!! Back in November it was 7.0. I do feel much better. Thanks Shelly.
JoAnn, that is great! That's about what mine is, or a little lower. I was told that it never did get really out of range.
Shelly (and JoAnn and all), when an MRI is done to look at the liver, the specific IV contrast material used is Gadolinium. This has to be given at a fairly rapid rate. The first time I had it (at Shands), the vein blew w/o the tech being aware of it. Nobody was in the room with me, but I started hollering and crying and was ignored. I didn't know what was happening except that I was in excruciating pain. I felt like my arm was coming off. Well, when they got me out of the machine, I had a huge blister on my forearm. I had suffered a chemical burn from under the skin. I now have a large white scar as a "souvenir." This really was a fluke, but it wasn't handled very well...to say the least. At Mayo, I've had no problems at all with the Gadolinium...always make sure they know what happened previously, and they have someone stay right by my side while the Gadolinium is infusing.