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Catherine__08
Regular Member


Date Joined Apr 2008
Total Posts : 24
   Posted 4/8/2008 2:16 PM (GMT -7)   
Im always out of breath all the time, simple things like making my bed or just walking upstairs or even down makes me huff and puff, im like an old woman.

Catherine__08
Regular Member


Date Joined Apr 2008
Total Posts : 24
   Posted 4/8/2008 3:16 PM (GMT -7)   
Iv told the doctor plenty of times he just tells me its all related to my illnesses, i take
prednisolone. omeprazole, asacol, zinc, iron, vitamin k, mycophenalate, magnesium and spironolactone

Catherine__08
Regular Member


Date Joined Apr 2008
Total Posts : 24
   Posted 4/8/2008 3:25 PM (GMT -7)   
And also my stomach is so big i look as thought im 9 months pregnant, its not water in the stomach because i am checked for that regularly, i also have a spleen twice the size it should be. is this normal for my stomach to be so big?

Catherine__08
Regular Member


Date Joined Apr 2008
Total Posts : 24
   Posted 4/8/2008 3:46 PM (GMT -7)   
yh im always forgetting things, like my dad will ask me to hang the washing out, and ill say yh 2 secs ill do it, and i completely forget just simple things like that really. Iv had infusions to make me wee when iv had a swollen stomach which usually helps it go down a bit but not a lot.

1Shelly1
Veteran Member


Date Joined Oct 2007
Total Posts : 502
   Posted 4/8/2008 4:26 PM (GMT -7)   
Catherine, being short of breath to the point that you are struggling to do simple activities is an issue that needs to be addressed with your Dr as soon as you can make an appointment. How often are they doing blood work on you? I would ask the Dr to do ammonia levels and to do a biox. The biox can be done very easily by putting a little specialized clip on your finger. It tells them what your oxygen level is. For your age it should be between 97-100%. Also, are you weighing yourself everyday? Whenever a patient has any fluid retention we always reccommend a daily weight be done first thing in the morning. If you do then start a journal to keep track of your weight. Some weight gains are normal (like before your periods) but other than a very minor fluctuation you should not have any substantial weight gains. When it is elevated it is probably fluid retention. When you see the Dr you can show him your journal. It is really important that you stay on top of all this.
 Shelly
 

“Life is not the way it's supposed to be. It's the way it is. The way you cope with it is what makes the difference."

 


Catherine__08
Regular Member


Date Joined Apr 2008
Total Posts : 24
   Posted 4/8/2008 4:38 PM (GMT -7)   
Yh your right i need to keep on top of things, u lot seen to be very organized. Iv have blood tests every week. Im at the hospital in the morning so im going to make a few notes and ask the dr.

1Shelly1
Veteran Member


Date Joined Oct 2007
Total Posts : 502
   Posted 4/8/2008 5:02 PM (GMT -7)   
Catherine, please make a list of the questions you want answered. It will help you to organize your thoughts as well as getting the answers you need. As you ask your questions write down his/her answers so you won't forget later on. I want to help you to be proactive in your own care. Sometimes it just helps to take a minute and listen to your own body. It's amazing how much we can be ahead of the game if we pay attention to what our body says. You know yourself better than anyone else so when you feel out of whack make a note of it. Sometimes you'll see patterns to how you are feeling as time goes by so keep journals. For example, if you eat salty foods and find that you feel ill afterward or the next day and your full of fluid the next day then you know it's from the salt. Just an example.

 Shelly
 

“Life is not the way it's supposed to be. It's the way it is. The way you cope with it is what makes the difference."

 


Mischa
Regular Member


Date Joined Mar 2008
Total Posts : 47
   Posted 4/9/2008 10:08 PM (GMT -7)   
just a thought, when the fluid stopped filling my husbands belly, it went to the sac around his lungs. They have taken as much as 3.8 liters from 1 side. He had alot of shortness of breath and now we know the signs of the fluid. His ribs start hurting, that is a signal that the fluid around his lung is getting out of control again.
Good luck at the dr's, you might ask for a chest xray to see the amount of fluid around the lungs.
Therese
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