A couple of great days

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JohnCT
Regular Member


Date Joined Mar 2008
Total Posts : 202
   Posted 4/18/2008 10:47 PM (GMT -7)   
Hi everyone,
I write so much of symptoms and problems that I wanted to share a little of my sunshine.
The last two days have been glorious in CT -- warm and sunny. I don't know if it's the weather, my attitude, or what, but I have felt absolutely human and relatively normal.
I had just about finished building my house when my symptoms slowed me down. I have felt so good these last days that I broke out the tools and built some house and porch trim and organized some oak lumber for future bookshelves. I love working with wood and the smell of wood shavings gives me an uncontrollable grin.
Sorry to be trite but I am a simple soul and these simple pleasures have brought me great joy. I hope that each of you can find days of joy.
Be well, John
No need to respond, I just wanted to share.
If I weren't having so much fun with you guys,
I'd love to be out sailing on Long Island Sound
Woodmont on the Sound, Connecticut


Pink Grandma
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Date Joined Nov 2006
Total Posts : 2445
   Posted 4/18/2008 11:46 PM (GMT -7)   
John, I know that you didn't need a reply but in this case I could not help myself.

When someone.... be it patient or caregiver has a good day or two it makes my day so much better. It's the good days that help most get through the bad days. And as you and anyone else dealing with this disease knows that sometimes when you are in the middle of the bad days ............it is so hard to remember the good ones.

So thank you for sharing John.

Take care..........
Pink Grandma
Forum moderator-Hepatitis

When the going gets tough....the tough get going! Don't always know where I going but I get there anyways.


lavendar
Regular Member


Date Joined Nov 2007
Total Posts : 450
   Posted 4/19/2008 1:02 AM (GMT -7)   
Sure hope I don't forget this week. It was the best in a long time. Hope it isn't the calm before the storm. I love the smell of wood shavings, and smell of laundry that has been dried outdoors. june

1Shelly1
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Date Joined Oct 2007
Total Posts : 502
   Posted 4/19/2008 4:40 AM (GMT -7)   
John, that was a wonderful post and I am so glad that you are feeling energetic. We forget sometimes how great the little things in life can be (like the smell of wood chips). Keep it up!
 Shelly
 

“Life is not the way it's supposed to be. It's the way it is. The way you cope with it is what makes the difference."

 


exhaused
Regular Member


Date Joined Nov 2007
Total Posts : 445
   Posted 4/19/2008 8:59 PM (GMT -7)   
The smell of wood shavings remind me of campfires when I was young.  John you have done it again.  I was able if for only a minute to leave my pain and think of good things.
 
Thanks again
JoAnn

JohnCT
Regular Member


Date Joined Mar 2008
Total Posts : 202
   Posted 4/20/2008 12:01 AM (GMT -7)   
Hi again,
Pink Grandma and Shelley - Thanks for all that you do for each of us. I hope you know how much of a positive difference you make in each of our lives, patients and caregivers alike.
June - I can't tell you how much I hope that calm days prevail for you. And I hope that when the storms come that you'll let us know so we can urge you on. I don't know if you're a movie fan but some movie maniac friends herded me into re-viewing Forrest Gump. So when you mentioned the storm, all I could envision was Lt. Dan, now first mate on the shrimp boat, sitting high the rigging during a hurricane, coming to terms with God, first with anger and then finding peace and a good life on the other side of the storm. I like that scene.
Joann - It's funny that you mention campfires. This evening I went to a party at a friend's home located high in farm country and overlooking one of the large cities here. All of his parties are outside and it is still cool in the evenings (40's) so there was a nice fire burning by his patio. While I didn't place the feeling at the time, now that you mention it, it reminds me and makes me long for camping, sitting around the fire, eating freshly caught fish and eagerly awaiting desert -- (mind fog - can't think of the name) a hot fruit compote with bisquick muffin-like islands floating in it. Thanks for the image. Let's find lots of good things to think about.
This morning (it's almost 3), I'm touched and a bit misty. Sitting here in bed, writing and thinking of nice things, talking to you guys, listening to the Beatles' Abbey Road album, my faith is renewed. I even have kind thoughts for my gaggle of ex-wives.
I hope that life treats you well.
Be well, John
If I weren't having so much fun with you guys,
I'd love to be out sailing on Long Island Sound
Woodmont on the Sound, Connecticut


Mischa
Regular Member


Date Joined Mar 2008
Total Posts : 47
   Posted 4/20/2008 12:13 AM (GMT -7)   
John, thank you so much for reminding us that each day that we open our eyes is another beautiful day. We never know how many we will have so we should cherish each day, good or bad.
The weather here today was unbelievable, bright, sunny, gentle breeze blowing, mid 70's. You really could not have asked for a better spring day. Days like today are just a gentle reminder that God has not forgotten our struggle to care for ourselves or others. He gives us these peaceful days to renew ourselves.
Have a wonderful day today :)
Therese

JohnCT
Regular Member


Date Joined Mar 2008
Total Posts : 202
   Posted 4/20/2008 12:46 AM (GMT -7)   
Hi Therese,
I will have a wonderful day. A friend who plays banjo with a New Orleans- style jazz band is throwing a small concert, hiring a restaurant and inviting only friends. I am blessed with an abundance of social friends and as I get together with them now that my disease is active, I find that I treasure them more each day.
And as I meet new friends here on the forum, I find that I am doubly blessed. Friends that share common highs and lows, symptoms and treatments, and a level of caring that comes from facing critical, and deadly, situations.
So I will enjoy my day and hope that you will enjoy yours. I wish you good weather and gentle thoughts.
Be well, John
If I weren't having so much fun with you guys,
I'd love to be out sailing on Long Island Sound
Woodmont on the Sound, Connecticut


lavendar
Regular Member


Date Joined Nov 2007
Total Posts : 450
   Posted 4/20/2008 1:57 AM (GMT -7)   
JohnCT: I really loved the movie Forest Gump. In fact we have it. And now you have me on Abby Road. Great Music. You were so uplifting i'm even thinking of suggesting that my husband take me up to the mountains to enjoy the spring air. june

exhaused
Regular Member


Date Joined Nov 2007
Total Posts : 445
   Posted 4/20/2008 8:37 AM (GMT -7)   

John  I totally forgot about Forrest Gump.  One of my favorite movies.  We need to watch it again.  We have a second home where part of that movie was filmed.  I love to go there and sit on the bench and watch the magnificant sunsets.  You just managed to get more wonderful visions in my head.

Thanks again

JoAnn


1Shelly1
Veteran Member


Date Joined Oct 2007
Total Posts : 502
   Posted 4/20/2008 1:29 PM (GMT -7)   
To All, each of your posts has been uplifting, encouraging, and genuinely wonderful to hear. Somehow we all get focused on the bad and we forget to thank GOD for all the good. The old addage applies here: IS you glass half empty or half full? I like to see it as half full. You are great people and I just love you all.
 Shelly
 

“Life is not the way it's supposed to be. It's the way it is. The way you cope with it is what makes the difference."

 


rainbeau
Regular Member


Date Joined Feb 2008
Total Posts : 39
   Posted 4/21/2008 11:24 AM (GMT -7)   

Greetings ALL!!

just popping in to say hello!!  Things have been going well for me and mr. wonderful.  we are out west for a few weeks to enjoy the desert blooms.  had a little fall off the proverbial wagon, but things are back on track now!  as soon as his blood pressure started to go up and i reminded him of the way he was a short month ago and did he want to go back to being that way, he got back on the wagon.  the only thing that i am concerned about is some tell tale signs of a stroke.  some memory loss and some slight speech impediment.  we did the brain MRI several   weeks agao, and i called the neurologist several times to get a report, but no return call.  when we return, we have an appt with her, and should know more then.  he is doing lots of walking and reading and relaxing and sunning. 

shelley, honestly, never got past the first couple of chapters of the book you recommended.  but there is no question that you have guided me...many continued blessing to you and yours!!  i am eternally grateful.

Joann, i'm keeping tabs on you and jerry.  keep up the great work and know that we are pulling for you two!!  You continue to inspire me and educate me!! I just know that there is going to be a successful transplant right around the corner!!  no more curve balls, just that fabulous fastball that i know Jerry is going to hit out of the park!!  love and light to you!!!  

would love to know how things are for butterfly!!  any word from her???

june, pink, frustrated, mailman, and all others, keep on keeping on!!!  You continue to inspire me!!  and you are always in my thoughts and prayers.....

and to this new Mischa!!  girl, you rock!!  totally love the light you emit in your posts, be it knowledge or humor....i'm a big fan.  you are really neat!

as always, LOVE AND LIGHT!! 

RAINBEAU

 

 

 

 


1Shelly1
Veteran Member


Date Joined Oct 2007
Total Posts : 502
   Posted 4/21/2008 3:14 PM (GMT -7)   
rainbeau, I am so happy that Mr Wonderful is out West on R&R. Sounds like you're having a great time. Let us know what the neuro Dr has to say. I have missed your posts. Sorry the book didn't do anything for you confused .
 Shelly
 

“Life is not the way it's supposed to be. It's the way it is. The way you cope with it is what makes the difference."

 


Pink Grandma
Veteran Member


Date Joined Nov 2006
Total Posts : 2445
   Posted 4/21/2008 5:45 PM (GMT -7)   
Hello Rainbeau, So glad to hear from you and that Mr Wonderful is doing well. We haven't heard from Butterfly in a spell and I am getting real worried. I hoping that her computer is on the fritz and that everything else is going well. Post when you can as we get concerned about you and your husband also.
Take care ......thoughts and prayers.....
Pink Grandma
Forum moderator-Hepatitis

When the going gets tough....the tough get going! Don't always know where I going but I get there anyways.


exhaused
Regular Member


Date Joined Nov 2007
Total Posts : 445
   Posted 4/21/2008 9:12 PM (GMT -7)   

Rainbeau  It is so good to hear from you.  I'm so excited for you and "Mr Wonderful"  Please stay in touch.  You never did say if you were going for a transplant.  I so hope that things continue to go well.  Jerry is back on the neomycin and starting to do better.  I'm hoping to get back to the coast once more time before his score goes up.  It would be too risky to go when its high because it would be a 10 hr drive to Vanderbil from our second home.  I hope your having some good R & R.  I'm a little parcial to the west because thats where I'm front.  Treasure every minute because no one know what tomorrow will bring.

JoAnn


lavendar
Regular Member


Date Joined Nov 2007
Total Posts : 450
   Posted 4/22/2008 12:16 AM (GMT -7)   
Rainbeau: Like everyone else , I am glad to hear your both doing well. Hope your enjoying your stay. about Mr. Wonderful, and the memmory and slurred speach. Could it be he needs more lactulose. I get like that when my ammonia is up. Just a thought. Take Care Keep Posting. june
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