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Jan52
New Member


Date Joined Apr 2008
Total Posts : 1
   Posted 4/25/2008 8:55 AM (GMT -7)   
Hi to everyone.  I have Hep C and Chirrosis.  I have gone thru the interferon 3 times.  Recently in ICU for varies bleeding.  > 2 liters!  They did
banding and I had another endocscopy alittle over a week ago which showed things looking better.  No more bleeding.  Now I have a cough and cold.  Also have diabetes.  My doctors say my liver function test are not bad enough yet to go on transplant list.  I worked for over 20 years in
nursing homes as LPN.  Had to finally quit last Sept. '07.  Now on disability.  I just found this place and feel relieved to know I can finally talk
with people who understand.  When is chat room open?  Every time I go to it there's no one there. 
Jan :-)
 Jan


Pink Grandma
Veteran Member


Date Joined Nov 2006
Total Posts : 2445
   Posted 4/25/2008 10:11 AM (GMT -7)   
Hello Jan . So sorry that you are going through this. I don't know of any hep members that frequent the chat rooms. But they are open 24/7 to use. If you stay online I will be able to use it in about 1 hour from now. It's 10:13am my time that's pacific standard time. I'm in California. See in about hour...........
Pink Grandma
Forum moderator-Hepatitis

When the going gets tough....the tough get going! Don't always know where I going but I get there anyways.


JohnCT
Regular Member


Date Joined Mar 2008
Total Posts : 202
   Posted 4/25/2008 11:34 PM (GMT -7)   
Hi Jan,
Just a quick hello and a welcome to the forum from a Hep C and cirrhosis patient. I am on the list but below the trigger score.
I'm sorry that you have to go through this. But if we must, this is the place for information and support. There are so many truly amazing persons ready to share or listen. Please let the forum know what you're feeling and how you feel. I know how bad it can be when you feel alone while dealing with this.
I'm disappointed for you that you have had to do the Interferon treatment three times. Keep the faith. There are a lot of breakthroughs on the horizon and a growing pressure to see them succeed as more and more of the estimated four million Hep C patients find out they are infected. The fact that famous persons are now talking about their Hep C is making our situation more mainstream and acceptable for discussion.
Again, welcome! I hope for the best for you.
Be well, John
I have to get up the creek! Now where's that paddle?
Mind-fogged again.


lavendar
Regular Member


Date Joined Nov 2007
Total Posts : 450
   Posted 4/26/2008 12:39 AM (GMT -7)   
Welcome Jan, I also have chirrosis and am on the list. Thank god I'm still close to the bottom . But at least I have gone through all the eveluations. I'm surprised that with the varcies banding and Hep C they have'nt sent you for an eveluation. What kind of a Dr. are you seeing. I'm buy way no expert on anything . This forum has been a whole new world of information to me. Really glad I found it . I could'nt waite to retire. I finally made it only to find out that I'm physically a wreck in progress. I almost immediately qualified for disabilty due to all my ailments. So am really greatful for any advice I can get from those who have been there, done it or in the process. Hope you find it as insighful as I have.
june

lavendar
Regular Member


Date Joined Nov 2007
Total Posts : 450
   Posted 4/26/2008 12:44 AM (GMT -7)   
I forgot to mention that I have seen a Dr. for over 20 years for hypertension every six months got liver function tests. ((((They were always normal))) So no one knows how long I have been having liver problems. Found out when I had an attack of encepalopaty and ended up in hospital with high ammonia level. Then went to gastrointerologyst. Who informed me that I was at end stage.

exhaused
Regular Member


Date Joined Nov 2007
Total Posts : 445
   Posted 4/26/2008 8:07 PM (GMT -7)   

June  That is so strange that you should mention about going to the Dr. for 20 yrs. and having liver function test.  My husband saw the same Dr. for over 20 yrs.  He started taking lipitor 15yrs ago so they did liver function tests every 6 months to begin with then yearly.  They were always normal.  He kept complaining to his Dr. about his hernia's.  That same Dr. kept telling him to just live with the hernia's because the surgery was major.  Finally after complaining for over a year his Dr. sent him to a surgeon.  The surgeon took one look at him and knew what was wrong.  That was a year ago.  His last MELD was a 16.  I think it might be higher now.  They don't check again until the middle of the month.  I bet there are a lot of us on this forum with a similar story.

JoAnn


lavendar
Regular Member


Date Joined Nov 2007
Total Posts : 450
   Posted 4/27/2008 1:23 AM (GMT -7)   
JoAnn

about 5 years after having my gallbladder removed in the 80's . I kept going to the Dr. complaing of a pain under my right upper rib. At that time I was very active working on our home. Tending an acre of lawn , raising my son, working etc. He said I was lifting, pushing , and pulling to much, that's when I started seeing a Dr. regularly for my hypertention . He finally had an MRI done on me . Said it was just irritation I was getting from working out to much . The MRI only showed that I had scar tissue from the gallbladder surgery.

So all the tylenol , ibuprofen and other meds. I took over the years are what I say contributed to an already damaged liver. They say my Hep A as a child had nothing to do with it. But I believe it did. Plus my gallbladder was severely infected when they removed it and I was severely ill at that time. Had chronic diarria for about 6 years before someone told me to ask for Questran. Now I take lactulose. Go figure??? june

1Shelly1
Veteran Member


Date Joined Oct 2007
Total Posts : 502
   Posted 4/27/2008 5:58 AM (GMT -7)   
Hi Jan and welcome to HealingWell. Sorry to hear what you are going thru. This forum, the members, and our forum moderator "PinkGrandma" are such a wonderful inspiration and educational source that you will be happy you posted and became a member. The one thing I learned from here is you are never alone. Keep posting and know that we are all here for you.
 Shelly
 

“Life is not the way it's supposed to be. It's the way it is. The way you cope with it is what makes the difference."

 


exhaused
Regular Member


Date Joined Nov 2007
Total Posts : 445
   Posted 4/27/2008 7:06 PM (GMT -7)   
This is for anyone who has some advise.  My husband has two hernia's caused from ESLD.  His acites has been really horrible.  He has had a couple of trips to the ER because his hernia popped out (I don't know any other way to explain it) also it was extremly painful.   I'm sure Shelly knows what I mean.  I have since learned how to push it back in saving trips to the ER.  If I can get it back in shortly after it pops out it isn't as painful.  I'm not sure why that is.  Anyway we know now what to look for and also after he gets drained sometimes it tends to pop out within 24 hrs.  After that it doesn't give him much problems.  Here is our delema.  For the last 24 hrs it has been popping out constantly.  Just standing or sitting or walking etc.  I'm sure you get the idea.  We can't figure it out.  It's scaring me because they have told us he can not have any surgery.  I'm concerned this will mess up his chances for a Liver transplant but at the same time I know it can't be good for it to keep coming out.  Has anyone had this happen.  I forgot to mention I think the Dr. called it an umbilical hernia.  Thanks for any help you can give.
 
JoAnn

exhaused
Regular Member


Date Joined Nov 2007
Total Posts : 445
   Posted 4/27/2008 7:11 PM (GMT -7)   

June  This is so strange.  I had Hep A as a child.  Isn't that odd.  I was thinking about that the last time I took my husband to his Dr. appt and I asked the DR about it.  He said Hep A shouldn't cause any problems when you get older.  But you know, I'm not sure I believe that.  I don't think they really know.  I wish Dr. would say that instead of guessing.  I wish there was more public awareness of this horrible disease.  I talked to a Dr at Vanderbilt about it and she said there is NOT much.  I wish we all knew how to change that.  Hope your doing well.

 

JoAnn


Mischa
Regular Member


Date Joined Mar 2008
Total Posts : 47
   Posted 4/27/2008 9:46 PM (GMT -7)   
Joann, I hope you can get it figured out with the hernia, My husbands hernia has never gone in and stayed in. You push it in and as soon as you remove the pressure it pops out. It now pushs his testicle to one side, it started off even with the pubic bone. I think the truss actually forced the tear to go further down instead of holding his intestines in. He has gotten to the point that it backs him up so bad he has to drink that magnesium citrate in order to go, then he hurts from the cramping and diahrhea :(
Hope you can find something to help your hub
Therese

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 4/28/2008 4:42 PM (GMT -7)   

JoAnn, as I have posted previously, I developed an incisional hernia in the midriff section a couple of months after my liver cancer surgery.  That was repaired in Dec., but 2 months later I had it again...and much bigger this time.  It looks like I swallowed a basketball.  Am awaiting the 2nd repair.  What I am now doing, and suggest for your husband (since it's an umbilical hernia) is to obtain an abdominal binder.  It wraps around the stomach and has velcro to close it wherever it feels most comfy.  I didn't wear this after the first hernia repair (I had asked them for one...they didn't just give me one or even suggest it), as it felt uncomfortable.  However, I assure you I will wear it this time.  I am wearing it now when my tummy starts to really bulge (such as after eating.)  I also got a waist cincher with stays and hook and eye closures, which is so tight I cannot tolerate it more than a couple of hours, but I wear it when I'm going out so that my clothes fit right and I don't look pregnant.

Since my hernia is higher than the bellybutton, they don't feel it's in danger of being strangulated, as can happen with an umbilical hernia or inguinal hernia.  Since your husband's is umbilical, you must check for hardness, inability to reduce it (put it back in place), fever, or severe pain.  These are indications of a life-threatening problem!  However, if you can get a belly binder for him, it should ease some of the discomfort of the bulging and prevent it from getting worse.

Hugs,

Connie

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