Im baaaaaaaaaaack!

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hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 4/25/2008 11:29 PM (GMT -7)   
I returned from my NYC trip a week ago.  I spent 5 days and 4 nights in Manhattan, flying up from FL by myself.  Just before I left, I had learned that I could request wheelchair assistance and this turned out to be a phenomenally useful thing!  I had a wheelchair waiting for me at the Delta counter, and was pushed in that with my carry-on luggage to the security checkpoint (where I set off the metal detector and had to be patted down and a wand passed over me, even though I had cards stating I have artificial hips) right to the gate.  At LaGuardia Airport in NYC, I only had to mention to the shuttle bus driver (from the plane to the gate) that I needed a wheelchair, and he phoned whoever was in charge of that.  A chair and pusher was there when I got off the bus.  I was then pushed to baggage claim and then curbside for a cab.  This also was done in reverse on my way home.  (As mentioned, I have artificial hips, and the left one has been redone twice, so long walks carrying stuff are difficult.)
 
I had a fantastic time in the city and am so glad I went!!  I honestly had started second-guessing myself about the trip and the cost of it, and am really glad that I didn't back out.  My oldest and dearest friend (we met in 9th grade at 13) came to the guest house where I was staying on Tues. around noon, and stayed with me all day, all night, and all of the next day up until I was heading for a Broadway show and she needed to get the train back to LI.  We had an absolute blast "doing" Chinatown and Greenwich Village.  She's such a doll and would not let me pay for a thing while I was with her.  What's more, she wants me to return in Sept., to stay with her on the Island.  She said to get myself there and then I wouldn't have to pay for a thing.  I already have money set aside for plane fare.  I walked more in 5 days than I have in the past 5 years total.  I think I was going on pure adrenaline.  On Thurs., being alone, I took the subway up to the Columbia Univ. area to eat at a Greek restaurant I frequented 38 years ago.  I found the food just as delicious as I remembered, and still low in cost.  The subway was a little scary...I'd forgotten how steep the stairs are...and I needed help purchasing a Metrocard, but it was a great adventure.  I feel that I've developed more confidence in my ability to do things I used to do, as a result of this trip.
 
I had developed some chest congestion before I left, and had some coughing fits while I was up north, but felt fine.  Last weekend, at home again, I started coughing up green gunk.  However, it seemed to clear up some until Wed., when I saw the surgeon and his P.A.  However, they would not give me antibiotics, citing a new regulation that they cannot prescribe anything that is not directly related to surgery.  I will have the hernia repair the week of May 12th...exact date will be mailed to me.  I already had labs and an abdominal CT.  The labs will be repeated, plus I will need to do a bowel prep, chest x-ray, and EKG.  Meanwhile, I feel fine one day and sick the next.  I have an appt. with my PMD's P.A. on Mon., but the productive cough is no longer bringing up green stuff...just white mucous.  So there doesn't seem to be an infection at this point.  I believe part of the problem could be allergy and post-nasal drip.
 
My surgeon did tell me that this next hernia repair will "knock me for a loop."  The hernia is huge (not helped by the coughing fits), and he will have to use a synthetic mesh.  He started telling me of the possible risks associated with this surgery on someone with cirrhosis and hep C, and I told him I'd be fine.  He laughed and said that I always say that...but I always am.  It's something I strongly believe.  I HAVE to have a positive outlook--that is what keeps me going--that and the belief that God is not going to drop me now after all he's carried me through.  ;)
 
It will take me awhile to read through all the posts I've missed.  Meanwhile, welcome to all our new posters and "hi" to the old and familiar!
 
Hugs,
Connie

Post Edited (hep93) : 4/26/2008 12:36:21 AM (GMT-6)


JohnCT
Regular Member


Date Joined Mar 2008
Total Posts : 202
   Posted 4/25/2008 11:41 PM (GMT -7)   
Hi Connie,
It sounds as though the trip was the best thing in the world for you. It was good to hear that you had a great time. Welcome back.
Be well, John
I have to get up the creek! Now where's that paddle?
Mind-fogged again.


hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 4/25/2008 11:53 PM (GMT -7)   
Thanks, John! Yes, it really was good for me. Because of all the surgeries, I had not been able to go anywhere for nearly 3 years, and hadn't taken that kind of trip for many, many years. I think I deserved it! :)

Hugs,
Connie

lavendar
Regular Member


Date Joined Nov 2007
Total Posts : 450
   Posted 4/26/2008 12:11 AM (GMT -7)   
Connie: So happy to hear all about your trip . Must have been great, It's been such a long time since I have even heard from or seen my old friends. And quite a few of my old classmates still live and work in the same community I used to live in. Still go there to see my mother in law and some of my brothers and sisters. I only know of one who is now a physichian and treats most of the family members who live there. Really glad you went on that trip. Get ready for the next one, sounds like fun.
My husband wanted to take a trip or cruise to see the whales either in California, Mexico. or Alaska this past Dec. But I was so bummed out over this disease that I did'nt feel like going anywhere. At that time the Dr. here made it seem as if I was going to die inthe very near future . But here I still sit a year later. Getting surgeries on my achy feet.
I told the surgeon the same thing you did when he started in on the the risks and so on related to chrossisis and anesthesia . I just said do it while I can still walk. (What good is a liver without feet to carry it around.) Kidding. {I did'nt really tell him the last part) only said I want it done ASAP. My doctor and my husband both tell me I have a fractured sense of humor.Can't joke around with the surgeon , he does'nt know me well enough. I just say I'll take it any way I can.

lavendar
Regular Member


Date Joined Nov 2007
Total Posts : 450
   Posted 4/26/2008 12:14 AM (GMT -7)   
Connie: So happy to hear all about your trip . Must have been great, It's been such a long time since I have even heard from or seen my old friends. And quite a few of my old classmates still live and work in the same community I used to live in. Still go there to see my mother in law and some of my brothers and sisters. I only know of one who is now a physichian and treats most of the family members who live there. Really glad you went on that trip. Get ready for the next one, sounds like fun.
My husband wanted to take a trip or cruise to see the whales either in California, Mexico. or Alaska this past Dec. But I was so bummed out over this disease that I did'nt feel like going anywhere. At that time the Dr. here made it seem as if I was going to die inthe very near future . But here I still sit a year later. Getting surgeries on my achy feet.
I told the surgeon the same thing you did when he started in on the the risks and so on related to chrossisis and anesthesia . I just said do it while I can still walk. (What good is a liver without feet to carry it around.) Kidding. {I did'nt really tell him the last part) only said I want it done ASAP. My doctor and my husband both tell me I have a fractured sense of humor.Can't joke around with the surgeon , he does'nt know me well enough. I just say I'll take it any way I can.

Pink Grandma
Veteran Member


Date Joined Nov 2006
Total Posts : 2445
   Posted 4/26/2008 3:24 PM (GMT -7)   
yeah yeah yeah yeah Connie I am glad that you had a blast. But I would be lying if I didn't say I am glad that you are back. You were sorely missed. But it is fantastic that you will be going again.

Recoup and relax .............thoughts and prayers........
Pink Grandma
Forum moderator-Hepatitis

When the going gets tough....the tough get going! Don't always know where I going but I get there anyways.


exhaused
Regular Member


Date Joined Nov 2007
Total Posts : 445
   Posted 4/26/2008 7:08 PM (GMT -7)   

Connie  Welcome back.  Isn't it amazing when you go ahead and do something you are not sure about afterwards you are so sure you could do it again and again.  I am always so proud of myself!!  I am so impressed you can remember all your old friends.  I can barely remember their names.  Anyway welcome back and I'm so glad you had a great time. 

JoAnn


1Shelly1
Veteran Member


Date Joined Oct 2007
Total Posts : 502
   Posted 4/27/2008 5:16 AM (GMT -7)   
Connie, I am so glad you had such a nice trip but I'm also you're back. You're right...........you deserved the trip.
 Shelly
 

“Life is not the way it's supposed to be. It's the way it is. The way you cope with it is what makes the difference."

 


hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 4/28/2008 4:28 PM (GMT -7)   

June, no...it was only 1 friend!  LOL!  She was my BEST friend at 13 and ever since.  We have stayed in touch over the years, even though she's still in NY and I'm in FL.  I barely remember anyone else in my HS.  And everyone else I knew has moved away or died.

JoAnn, I have had a great feeling of confidence since that trip.  It really was good for me to know that I could take a trip like that alone and be fine.  yeah

I canceled the visit with the P.A. today, as I've basically recovered from whatever bug I've had for the past 2 1/2 weeks.  Hallelujah!  Still waiting for my definite surgery date.

Hugs to all,

Connie


frustrated_n_wv
Regular Member


Date Joined Aug 2006
Total Posts : 469
   Posted 4/29/2008 4:05 AM (GMT -7)   
Connie

I am soooooo happy that your trip went well and that you had such a fantastic time. Seeing old friends and going "back in time" can be the best medicine. I am thrilled to know that your confidence in your abilities has returned. Now you know how strong you are. Of course we all knew that all alongl. Welcome back!

Lucy

Butterflythree
Veteran Member


Date Joined Oct 2007
Total Posts : 954
   Posted 4/30/2008 7:24 PM (GMT -7)   
Connie, It is so good to hear from you and your positive attitude. I am really glad that you had such a great time. You make it sound like it was really fantastic. I look forward to hearing about your next adventure. I'll pray that your next surgery goes smoothly.

Take Care!
Butterflythree
 
There is always hope!


hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 5/4/2008 3:58 PM (GMT -7)   

It really was a fantastic trip, Butterfly!  I'm hoping to do it again in Sept.!

I'm a little bummed by the fact that my surgery will not be until the end of the month.  The week of the 12th, when I was supposed to have the surgery, my doctor will be out of town.  So they've scheduled me for pre-op testing on the 28th of May, with surgery on Thurs., the 29th.  I'll probably be inpatient for a few days...but in the beautiful new Mayo Hospital.

In the schedule that was sent to me, I noticed I've also been scheduled for an EGD in early July, looking for possible varices, and a couple of other tests, plus a f/u visit with my hepatologist.  I know this is a prelude to hep C treatment, but I feel I need a little more time to recover from the hernia surgery before they start assaulting me again.  So I'll call and try to reschedule to Aug.

Hugs,

Connie


Cape Caz
New Member


Date Joined Apr 2008
Total Posts : 15
   Posted 5/4/2008 4:13 PM (GMT -7)   

Hi Connie.  You and I have not conversed before but I became inthrawled with your message.  If you can tackle the airport, flight and a week in NYC you can tackle anything.  What an adventure and test of wills.  Don't let this aweful thing keep you from doing ANYTHING you want.  You are bigger and stronger and trips like this prove it.   When you left to visit NY you chose NOT to be a victim.  Today you proved it.

yeah
God have mercy on us all.


Caregiverx3<3
Regular Member


Date Joined Mar 2008
Total Posts : 197
   Posted 5/7/2008 6:09 PM (GMT -7)   
Hello Connie,
I'm happy foryou that you had such a wonderful trip!
I just spent a week in KY with my family. All didn't go so well, but I'm so happy I finally got to go. I also saw my best friend from high school and we got our new grand daughters together. It was a lot of fun.

Sounds like you are going to do the HCV treatment. I asked Terry today, if he was able to do the treatment someday, would he choose to do it or not. Maybe at this point, that was too much to ask him. He's not sure that he would do it. This cancer treatment and everything just has him feeling too bad. I don't even know if it is an option for him now. We'll get through this first and then I'll ask the Dr. about it. They're just not giving us much hope.

I better quit. I'm getting myself depressed.
Carol
 


Marg57
Regular Member


Date Joined Dec 2005
Total Posts : 446
   Posted 5/8/2008 3:44 PM (GMT -7)   
Hi Connie, What a great time you had. I'm so glad you enjoyed it. Good luck with the hernia op. You'll be OK. As you say, you always are!!
Take care. I don't visit the site as often these days but continue to thnk of those friends I made in my time of need.
Marg
 


hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 5/10/2008 12:40 PM (GMT -7)   
Marg, great to hear from you!!

Thanks, too, to CapeCaz and Caregiver/Carol for your posts! I'm not altogether sure about doing treatment. I know it would last a year and everyone I've known who has gone through it has gotten extremely sick and depressed from it. However, if I don't do it, the liver cancer could very well return. Decisions, decisions. However, as you say, Carol/Caregiver...first things first. I just need to get through the hernia surgery before making any further decisions or plans.
 
Caregiver, so glad you were able to reconnect with your school friend, also!  Mine has been calling me a lot since I got back, and I got a box from her today with a hoodie sleep set and a bunch of magazines.

Hugs,
Connie

Post Edited (hep93) : 5/10/2008 1:43:08 PM (GMT-6)

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