Therese I know exactly how you feel about the poop and everything. If you cut back on the salt that may help the fluid. It took us a long time but I think we have that down. Don't cook with any salt and don't cook anything that is pre-made. After you cook sprinkle about 1/4 tsp on the food. That way you get the taste of salt and its not too much. Anything out of a box or can is too much salt. I know its hard but that might help. Also the color of his skin you were talking about. My husband has that color at least every other day for a year now. He has to poop though because of amonia. As far as the meds why won't the Dr. give you some free samples. Good lord it isn't anything out of their pocket. Doesn't that just make you furious about the 6 wk course. If you had know he could have taken it when he was not quite so sick. Why do they wait until the last minute to inform you. Hang in there. It sounds like you can do this. Keep us posted.
Wow, that is really unbelievable! I don't blame you one bit for ranting or "rocking the boat!" I cannot believe that these types of things happen. Thank God for Mayo, where everyone has access to a patient's records instantly and know what has and hasn't been done, and everything can be done there. And now they have the new hospital on the campus, so I don't even have to go to a hospital other than Mayo. I am, indeed, very fortunate.
Prayers for your continued courage, my dear.
Post Edited (hep93) : 4/29/2008 12:20:16 AM (GMT-6)