Hi Therese I'm sure you don't even want to hear this but we had almost the same thing happen trying to get my husband on the list. First it was the physiciatrist. Then once we got through her it was the head Dr. I could not believe what he wrote in a report about my husband. Then we had problems with the insurance company. A new case manager tryed to prove himself first day on the job by denying him benifits. In the end the our coordinator ended up going to bat for us. We started the process last Sept. Finally got listed last month. Don't give up. First of all get all of his labs. I found a web site that will calculate his MELD score for you. My husbands hernia is so bad he for the last few days he has had to hold it in with one hand. I also would give him a dose of lactalose ever hour until his amonia went down. Sometimes it would take 4 hrs but it would start coming down. Now that he takes Neomycin for 14 day and off for 14 day. That has made all the difference in the world. He looks like dead man walking but at least he is still walking. He has lost all of his muscle mass from being drained so much. But he's back to work and on the list. So just don't give up. Once your husband is on the list things will settle down for you I hope. They did for me. I think because it was the first positive thing to happen in so long. I just felt some hope. You will too. Hang in there.
OH the web site is www.thedrugmonitor.com