end stage liver disease

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SLC3
New Member


Date Joined May 2008
Total Posts : 5
   Posted 5/11/2008 3:54 PM (GMT -7)   
I am 18 years old and my 55 year old father has been dealing with hepatitis C for as long as i can remember. In 1997 he got a liver transplant that I thought was going to save his life. For about a month after the transplant he was looking and acting better. After that everything went downhill. He has had countless hospital stays for numerous things. Just about a week ago my father was put on Hospice. My mother tries to protect me by not telling me exactly whats going on with my dad, but really i need to know because i don't know how to deal with what's going on. I feel that i've lost my father already, he acts like a zombie and looks like a corpse. He sleeps all day and is awake all night. Just recently i could tell that it was getting close to the end. I am confused about how he is going to die. His legs, arms, and especially his stomach are swollen. His ammonia levels are ridiculously high and he repeats things over and over agian. He can't do simple math and can barely walk anymore. In the past month my dad has been extremely restless. He gets up and down and wants to go for drives almost every 10 minutes. The bad part about this is he can't stay fully awake for more than 5 minutes and is always falling asleep while standing,sitting, or even in the middle of sentences. I don't see how things could get much worse, but each morning he is still alive. I can't stand to see him suffer anymore and i don't know how to act around him. I'd like to talk to people that have gone through this and could tell me about what happens at the very end and how it happens.
 
 

SLC3
New Member


Date Joined May 2008
Total Posts : 5
   Posted 5/12/2008 3:20 PM (GMT -7)   
You don't understand how much what you wrote means to me. When i read it, i actually felt like a weight was lifted from me... Today my dad is having trouble pretty much doing everything. He can't swallow anything, including his medication, so the hospice nurse is ordering patches for that. The nurse says that it will probably only be a week until it's over. The thing that concerns me the most is that my dad can't sit still. He always wants to be sitting up, like on the edge of his bed. But this means that someone must stand next to the bed and hold him up because he can't hold himself up. My mom is up all night with him and it's heartbreaking for me to watch her with him. Most of the time i feel like can't breathe and i cry pretty much constantly. Is this normal? i was prescriped zanex(sp?) by my psychiatrist .5 mg but it does nothing for me, i don't feel any effect. I think my adrenaline is too high for it to effect me. I have two sisters, THANK GOD, who i can barely look at because i hate seeing them so sad. My mom doesn't really cry, that i've seen, but she said that somehow God has given her peace and she knows that at this point living is much harder than dying. Anyway i just wanted to say that i appreciate you writing what you did and i will definately keep in contact with this forum because i don't know what else to do. I know my dad is going to heaven and when he dies he will be in no pain and peaceful but it's still overwhelmingly sad. He knows i love him, but at this point i dont think he knows who i am. I pray that the patches he is getting will calm him down and atleast just let him be able to lay down and sleep. Again thank you so much, i didn't know where else to turn.
god bless you and your family.
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