Hello, I am new to this site.

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teasabug
New Member


Date Joined May 2008
Total Posts : 5
   Posted 5/17/2008 10:28 PM (GMT -7)   
Hello,

I am from Idaho and found out that I had hep c about year and half ago. I was very shocked scared and thought I was going to die. Never knew much about it. I did do the Interferon and Rebotol treatment for about 7 months. My viral load was not really into the millions yet. I had caught the hep c in time, due to other health problems and lots of tests. The Interferon and Rebotol treatment worked and while I was on treatment every joint in my body hurt. The doctor just assumed it was treatment. However, since that dreadful treatment I still get pain in the joints and have a very hard time sleeping. Has anyone experienced this with treatment or after treatment? Is this part of having bad liver, or what? I need lots of help, I hope you all can help me understand. I need friends. I had moved so had to find a new doc. I am going to go to an internest. Medical docs are scared to treat me just for a cold. haha. So I will be checking to see if the hep c has returned. I am crossing my fingers.

Thank you for all of your help and can not wait to get to know you.

JohnCT
Regular Member


Date Joined Mar 2008
Total Posts : 202
   Posted 5/17/2008 11:37 PM (GMT -7)   
Hi teasabug,

Just a quick note to say hi and welcome. I'm sorry to read that you too have Hep C. I have had Hep C for 30 years and don't qualify for treatment until I get a transplant so I can't help you with your query.

We can all use some friends that understand. I'm sure that you will find, as I did, that there are many caring, knowledgeable people on the forum.

I hope that all of your tests are good news.

Be well, John
I have to get up the creek! Now where's that paddle?
Mind-fogged again.


Caregiverx3<3
Regular Member


Date Joined Mar 2008
Total Posts : 197
   Posted 5/18/2008 8:56 PM (GMT -7)   
Hello teasabug,

What a cute name! Welcome to the HealingWell forum. I cannot help you with your trouble, but I sure hope there is someone here who can.My husband has HCV, but has not been treated for it because he now has HCC. Have you looked at medhelp.org? They also have a HepC Community forum. Lots of people there going through treatment and one's who have been there done that.
This is a great forum, too. Lot's of freinds here.

Carol
 


teasabug
New Member


Date Joined May 2008
Total Posts : 5
   Posted 5/18/2008 9:05 PM (GMT -7)   
Thank you so much for your reply John, and Carol. I am hoping to meet alot of friends on this site. I have been to other sites and they do not seem to reply, they seem to have there own little clicks. I guess. You two are my first friends, and thank you.
I am going to a doctor on Wednesday, hopefully he will have some answers. I will look on medhelp.org as well. I do not know to much about hep, just the basics. I should know alot more. All I know treatment sucked but worked for me. I have a success story. I guess I am lucky, now if I can just keep in remission. I am sorry to hear that you have hep c and have a hubby that has hep c. I would not wish this disease on anybody. Do you know where or how you got Hep C?
John, How long have you been on the transplant list?
Carol, How long has it taken for your husband to get HCC? I am guessing HCC is cirrious am I right? My spelling probably sucks. I try to email quite quickly. I have a 9 month old baby that demands attention. hehe.
Well I will go.

Hope to hear from yo soon.
Teresa

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 5/18/2008 9:19 PM (GMT -7)   

Hi, Teasabug/Teresa!  Welcome to the forum!  I'm so glad to hear that the treatment has apparently worked for you.  I pray that you will stay in remission or clear of the virus.  I was diagnosed with chronic active hep C in '93...contracted it in the late 60s from sharing dirty needles/IV drug use.  about 2 1/2 years ago, I developed liver cancer from the HCV.  A year ago, after having chemoembolization and TheraSphere treatment to shrink the tumor (which was huge), I had the right lobe of my liver removed.  Since then, I've developed 2 incisional hernias at the same site.  Will be having the 2nd one repaired on the 29th.

I also suffer from osteoarthritis and ostenecrosis (bone death.)  I have had bilateral hip replacements and the left one has been redone twice.

I tried interferon treatment early on, but couldn't tolerate it.  I'm now considering the combo treatment after I heal from surgery.

I don't believe your joint pain problems have anything to do with your liver.  They may be residual side effects from treatment, or you could have some form of arthritis.  Does the pain wake you up or make it difficult to fall asleep?  You do need to mention this to your doctor and perhaps see a rheumatologist if your symptoms persist.

I know you have your hands full with a 9-month old!

Good luck with your tests and please let us know the outcome!

Hugs,

Connie


Caregiverx3<3
Regular Member


Date Joined Mar 2008
Total Posts : 197
   Posted 5/18/2008 9:41 PM (GMT -7)   
Hi Teresa, How's your baby doing? Boy or girl?
I do not have Hep C. My husband does and I am his caregiver. HCC is primary liver cancer. We do not know how long he has had HepC, but he also has chirrosis. He had to travel a lot with his work and we were not educated enough about HCV. The Dr. just kept telling Terry to quit work. Well, he wasn't about to do that. We just didn't know how serious this was. I was also caring for my Father at the time, 24/7.
Between learning all about Dads stroke and caregiving and learning medical terms and about his drugs, somewhere last May, I read in Terry's medical records about his liver tumor. He was in Kansas at the time and did not come home until August. I got him lined up for all the needed tests for a transplant, but it tuned out to be to late. His cancer had grown too large. Terry has probably had chirrosis for a long time.
I surely hope that your trouble with sleeping is just due to being a new mother.
Blessings to you and your baby,
Carol
 


JohnCT
Regular Member


Date Joined Mar 2008
Total Posts : 202
   Posted 5/18/2008 10:14 PM (GMT -7)   
Hi Teresa,

As you see, there are plenty of supportive friends here. I'm certain that you will find that things are easier to deal with when you can share your and their experiences.

Regarding my time on the transplant list: I only got pre-screened a year ago and while I was set with 2 clinics, my MELD score is only 13 and they don't get serious until it's around 15 or 16.

In the meantime, I had to change insurers and my new insurance company won't work with ANY clinics in CT so now I have to restart the process in NYC or Boston, 2 1/2 to 3 1/2 hours each way. I am appealing the insurance co. policy but don't yet know how that will turn out.

This week I begin the screening process again. Nothing is more fun than a full week of tests at the hospital.

I hope that your test results are all great! And enjoy the baby -- they grow up way too fast.

Be well, John
I have to get up the creek! Now where's that paddle?
Mind-fogged again.

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