Donations and use of Hep C infected livers / clinic stats

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JohnCT
Regular Member


Date Joined Mar 2008
Total Posts : 202
   Posted 5/18/2008 9:54 PM (GMT -7)   
Hi everyone,

I don't know if I read it in the Pittsburgh Tribune-Review articles or elsewhere, but a recent study was done on the use of Hep C infected livers for transplant. It concludes that those of us who can't be treated for Help C until after a transplant can expect as good of an outcome with a good, infected liver as an uninfected liver. Does anyone have any more information on this?

Based on this, people with Hep C are now urged to donate their livers for transplant. If the study is correct, this should add more donated livers to the transplant stream and free up more non-infected livers to the general transplant population by allowing us Hep C'ers to accept the good, infected livers. As more people discover their Hep C infection, and the need for transplants increases, this could be a very good finding.

Also, if you are interested in the outcome statistics for a particular transplant clinic, the anticipated success rates and actual success rates are listed on the UNOS web site (http://unos.org/). As the Pittsburgh articles point out, the statistics are somewhat misleading since there is no breakout of difficulty factors. So some of the clinics that take on the tough cases may show an unrealistically low success rate. But since these numbers are what the insurers use to determine their 'preferred clinics', it offers some insights on why and where they push patients.

My thoughts and prayers are with you with the disease and with you caregivers, who daily face the awful situations our disease causes.

Be well, John
I have to get up the creek! Now where's that paddle?
Mind-fogged again.


hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 5/19/2008 7:16 PM (GMT -7)   

John, I recall reading something about that recently.  However, I don't imagine a liver with cirrhosis, as well as Hep C, would be considered.  IMO, it shouldn't be!   nono

Thanks for the info,

Connie


exhaused
Regular Member


Date Joined Nov 2007
Total Posts : 445
   Posted 5/19/2008 8:51 PM (GMT -7)   

John  That is very interesting.  I will check that out.  Question--Jerry had a Dr. appt today and the Dr. thinks he is going to need another transfusion.  This is his second one!  Is there anyone else on this forum that has had a blood transfusion?  It would explain why his ammonia is high in spite of the large doses of lactalose.  Also the extreme weakness. 

John I hope you are getting some rest.

I miss my walks on the beach.

 

Joann

 

 

 


Pink Grandma
Veteran Member


Date Joined Nov 2006
Total Posts : 2445
   Posted 5/19/2008 9:05 PM (GMT -7)   
JoAnn my husband had at least 3-4. Each time it was a couple of pints that they gave him. He always felt 100% better after the transfusion. Full of vim and vigor.

Take care.......
Pink Grandma
Forum moderator-Hepatitis

When the going gets tough....the tough get going! Don't always know where I going but I get there anyways.


exhaused
Regular Member


Date Joined Nov 2007
Total Posts : 445
   Posted 5/19/2008 9:10 PM (GMT -7)   

Pink Grandma  At least I know someone else had transfusions.  Jerry did feel better the last time they gave him one.  It was two pints.  I hope he feels better this time.  He needs some energy.  His appatite is good but right now he is falling a sleep in between bites.  Can you believe that.  He pushes himself really hard but I can not immagine being that tired.  I'm anxious to get his blood work to see what his MELD Score is.  We go to Vanderbilt on the 28th.  Wish us luck.

 

JoAnn


Pink Grandma
Veteran Member


Date Joined Nov 2006
Total Posts : 2445
   Posted 5/19/2008 9:16 PM (GMT -7)   
You know you and Jerry are in a lot of peoples thoughts and prayers JoAnn.
Get some rest JoAnn. Jerry will probably have so much energy after the transfusion he's going to wear you out.

Have a good night...........
Pink Grandma
Forum moderator-Hepatitis

When the going gets tough....the tough get going! Don't always know where I going but I get there anyways.

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