JoAnn, did Jerry hit his head when he fell? Any other head trauma that you can think of? Otherwise, I just don't know. Be sure to mention it at the Wed. appt.
Pink Grandma The problem is I can't see anything I can just feel them. But I don't think they are blisters. I was a little concerned that it might be shingles! But I googled it and I don't think that is what it is. I just don't know. I just hate it when I can't figure things out myself. His feet have also starting swelling. I knew that was coming. He has been vomit free since last Sunday and he just started vomiting again. Absolutely no reason. Isn't that crazy. Thats was is so horrible about this disease. I hate it. I try so hard to be on top of things. There is never a logical reason why the vomiting comes and goes. Its so crazy! I'm sure you know what I mean. But I never hear anyone else complain about the vomiting. Did your husband vomit a lot. I need to quit complainting and just accept this horrible disease. Also I need to get some sleep. Thanks again for all your help. The Forum moterator has to keep you really busy. When do you have time for yourself? Thanks again
Hi Carol You could be right we never even thought of that. He fell in one of our flower beds we had dug everything out of the bed and was getting ready to plant new schrubs. I think we still need to tell Vandy when we go on Wed. I think I get scared any little thing will ruin his chances for a transplant. I know its crazy. Also he isn't washing his hair as much because its so dry anyway I'm thinking it might be clogged pores or something. I think I'm just searching for something that is not liver related. Who know what it could be. I need to get some sleep. I hope your visit from your daughter is going good. How is Terry these days. I hope he's good and you guys have had some quality time. Keep in touch and have a good Monday.
“Life is not the way it's supposed to be. It's the way it is. The way you cope with it is what makes the difference."
Hi Shelly so glad to have you back. Well, Tuesday we saw two Dr. Gi First then he made an appt immediatley and sent us to a Dermatologist. By the time we saw the GI I had it figured out but was hoping I was wrong. He has Shingles. Yep, full blown. By the time we got to the Dermatologist the blisters were dripping down the back of his neck. By the time we got home that late afternoon it had spread to his cheek, ear, chin, under the chin and chest. Both Dr. were puzzled by the pattern. He did not want a Dermatologist to give him any pain meds for fear she wasn't familiar with liver disease and it could harm his liver more. That was Tues. We had an appt on Wed at Vanderbilt. I'm here to tell you by that time he had no problems taking pain meds. He has never complained only once did he say his head felt like it was falling off. Today he had to be drained because he was in a lot of pain from fluid. He made it 4 weeks this time. But they only got 3.7 liters which isn't much for him. Seems his bowels were in the way so its likely he has at least 3 more liters in there. He has perked up some today even have being drained. The Dr. called from Vanderbilt to check on him. They don't usually react much because they see really sick people but they really felt bad for him. So that is the update on Jerry. I'm sure you read my post about him falling. On the positive side we spent two weeks at our house at the beach. That was wonderful. I pray that you pain will weaken and your memories of your brother will make your heart feel better.
Hi Shelly Yes the Dr. has him on Valtrex 1GM three times daily for 7 days. They told us at Vandy it would be a slow start but its a very good drug. Also 100 g clobetasol propionate Foam .5%. What ever that means. Cost of $360.00 but I think it caused it to scab sooner. Still some oozing but he is so out of it today I don't think he would know if it itched or not. I have really poured the lactalose down him thinking he could have an ammonia problem but now I think its just a combo of everything his poor body has to deal with. I almost took him to the hospital just because I am having a hard time trying not to panic. He can barely talk or walk. No fever, good appatite. No brain fog I think just weak. So we are still here just waiting it out. I just made him a smoothie with Soy Protein. I just can't get him to stay awake long enough to drink it. He lives on fresh fruit that has been frozen. I think its just refreshing to him. No new shingles since Wed. I see that as a good sign. As crazy as I'm feeling I think I need some of his lactalose! I think if we can get through the weekend he will be home free. That is until something else starts up. I'm concerned about his weight because he's living on fresh fruit but one battle at a time. Thanks so much for the info in the middle of your grief.
John I'm not offended in the least. I enjoy your posts. Actually I look forward to them. I still think you should write. No improvement with Jerry. I just got up. He's having some trouble with his stomach also his hernia keeps popping out. It took us a couple of hours to get it in last night. He is so kind he gets up when he is restless to let me sleep. Thanks again for all your support.