Helen I am so sorry to hear about your husband. And to think he got a new chance on life. I don't understand though. Don't they test the new organ before the transplant or didn't they have enough time for that. My prayers are with you. Just hang in there. New durgs are being developed every day.
We just got back from a road trip to see some of his family and see the oncologist. Got the official word that yes he does have cancer. The April ct scan didn't show anything on the liver and the May ct scan showed numerous nodules on the liver, which tells me that this could be fast moving. Carol did Terry have a transplant? Jerry is now taking oxycodene for the pain when needed. We should be getting the Nexavar maybe by the end of this next week or the next. The doc said he really wasn't a candidate for any Chemo, unless we just insisted. Jerry's been having some good days just lately and hope they continue for a while. I'm afraid when he goes down he might not get back up, so I'm really just praying for the best.
Take care all
Post Edited (Caregiverx3<1) : 6/2/2008 9:14:00 PM (GMT-6)
Helen, I'm so sorry to hear that Terry has cancer in his new liver. Was it infected with hep C or did Terry have untreated hep C? I was diagnosed with liver cancer from hep C, that had metastasized to the inferior vena cava, rendering the cancer inoperable at the time of diagnosis in '05. However, I received chemoembolization and TheraSphere, which shrunk the metatstatic tissue back into the main tumor. A year ago I had the right lobe of my liver removed and have remained cancer free since then. Nexavar was never mentioned to me, but perhaps it wasn't available 2 years ago. Regular systemic chemo, in which the chemo goes throughout the body, does not work on liver cancer. However, if Nexavar doesn't work or can't be used for some reason, perhaps your husband could try chemoembolization and/or TheraSphere (only available at a few hospitals/treatment facilities.)
My prayers are with you and Terry.
We are still having some OK days, I think the road trip wore Jerry out, but he's not down. Jerry's new liver was a healthy liver when he got it, I saw the pathology report on the old and new livers. I believe the cancer had already spread before the transplant. The docs didn't know he had liver cancer before the transplant. Any way the cancer is back. We should get the Nexavar sometime by the end of this week or next. We wasn't so lucky on the copay, ours was 1350.00, but the drug company is paying most of that and we are going to have to pay 67.50 a month, so we can stand that. Nexavar became available in Nov 2007 for liver cancer, before that it was used for kidney cancer. Take care everyone, glad you're doing good Connie.
Helen, I'm glad that Jerry is doing okay. Best of luck with the Nexavar and thanks for the info! I had my cancer treatment in late '06 and early '07, so it wouldn't have been available then.
I believe it had, from the first ct scan after the transplant they have mentioned an elargement in the adrenal glands. Since they didn't know about the cancer when they opened him up, they had a suprise when they did, and got the transplant done and got out as soon as they could. So yes I think it had spread before hand and his immune system has finally given completely out the cancer is back on the move again. He's losing weight and has a lot of pain at times, but still has a good attitude and doing good right now.
Thanks for the prayers everyone.
Carol, wow, I'm just seeing your post! That is wonderful news! Hopefully, the Nexavar will wipe out the cancer cells in his portal vein, as well.