New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

ice_queen
New Member


Date Joined Jun 2008
Total Posts : 3
   Posted 6/16/2008 5:02 PM (GMT -7)   
 hello everyone
I am 53 and I live in small town Ontario,with my husband my 3 kids and my 3 small dogs.And was told I have hep c two weeks ago. Today is the first day I have acknowledge, I have this darn virus! I have done the crying thing for two weeks now I am ready to find out about hep c. And try and beat this thing. So here I sit waiting to hear from the specialist.
                       Ice

pix
Regular Member


Date Joined Mar 2008
Total Posts : 134
   Posted 6/16/2008 7:34 PM (GMT -7)   

Let me be the first to welcome you to the wonderful world of hepatitis!!  This is a great forum, and you will get lots of support.  One of the neatest things about "healing well", I think, is that people will share everything, and be straightforward and apparently honest.  I have autoimmune hepatitis, which is non-infectious, but my liver is still inflamed 'n stuff.  I also have Crohn's disease, so I get to post on two (!!!) message boards.

the initial shock of the diagnosis is awful, for sure.  Ask any questions, and you will get thoughtful, helpful answers. yeah

Pix


Pink Grandma
Veteran Member


Date Joined Nov 2006
Total Posts : 2445
   Posted 6/16/2008 8:26 PM (GMT -7)   
Hello Ice and welcome to HealingWell. Pix is right. This is a great forum with a lot of wonderful compassionate people just like Pix.

Go ahead a read up on some of our older posts. There is a wealth of information here. And if you have any questions or just want to vent we will be here to help and/or listen.

Take care......thoughts and prayers...........
Pink Grandma
Forum moderator-Hepatitis

When the going gets tough....the tough get going! Don't always know where I going but I get there anyways.


hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 6/16/2008 9:21 PM (GMT -7)   

IceQueen, welcome to the forum!  I, too, have hep C, having contracted it in the late 60s.  I was diagnosed in '93.  I tried the treatment available at that time, but my white count plummeted, so I was taken off of it.  I developed liver cancer from the hep C about 2 1/2 years ago, and had the right lobe of my liver removed in May of '07.  I have remained cancer free (praise God) ever since.  I'm now recovering from a 2nd hernia repair, but will soon have to make a decision about trying hep C treatment (this time "the combo") again.

I hope you will get a hepatology appt. soon to discuss your options.  You will find a lot of support here, just as I have!  When I was first diagnosed, I went through the 5 stages of grief:  Denial, anger, depression, bargaining with God, and acceptance.  It sounds as though you are in the depression stage.

The best thing you can do for the depression and sadness is to become an expert on Hep C, as well as your own advocate.  Remember, knowledge is power!  There is a lot of info here in the older posts and in certain threads.  Also, I recommend the web sites for the Centers for Disease Control and the American Liver Foundation.  Please feel free to share with us.  Believe me, it helps!

Hugs,

Connie



JohnCT
Regular Member


Date Joined Mar 2008
Total Posts : 202
   Posted 6/16/2008 10:43 PM (GMT -7)   
Hi Ice,

Just jumped in to say hi and to welcome you to the forum. I hope that you find it as helpful and supportive as I have. Between the caregivers and patients, there is a phenomenal amount of information and caring. I echo what Connie said -- become an expert. The doctors often don't pass along enough information unless we know the right questions to ask. It's not that they want to hold back, but rather that they deal with so much every day and sometimes assume we know things that we don't.

I've had Hep C since '77 and diagnosed in '78. So after 30 years, I am now dealing with the damage that the disease has done. I hope that all of your upcoming news is relatively good and that your management of the disease is easy and always successful.

Hang in there - try to stay positive - and when you can't, feel free to vent here - we all do sometimes. It really does help to share.

Be well, John
I have to get up the creek! Now where's that paddle?
Mind-fogged again.


Caregiverx3<3
Regular Member


Date Joined Mar 2008
Total Posts : 197
   Posted 6/16/2008 11:57 PM (GMT -7)   
Hi Ice_Queen,
Nice to meet you.
Just a short note for now. If I had had this computor and found this forum and all this info a couple of years ago, maybe my husband wouldn't be in the way he is in now. We didn't know much about HVC either and the Drs just seemed to think we did. Don't delay in educating yourself and don't depend on the medical establishment to tell you what to do when, where, & how. Stay on top of it and TCB.

Carol
 


frustrated_n_wv
Regular Member


Date Joined Aug 2006
Total Posts : 469
   Posted 6/17/2008 5:26 AM (GMT -7)   
Hi Ice_Queen

Again welcome to the forum. The only thing I can add to everyone else's input is to remember to ask questions to your doctor. It has been helpful to me to make a list of all the questions that I have and take it to the appointment with me so I don't forget. Things can become so overwhelming during appointments that I could forget my own name let alone what I need to know. I also write down the answers to soecific answers or information that the doctor gives out as I have a tendency to again become so overwhelmed that I don't know what they said when I leave.

It is devasting to hear this kind of news. Recently I received the news that my AIH has progressed into cirrhosis. Keep in mind that you have to be in charge of your medical care and that this news does not have to end in the worst scenerio.

Keep us posted.

Lucy

ice_queen
New Member


Date Joined Jun 2008
Total Posts : 3
   Posted 6/17/2008 5:39 AM (GMT -7)   
 Thank you for the welcome.
 I was told last night that the virus is in my blood and not in my liver yet?
 Can You tell me if this is normal? I had a nap in the after noon and when I woke up, I was bloated and had these stabbing pains on my right side just about where my liver is. then for a couple of hours my arms felt week and it was hard to hold on to things. And I have noticed that my vision is off a little. I got my gift threw tainted blood in the late eighties or early nighties right around the time the aids outbreake started.Can u please tell me if the symtomes I described are normale for hep c. And should I worry about them.
                          ICE
 

mom's "will" to live
Regular Member


Date Joined Oct 2007
Total Posts : 111
   Posted 6/17/2008 7:59 AM (GMT -7)   
Welcome Ice,
I can only say from a caregivers views that you will always worry even about the little things but, it will do you no good as it can make you sicker!
As everyone else has mentioned do the research and ask questions as it will help ease your mind on certain issues.
My son Wil is 22 yrs. old  at 16months of age he was diagnoised with AML Leukemia had 2 bloodtransfusions in 87-88 as you said they didn't test for HEP at that time ony HIV. He went into remmision in 1993 and we were told we didn't need to return for 10 yrs. at 16yr. of age  he was 12years in remission AML but, we were told he had contracted HEP B and was chronic for atleast 12yrs.(2002). Now he has cirrhosis of the liver still in compinsated stage which means it is still functioning they have found 2 lesions as of April 08, Dr's.  say he will need liver transplant possibly by the end of the year as he is active and this disease is continuosly damaging his liver .Dr's. also have a way of sugar coating prognosis an such, so please tell them for your peace of mind tell them to be very forward and use lamen terms so you understand whether good or bad. Get copies of all your bloodwork and reports from your visits as this will help you get to know how to read them and what to look for. Alot of people here on the forum can give you many suggestions and be very helpful for finding the info! You have definatley come to a wonderful place here on healingwell as I have also been blessed to find and get info for helping my son. And, everyone is very compassionate so you can get angry, vent, even cry on your keyboard if you want someone is listening and always here to help! Thanks All!
 
 It sounds to me that you are having early signs fatigue, weekness, pain even flu like symptoms, nausea, weight loss ect. I know my Wil has had same symptoms except for  the right side pain he insists that his is mainly lower backaches sometimes his legs. But, I am mom and I can read threw him.
Again, don't worry get knowledge! Good luck!!!
Thoughts and prayers are with you All.
Huggs and smooches!
Toni

ice_queen
New Member


Date Joined Jun 2008
Total Posts : 3
   Posted 6/17/2008 8:59 AM (GMT -7)   
Thank you for your words,And god bless you.
I am blessed to have found this group,Thank you so much.
                  deb

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 6/17/2008 4:31 PM (GMT -7)   

Deb, I think that is good news if your liver hasn't been affected yet.  Did the doctor mention treatment and when they might begin that?

The symptoms you describe are really not common in hep C patients (I can't speak for the other hepatiitis types.)  There is really no pain.  Overwhelming fatigue is common, as well as increased liver enzymes.  The nausea, etc., sound like someone who has just contracted the disease.  However, since you contracted the hep C in the 80s, that is not the case with you.  If your liver hasn't yet been affected, then you should not be having symptoms associated with end-stage liver disease.

I suggest you ask your doctor about treatment.  He will need to do blood work to get your genotype, if this has not already been done.  The treatment you receive will be based on that...at least that's what was told to me.

Hugs,

Connie


JohnCT
Regular Member


Date Joined Mar 2008
Total Posts : 202
   Posted 6/17/2008 9:34 PM (GMT -7)   
Hi deb,

IMHO, you should see your primary physician regarding your arm weakness and blurred vision. They do not seem to be a regular part of the Hep symptoms - but do sound like something to have checked out.

I would guess that you are probably safely past any immediate complications but unless you were very dehydrated or suffering from heat stroke, you should have the symptoms checked right away. Please don't put it off.

Wishing you well, John
I have to get up the creek! Now where's that paddle?
Mind-fogged again.

New Topic Post Reply Printable Version
Forum Information
Currently it is Thursday, December 08, 2016 7:12 PM (GMT -7)
There are a total of 2,735,101 posts in 301,275 threads.
View Active Threads


Who's Online
This forum has 151370 registered members. Please welcome our newest member, calvin1242.
361 Guest(s), 14 Registered Member(s) are currently online.  Details
ResilienceR, Tnmproject, 81GyGuy, Bloom93, geop, suzhtz, JNF, Girlie, LG13, NiceCupOfTea, DennisinNY, platinumpixie, straydog, julymorning


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer