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Pink Grandma
Veteran Member


Date Joined Nov 2006
Total Posts : 2445
   Posted 6/19/2008 10:10 PM (GMT -7)   
We have a bunch of members that have not posted in quite some time. nono If you are one of them please post and let us know how things are going, or just to let us know that you are okay. I know that times get hectic and busy not to mention full of stress. sad But please remember that you have friends here that care.
:-)


In the mean time please take care of your self .......lots of thoughts and prayers.......
Pink Grandma
Forum moderator-Hepatitis

When the going gets tough....the tough get going! Don't always know where I going but I get there anyways.


mom's "will" to live
Regular Member


Date Joined Oct 2007
Total Posts : 111
   Posted 6/20/2008 7:44 AM (GMT -7)   
Hello Pink Grandma,
 I have been trying to catch up lately as I have been really slow these days at work. No drama between the love birds this week Thank God! I read you have talked with Shelly, Please let her know she is in my thoughts and prayers and Shelly if your reading this we miss you something terrible. I do know that you need time for yourself as I know it has been a difficult year for you so far. Bigg Huggs and Smooches!
 Wil has an apt. set for Thurs. and Fri. next week so please everyone whisper an extra prayer for him as I'm really concerened the prognosis isn't going to be good. I hate when I  have these intuitions but I'm scared that these 2 lesions they found last visit have grown and from what I understand could become cancerous. Anyway, Just wanted to say Hello to all on the forum and newbies you have come to a special place here as there is alot of caring people and a wealth of knowledge. Take care All! Thoughts and prayers are with you!
Huggs and Smooches!
Toni

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 6/20/2008 1:39 PM (GMT -7)   

Toni, are the lesions located in one lobe of Will's liver?  If so, you know I survived a lobectomy and am still here--and he has youth on his side!  My prayers are with you both for a good prognosis.

Hugs,

Connie


HopefulInNC
New Member


Date Joined Jun 2008
Total Posts : 11
   Posted 6/20/2008 6:04 PM (GMT -7)   
Hi Toni,
 
My thoughts and prayers are with Wil.  Please keep us posted on how he/you and doing.
 
Hope~

Caregiverx3<3
Regular Member


Date Joined Mar 2008
Total Posts : 197
   Posted 6/20/2008 11:24 PM (GMT -7)   

  :-) "TTT"

Just trying to keep it noticed.  Sure would like to hear from OakieLady and Butterfky.

You too Shelly, when you can!!!

Carol  

 


 


pasey_1
Regular Member


Date Joined Aug 2007
Total Posts : 38
   Posted 6/23/2008 4:29 PM (GMT -7)   

Hi pinkgrandma,

I'm sorry I haven't posted in a while. I am doing OK. I have been having quite a bit of upper right quadrant pain, but as usual would rather not deal with it. My friend was at his wits end and called my son in New Mexico who threatened to call the police if I didn't go to the ER. Of coarse I knew that would be a waste of time but I finally went. I was right. Because I have no insurance they didn't do anything but charge me more money than I have. Although they did insist in doing a pregnancy test. Now keep in mind I am 44 years old, was on my period at the time and have not gotten pregnant in22 years because of a tubal I had done when I got Grqaves Disease. All of which I told them. But they insisted anyway so I told them that if it came back positive , they needed to call the Catholic church because my name is Mary and it would have to be the second immaculate conception. (Hey, I thought uit was funny at the time, but I don't think the doctor did.) Anyway all they ended up doing was putting me a ulcer medicine and telling me I needed to see a specialist and have another biopsy done.

OK enough of the petty party. I hope you are well, even when I don't write I still read the forum and keep everyone in my prayers.

pasey


hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 6/23/2008 4:37 PM (GMT -7)   

Pasey, thanks for posting again to update us.  Do you have a teaching hospital near you or something similar (county hospital?) where you could be seen and get necessary tests w/o insurance?  When I was without insurance, I went to Shands Jacksonville (FL) for years.  While they could have done more, and moved a little quicker, they did find my liver tumor by sonogram, and I had blood work quite often.  Even had an MRI several times (different issues) and two hip replacements and a redo on one--all w/o insurance.

You might also look into charity programs at nearby hospitals.  This is something they don't advertise, but they are often available.  Mayo has one, and they pick up the difference between what Medicare pays and what is owed after that.  I know they also fully fund some patients with severe or life-threatening diseases/conditions.  It can't hurt to do a little investigation.  You could start out by looking on your local hospitals' web sites.  That is actually where I found out about Mayo's charity program.

Hugs,

Connie


pasey_1
Regular Member


Date Joined Aug 2007
Total Posts : 38
   Posted 6/23/2008 5:52 PM (GMT -7)   
Connie,
Thank you so much for the info. I guess today has been one of my down days. I hate coming across as having such a negative attitude. Actually I have been trying to look into things to help me. I went to the local welfare office and was turned down again. I was pretty sure I would be but I had to give it one more go. I found out that if I need to go to the ER that I will go to OU med center. I am told that they will not turn me away nor treat me like some kind of med seeker. They will really try to find out what is going on. One good thing came out of last weekend. My son has decided to move back here from New Mexico so that I will have someone here to call when needed. I hate that he is having to do this especially after losing his dad when he was only 13 and now I'm getting sicker and I can't tell him I will get better. I know I will have good days but this is not something that is going to go away. He just turned 20 yesterday and everyday I thank God for him I just wish I could make life a little easier for him. I still work part time at a local college and my boss is wonderful. So I have many things to be thankful for. Those are the things I need to concentrate on but some days it is harder than others. I will check in againtomorrow and again Thank you so much. Sometimes I forget that I am not alone.
Hugs and prayers
Pasey

Pink Grandma
Veteran Member


Date Joined Nov 2006
Total Posts : 2445
   Posted 6/23/2008 6:06 PM (GMT -7)   
Hello Pasey, So happy to hear from you. Connie gave you some good advice about the charity programs. If you give me the names of the hospitals in your area and the city I will look it up for you. Sometimes it helps to have another set of eyes. And I can be a pit bull terrier when it comes to getting information.

Also glad that your son is moving back. Pasey why can't you talk to your son and explain about your condition? If I withheld information like that from
my kids they would skin me alive. I know that he's only 20 and already lost one parent but if you were to die or get real sick and be hospitalized what do you think that would do to him? I don't know I just know that you keeping it to yourself is not good for you.

Lot's of thoughts and prayers....Pasey.......
Pink Grandma
Forum moderator-Hepatitis

When the going gets tough....the tough get going! Don't always know where I going but I get there anyways.


Butterflythree
Veteran Member


Date Joined Oct 2007
Total Posts : 954
   Posted 6/23/2008 6:16 PM (GMT -7)   
Hi Everyone, I am sorry that I haven't been back in awhile. Everything seems like too much these days. Even just logging onto the computer. I just wanted you all to know that I am doing fine. My husband's condition is stable at the time. That should be comforting to me, but he doesn't seem stable to me. I just miss him so much. We are still waiting to hear on Social Security's decision. I am hoping that we hear something very soon. His hearing was in April.

You all are always in my thoughts and prayers. I will try to come back more often.
Butterflythree
 
There is always hope!


Pink Grandma
Veteran Member


Date Joined Nov 2006
Total Posts : 2445
   Posted 6/23/2008 6:21 PM (GMT -7)   
Hi Butterfly,
So glad you were able to post. We certainly have missed you.
Thanks you for the update. How are you holding up? And I certainly know how precious time becomes when you are dealing with this disease. Doesn't seem to be enough hours in the day huh? We just worry about you.

Hang in there...........lots of Thoughts and Prayers.........
Pink Grandma
Forum moderator-Hepatitis

When the going gets tough....the tough get going! Don't always know where I going but I get there anyways.


Caregiverx3<3
Regular Member


Date Joined Mar 2008
Total Posts : 197
   Posted 6/23/2008 6:33 PM (GMT -7)   
Hi Butterfly,
Good to hear from you! I'm so glad you are doing OK and hope that your husbands SSD comes through in April.

Take care Butterfly,
Carol
 


Butterflythree
Veteran Member


Date Joined Oct 2007
Total Posts : 954
   Posted 6/23/2008 6:35 PM (GMT -7)   
Hi Pink Grandma, I think I am holding up pretty good. I feel very stressed at times. I am looking forward to a new grandson in August. My other grandson turned one June 4. He is such a sweetie. He always makes things seem not so bad. I expect when I have the new one he will make me feel the same way. I thank God for them and my children.

Thanks for thinking of me.
Butterflythree
 
There is always hope!


hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 6/23/2008 8:16 PM (GMT -7)   

Hi, Butterfly!  Good to hear from you!  If you had your hearing in April, then you should hear something about 90 days from that date; i.e., "soon."  I surely wish you luck with that.  Congrats on the coming birth of your new grandbaby.

It's good that your son will be moving back to be near you, Pasey.  I know you will only call on him when you have to.  You do need to be open and honest with him, though.

Hugs,

Connie


lavendar
Regular Member


Date Joined Nov 2007
Total Posts : 450
   Posted 6/24/2008 1:35 AM (GMT -7)   
Pasey:

When I found out I was ill . My son was the first to know. He was very upset at the time. But think it was the right thing for me to do. He offered to be a doner, my husband, and one of my brothers did also. I could not accept. My son has two children that need their dad. My husband is my only caregiver. My brother has two sons and a new grandbaby. I couldn't imagine ruining their lives. I've been stable so far thank god. Only get the occational brain fog.

Now our only problem is my husband has been called for jury duty. He asked the clinic for an excuse since he is my only caregiver. He was told they could not give him one. So he wants for me to ask my Dr. on Wednesday when I go in for my reg check up, I say why bother. They don't even bother to read the excuses. Before I was diagnosed , in fact a month before. I had to go to jury duty. My dr. wrote an excuse saying I had arthritis and couldn't sit or stand for long periods of time. That I had hypertention and that I was prone to have anxiety attacks.
Well it turned out my last day I had to go. I was running late could'nt find a parking space'
had to park at municipal parking which is about a quarter mile away. My back , knees, and feet were killing me and just as I was in front of the court house I stepped on a lifted brick on the sidewalk and twisted my foot in a place I had broken it before.

lavendar
Regular Member


Date Joined Nov 2007
Total Posts : 450
   Posted 6/24/2008 2:02 AM (GMT -7)   
I hobbled in and was reported as staggering. Everyone I passed kept saying I was late . I knew that. The judge informed me that someone had reported I had staggered in . I told him I had twisted my foot where it was broken before. He looked at it and said why isn't it in a cast. I tried to explain But he just kept cutting me off. I told him if he had read my excuse he would have known what my problems were. Including Meds. I take. He just said I never saw it. Well I just happened to have a copy in my purse , so I took it out and handed it to him. He looked at It, threw it back to me and said I can't read that Dr.s writing. So I said well I can tell you what it says. He just said this was an important case and we had to postpone it because you are intoxicated. I said who in their right mind would be drinking at 7:00am after taking a half dozen Meds. He just order them to put me in a holding cell. Till someone could pick me up. And I couldn't get my car keys back. and if someone didn't pick me up they would have to send me to jail. My husband was out of town. So was my son. And I could'nt remember his girlfriends number so she could get in touch with one of them somehow. So I sat in the cell then I finally remembered her number and called her. She was able to reach my son . There I sat in a cage for about 4 hours. They wouldn't let me have my purse, I needed my medications again and they told me ,they would have to talk to the judge. He said no I couldn't have any more drugs. I just sat , there not saying anything that may make matters worse. When my son arrived my feet were so swollen he had to loosten the straps and help me squeez into them. Then we had to walk all the way back to the parking lot buy then I thought I was going to explode. My son was so loving and helpful. Especially when I couldn't remember where I had parked the car. So he ran ahead and found it for me.
So much for jury duty. Hope they read my husbands excuse about being my only caregiver. june

So thats my jury duty story. They couldn't charge me with anything , only humilated me

frustrated_n_wv
Regular Member


Date Joined Aug 2006
Total Posts : 469
   Posted 6/24/2008 2:12 AM (GMT -7)   
Pasey and Butterfly

Good to hear from you both. I know life can be chaotic and hectic but please remember that we all care.

Lucy

shadowsghost
Regular Member


Date Joined Apr 2008
Total Posts : 489
   Posted 6/24/2008 6:43 AM (GMT -7)   

June, I knew a woman who got out of jury duty by announcing that if they were arrested they were probably guilty so save the taxpayers money and just send him to jail cause she was going to find him guilty. I have never gotten called and I used to wonder if it was cause I wasnt a natural born american but I have been told that isnt true, so who knows. When they ask if the case will be a hardship you can speak up then and hope for the best.

Sue devil


When I started counting my blessings my whole world turned around.


Caregiverx3<3
Regular Member


Date Joined Mar 2008
Total Posts : 197
   Posted 6/24/2008 7:39 AM (GMT -7)   
June, that was a horrible situation.  Some people can be so cruel.
I was called right before Terry was due for his aortic velve replacement. I called and told them about it and that I was his only caregiver and they said, "no problem." Hope they don't call me again anytime soon. I don't know what I would do.

Carol


 


pasey_1
Regular Member


Date Joined Aug 2007
Total Posts : 38
   Posted 6/24/2008 2:29 PM (GMT -7)   
Pink Grandma,
Please understand that my sons know I have Hep C. I just try not to let them know when I am not feeling well, because I don't want to worry them. They have their whol;e lives ahead of them and know there will come a day when I will have to rely on them more and I just want to put that off as long as possible. I just received and email from my family that my father is having a procidure done on July 9. They are doing a heart cath. on him. his doctor doesn't want to. He told Dad there was nothing left to do ( dad has had 8 bypasses, a pace maker and defibulator implanted, he has 1 kidney left and I can remember how many stints) but he says he is not going to go without trying. So my son is going to go with me because he doesn't want me going alone. I lost my mother at a very young age also my only brother. I am so thankful Nathan is going with because my sisters told me come prepared for the worst.
Anyway, I live in OKC. Oklahoma Medical Center is only 10 minutes away. Can you tell me who I ( or what department ) I could contact to find out if they have any programs I might qualify for. I make less than $700 a month so income should not be a problem. Thank so ALL so much for your caring and prayers and ideas and well.......just everything. It seems like when I am at my lowest and ready to just throw in the towel I seem to always come back and read some of the posts and it is amazing how you all seem to lift me back up from the depths I fall into. GOD BLESS YOU ALL!!!!!!!!!!!!!!!!!!!!!! You will never know how much hope you all give me! Words just can't explain it!
Love and prayers,
Pasey

pasey_1
Regular Member


Date Joined Aug 2007
Total Posts : 38
   Posted 6/24/2008 2:45 PM (GMT -7)   
Connie, June and all the other wonderful people on this site,
Thank you all. You do more than you can ever know!
Pasey

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 6/24/2008 3:06 PM (GMT -7)   

Pasey, at Mayo it's the Financial Services office.  A phone call to Information at the hospital should put you in touch with the right dept.  Be prepared to have copies of bank statements and income available, as well paperwork on any assets.  They will also want a photo ID (such as a driver's license or State I.D.), SS card, etc.  There will be a form to fill out and using that and the financial evidence you provide, they will decide whether or not you qualify for help from them.  I only get a little under $800 a month and they accepted me.

Hugs,

Connie


pasey_1
Regular Member


Date Joined Aug 2007
Total Posts : 38
   Posted 6/24/2008 5:00 PM (GMT -7)   
Connie,
Thank you so much I will try to call in the morning. It's funny how you say to have bank statements and such ready, I haven't had a bank account or assests since 2002. So maybe it will be fairly easy. And the OU Med center is a teaching hospital affiliated with Oklahoma University. Keep your fingers crossed. I have decided that it is time to become proactive about my disease. No matter how hard I try to act like it is not there it just doesn't go away. Imagine that LOL! Sorry, sometimes I have a very warped sense of humor. Anyway, I have a wonderful boss who I have told what is going on and she is very understanding. I have too amny things to live for, like my third granddaughter who is due Sept. 24th. So I am try to pull myself up out of this depression and get on the stick. My oldest son is going to pay for me to go see my family doctor so I can get my thyroid meds refilled and I am going to talk to him about going back on anti-depressants and anti -anxiety medication. I was on them for years but thought I was OK without them. I think maybe I was a little hasty. Anyway, thank you for being there and giveing me great ideas. Pink Grandma and June and Butterfly 3 and everyone else. Thankyou. You have no idea what you do for me.
Pasey

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 6/24/2008 8:52 PM (GMT -7)   

Pasey, I just posted to you under the thread "Pasey."

It does sound like it might be a good idea for you to go back on your antidepressants, and you certainly need your thyroid medicine.  If you are hypothyroid, you can get depression if you're not taking your Thyroxin (I assume that's what you're on.)

Glad to hear you are ready to be more proactive about your care!  I kind of pretended like I didn't have hep C, too--rarely thought about it--until the cancer diagnosis threw it in my face again!  LOL!  Sometimes bad news can be good news in disguise, as it got me to eat better, drink more water, etc.

Hugs,

Connie


pasey_1
Regular Member


Date Joined Aug 2007
Total Posts : 38
   Posted 6/25/2008 3:48 PM (GMT -7)   
Connie,
I know exactly what you mean. I am also becoming much more careful about my diet and I have cut coffee completely out and drink mainly water or juice, etc. From everything I read here it is finally sinking in that even the little things help. Also people like you and all of the other wonderful people here help more than I can say.
Love and prayers,
Pasey
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