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Bailiff
New Member


Date Joined Jun 2008
Total Posts : 1
   Posted 6/20/2008 8:23 AM (GMT -7)   
This is my 4th week on Lactulose -  Anybody out there got any tips on getting this crap down.  It is now getting to the point were I really don't want to take it - But I HAVE TO!   Thanks
Bailiff in Illinois

frustrated_n_wv
Regular Member


Date Joined Aug 2006
Total Posts : 469
   Posted 6/20/2008 12:44 PM (GMT -7)   
Hi Baliff and Welcome to Healingwell.

There are several posts on here that deal with people having trouble with the taste etc of lactolose. I personally have not had that experience yet, but hopefully someone with that experience will come along soon to help you with that question. Everyone here is very helpful and willing to share their experiences.

Lucy

HopefulInNC
New Member


Date Joined Jun 2008
Total Posts : 11
   Posted 6/20/2008 5:57 PM (GMT -7)   
Hi Baliff, and welcome to HealingWell.  My husband usually chases his daily dose with something to drink, whether it's coffee, water or soda.  Doesn't help alot, but at least it will get the taste out of your mouth.
 
Hope~

Pink Grandma
Veteran Member


Date Joined Nov 2006
Total Posts : 2445
   Posted 6/20/2008 7:59 PM (GMT -7)   
Hello Baliff and welcome to HealingWell,

My husband had to take it for about 2 years. We never did find any way to take it that he actually liked. We tried mixing it with juice,soda, and water. Tried chasing it with a lot of different drinks. He ended up just downing it like a shot and following it by a little water . He hated it also but knew that it was a necessary evil.

Good luck.....thoughts and prayers.......
Pink Grandma
Forum moderator-Hepatitis

When the going gets tough....the tough get going! Don't always know where I going but I get there anyways.


shadowsghost
Regular Member


Date Joined Apr 2008
Total Posts : 489
   Posted 6/20/2008 9:48 PM (GMT -7)   
Hi Baliff, ewww lactulose my husband says there is no way to hide the taste. We have tried it all the closest way so far was plain yogurt with fresh fruit 4 ice cubes put in a blender a make a smoothie add some splenda to sweeten if you want. I did threaten to use a turkey baister once so he drinks it with much distaste. Honestly just experiment. He has been taking it for a long time.
Sue
When I started counting my blessings my whole world turned around.


JohnCT
Regular Member


Date Joined Mar 2008
Total Posts : 202
   Posted 6/20/2008 10:14 PM (GMT -7)   
Hi Bailiff,

Welcome to the forum. You'll find an unimaginable amount of knowledge and caring here. It helps to have friends that understand what you're going through either as a patient or caregiver. Reading what caregivers must endure, I think that as a patient I have the easier path.

I'm sorry that you've joined us, the Lactulose crowd. And yes, it's not a drink that will compete with Coca-cola. Depending on your insurance, Xifaxan pills fulfill the same role as Lactulose, even doing a better job. But it costs about $500 / month so I hit my maximum prescription benefits in 2 months. Hence the affordable Lactulose.

End Stage Liver Disease ain't for sissies. I hope that your situation is not so critical and that you find that you can manage the disease. I've got 40 years of Hep damage so transplant is my only path.

I haven't been on Lactulose for too long but have tried everything to change the flavor. Finally I capitulated and decided to turn to the wisest minds of my generation for advice.

I found it in Monte Python's Spam skit. The flavor doesn't get any better, but I feel better saying, "Spam, I love it. I'll have his." To which the proper response is, "You mean you'll have Spam, Spam, Spam, eggs and Spam?"

So for me, it's, "Lactulose, I love it. I'll have his!" At this point I'm so enthusiastic that I often just guzzle it from the bottle.

I apologize in advance since my post is not at all helpful, and perhaps downright inscrutable if you're not familiar with Monte Python. But please believe that I wish you well with the disease and that making light of it is the only way that I have found to deal this POC disease.

Be well, John
I have to get up the creek! Now where's that paddle?
Mind-fogged again.


hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 6/20/2008 10:31 PM (GMT -7)   

Bailiff, welcome to the forum!  I am a patient, but have not yet had the "pleasure" of taking Lactulose (and hope I never have to, from the sound of it.)

John, I saw Spamalot on Broadway in April, with Clay Aiken as Brave Sir Robin.  Hilarious!  So much better than the movie (Monty Python and the Holy Grail.)  Glad that mind game works for you!

Hugs,

Connie


Caregiverx3<3
Regular Member


Date Joined Mar 2008
Total Posts : 197
   Posted 6/20/2008 11:05 PM (GMT -7)   
    eyes   Hm-m-m,
 
 I'm just wondering if Lactulse can be used in cooking, like pancakes, or sweet cornbread. Does anyone know if heat will destroy its effects? Maybe it can be used in instant pudding or something like that. IDK. I can't get Terry to take his much, if at all. He thinks that since he has daily diarrhea he shouldn't have to take it at all. That's not true, is it?  I try to explain that it's not just a laxative, but that it will help bring out the toxins also.
 
Any thoughts?
 
Carol
   
 


Caregiverx3<3
Regular Member


Date Joined Mar 2008
Total Posts : 197
   Posted 6/20/2008 11:15 PM (GMT -7)   
Hi Bailiff,

Welcome to HealingWell.
If you come up with any good way to do the Lactulose, please let us know.
I'm sure there are plenty of Lactulose stories here. There has just got to be a better way for people to take the stuff. It taste like corn syrup to me. I don't have to take it though. My husband is the one with liver disease. Maybe it can be drizzled on toast & jam or mixed with maple syrup and poured on pancakes. Can't it be used in a milk shake?
Maybe it just works better as a shot.

Carol
 


JohnCT
Regular Member


Date Joined Mar 2008
Total Posts : 202
   Posted 6/22/2008 12:46 AM (GMT -7)   
Hi Carol,

Tell Terry that the Lactulose is more than a bowel movement drug. My understanding is that it is a sugar that stimulates certain stomach bacteria which transform the ammonia into urea.

If he's not forgetful, can concentrate and stay focused, he shouldn't need to take the Lactulose. But if he has any of the symptoms of encephalopathy, he should be taking it regardless of bowel activity.

My best to both of you, John

Hi Connie,
I'm so glad that you saw Spamalot. I haven't had the pleasure. I so enjoyed Monte Python.

I was primed by a friend of mine, Max Geldray, who was a member of the Goon Show along with Spike Mulligan and Peter Sellers. The Goon Show was the inspiration for Monte Python's skits. All of the Goon Show members came from the final days of vaudeville, hence the dependence on a series of skits instead of a coherent longer plot.

Hope that you are well today, John
I have to get up the creek! Now where's that paddle?
Mind-fogged again.


lavendar
Regular Member


Date Joined Nov 2007
Total Posts : 450
   Posted 6/22/2008 1:06 AM (GMT -7)   
AHHHHH Lactulose:

Corn Syrup for sure. It is OK in oatmeal, but you can't eat oatmeal twice a day. I just don't like it , leaves a terrable after taste in your throat. I just take my big tablespoon and take 4 quick swallows,drink something fast. I don't believe there is any GOOD way to take it . My ammonia levels go up when I miss a dose. Then I get cloudy then foogy then goofy. Gooo Luck

Caregiverx3<3
Regular Member


Date Joined Mar 2008
Total Posts : 197
   Posted 6/22/2008 1:34 AM (GMT -7)   
Thanks John, I'm going to try and get Terry to take some tomorow. He has had slurred speech tonight. The words just wouldn't come out right. I'm wondering if toxins could be causing his creepy crawly feelings. It mostly happens at night and then he can't sleep because he can't be still. He has to get up and move around.

June, Does the lactulose cause you to have diahrrea or just make you go more often. Terry has a lot of watery diahrrea from the chemo drug, Nexevar. He won't even take Imodium for that.

Carol
 


lavendar
Regular Member


Date Joined Nov 2007
Total Posts : 450
   Posted 6/23/2008 2:20 AM (GMT -7)   
Actually Carol, my pc said it should give me diarrea . It seems that if I don't go more than five times a day, I start to slurr like Terry pobably does. Then get sort of foggy. It has something in it that flushes out toxins, which cause ammonia to build up. When we travel of course I don't take it. The next day I'm kind of lost. When I have my labs done here in town the ammonia is fine because I have access to bathrooms. But when we travel to the clinic more than 600 miles away it goes way up. I have let them know why it is up and they take that into consideration. If I eat even a little bit of red meat it goes up. My Dr. has told me to adjust it accordingly. My husband has to let me know when I start to act differently, so that he can tell me to take more. It does't always work the same way . Some days I have to take 4 very large tablespoon and other days up to 8. Now I'm only speaking for myself , others may react differently. He really should take it . If he has a really bad day he may get encepalopathy so bad he'll end up in the hospital. Take care of yourself toooo. june

mom's "will" to live
Regular Member


Date Joined Oct 2007
Total Posts : 111
   Posted 6/23/2008 8:06 AM (GMT -7)   
Hello All,
 I've done a little research on this lactulose, for some reason they give it to Wil to take 4hrs. before his testing I'm sure it is to clean his system. But, he does not have to take it regularly. Anyway, it can be mixed with water, milk or fruit juice. Not sure if that improves taste as I have not ever taken it nor care too! Wil, however said that maybe putting it in fruity babyfood would help, then he said no it is just to gross! Hope this helps a bit.
 All be well !
Huggs and smooches
Toni

Caregiverx3<3
Regular Member


Date Joined Mar 2008
Total Posts : 197
   Posted 6/23/2008 9:04 AM (GMT -7)   
June, I'm sure you've probably said before, but where do you have to go for the clinic? That is so far.

Is that for transplant reasons?

Carol
 


lavendar
Regular Member


Date Joined Nov 2007
Total Posts : 450
   Posted 6/24/2008 2:30 AM (GMT -7)   
Carol I live in N.M and have to go to Mayo Clinic in Scottsdale , Arizona. We could fly , but then we would have to rent a car to get around. There are five seperate buildings in different parts of Scottsdale . So you have to go back and forth to different places. My choices were Arizona or Colorado. Both are about the same distance. Since Mayo has such a good rep. I decided to go there. N.M. doesn't have a hospital that does transplants.
I can get 3 mo labs here but have to go to Arizona every 6 mo in order to stay listed.
june

Caregiverx3<3
Regular Member


Date Joined Mar 2008
Total Posts : 197
   Posted 6/24/2008 6:40 AM (GMT -7)   
Hi June,
I've never been that far west. I'm going to look at it on virtual earth. Always looking for something new to look at.
I am fairly new to this computer and I forget just how much one can do with it.

Carol
 

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