Hello and I've missed you allHi

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1Shelly1
Veteran Member


Date Joined Oct 2007
Total Posts : 502
   Posted 6/22/2008 10:51 AM (GMT -7)   
Hi everyone........I've missed you all. I haven't posted for awhile because as usual my household is in chaos. LOL.....As you know my brother died unexpectedly in May and I was dealing with the funeral and family for over a week. Then my husband and I have been trying to help my dad cope with all the losses in our family in the last 6 months. Now, we have company from Greece that will be with us for 3 months or more. I am starting to put my life back to some normallacy now I hope. I have started working on one of the 2 books I started writing last year so I've spent most of my free time working on that. I hope to have my project completed by the end of August. It seems like I seldom have time for anything else lately.
I have been able to scan your posts and try to keep up with what is going on with you all. Also,I have been fortunate enough to have a friend like Pink Grandma who has kept me abreast of everyone's goings on.
It seems so strange sometimes that many of you have filled my heart with your love and compassion for each other. I guess I feel like you are my extended family and I love you all. OK....OK.......I know I'm a big mush bucket but it is all true. I just love you all.
I will try to post more often again.
 Shelly
 

“Life is not the way it's supposed to be. It's the way it is. The way you cope with it is what makes the difference."

 


Caregiverx3<3
Regular Member


Date Joined Mar 2008
Total Posts : 197
   Posted 6/22/2008 11:06 AM (GMT -7)   

  :-)    Hi Shelly!

Good to hear from you. We've missed you too.

Carol

 


 


JohnCT
Regular Member


Date Joined Mar 2008
Total Posts : 202
   Posted 6/22/2008 11:12 AM (GMT -7)   
Hi Shelly,

We miss you when you're not around but understand how life, and loss, are. I hope that you are doing well and finding ways to keep your spirit strong. Just like the rest of us, you need to take care of yourself with time and things just for you. As John Wayne would say, "That's an order, Missy!"

Be well and know that we are thinking of you.

John
I have to get up the creek! Now where's that paddle?
Mind-fogged again.


Pink Grandma
Veteran Member


Date Joined Nov 2006
Total Posts : 2445
   Posted 6/22/2008 11:42 AM (GMT -7)   
yeah yeah yeah yeah yeah yeah
Pink Grandma
Forum moderator-Hepatitis

When the going gets tough....the tough get going! Don't always know where I going but I get there anyways.


mom's "will" to live
Regular Member


Date Joined Oct 2007
Total Posts : 111
   Posted 6/22/2008 1:26 PM (GMT -7)   
Hey Shelly,
  Good to here from you! We have missed you bunches! Here in my world it has been a rollercoaster ride of ups and downs this year as well! I know what you are dealing with. Just know you have been in my thoughts and prayers as you are a wonderful person with alot of love and compassion to give and share. Take care of yourself and good luck on your book!
Huggs and smooches
Toni

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 6/22/2008 1:56 PM (GMT -7)   

Shelly, you have been greatly missed, so it made my day for you to take the time to post.  I understand RL getting in the way of posting, at times.  Aside from the ongoing saga of my post-op drain problems, I'm doing well.  Hope you are, too.  Are your books fiction or nonfiction?

Hugs,

Connie


1Shelly1
Veteran Member


Date Joined Oct 2007
Total Posts : 502
   Posted 6/22/2008 4:42 PM (GMT -7)   
Hi Connie, my first project is based on the Sinclair Clan of Scotland. The second and current endeavor is much easier. I decided about a year ago to try to use common household items to clean etc. I found so many different options that were basically non toxic that I decided to make a file based on my own experiences with them. After I did that several of my friends asked for some ideas and also shared their ideas. At some point I decided to put it all into book form so anyone could use them. I have done quite a bit of research and started writing last year. It all got delayed due to my family issues but now I am back at it. I want to use as many non toxic items as possible that are cheap and easy to use. Anyway, that's the idea so I have been trying to get back into the swing of things again. Since I have dedicated my life to health issues I am hoping that people will develop some benefit to my ideas and deal with more natural as well as cheap cleaning supplies. Oh well, the best layed plans....................LOL. I am sorry that your drain issues have continued. I hope it is resolved soon. I think you have been thru enough.
 
Toni, I have wondered several times how you and Will are doing. I hope things are going well.
 
John, how are you? I hope you are doing well too. I worry about you. Are you doing better?
 
Carol, I am glad you said hello. Hugs to you and your hubby.
 
Pink Grandma, as always I am happy to hear from you. You are so great!
 Shelly
 

“Life is not the way it's supposed to be. It's the way it is. The way you cope with it is what makes the difference."

 


hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 6/22/2008 5:23 PM (GMT -7)   

Shelly, any relation to Upton Sinclair, the writer?  Of course, that may not be his real name.  Your "safe cleaning" book sounds like something people really could use and would be interested in, now that everyone is interested in "going green" and saving money!  I have tried using vinegar on a few things, and haven't been sufficiently satisfied with the results.

At any rate, good luck with your books!  It's good to get your mind on other things.  Just don't be such a stranger.

Hugs,

Connie


exhaused
Regular Member


Date Joined Nov 2007
Total Posts : 445
   Posted 6/22/2008 7:19 PM (GMT -7)   

Shelly

I'm excited about your book.  I know this sounds crazy but I love to clean.  I just get alot of satisfaction from getting things all nice and clean.  I can't wait to read it.  Please keep and touch so we know how you are and also let us know when your book is done.

 

JoAnn


hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 6/22/2008 8:38 PM (GMT -7)   

JoAnn, you are welcome to come over to my place anytime--mop and vacuum cleaner will be supplied.  LOL!

Hugs,

Connie


Pink Grandma
Veteran Member


Date Joined Nov 2006
Total Posts : 2445
   Posted 6/22/2008 9:06 PM (GMT -7)   
Me too, me too. I hate to clean. I like a clean house but I hate to clean. LOL
Pink Grandma
Forum moderator-Hepatitis

When the going gets tough....the tough get going! Don't always know where I going but I get there anyways.


JohnCT
Regular Member


Date Joined Mar 2008
Total Posts : 202
   Posted 6/22/2008 9:48 PM (GMT -7)   
Hi Shelly,

Regarding your question: I think that I'm doing well. Thanks for asking. Since I am alone most of the time, I don't have much feedback on encephalopathy except when I'm out visiting, and my friends don't seem too freaked out, so all is well. I am up about 40% of each day although most days sleep is only available from about 4:30am to 9:30am. I do need a lot of down time so I started a blog -- I did 2 posts yesterday.

Tomorrow I meet with the head of the Transplant Clinic, bringing a friend to remember and pass on information regarding the post-transplant 60 day needs.

I'm glad to hear about your writing. To me, writing is very important. It is wonderful that you have some books in you waiting to get out. Have you read Stephen King's "On Writing"? It's wonderful to read about how others go about their writing.

As you do the Sinclairs, please let me know if you run across my friend, Maestro James Sinclair, born in Washington DC, now of New Haven. He comes from the US Sinclairs of Dubuque, Iowa, I think.

I wish you the best in your writing! I'm ready to buy the non-toxic cleaning book. Can I get that signed?

Be well, John
I have to get up the creek! Now where's that paddle?
Mind-fogged again.


shadowsghost
Regular Member


Date Joined Apr 2008
Total Posts : 489
   Posted 6/22/2008 9:54 PM (GMT -7)   
I hate to clean too..... thats why I had kids..... duh! My youngest wont do it if I ask but if I putter like I am not sure how I want to start she gets all stressed out watching then chases me away and does it so I would love a book( not for me though for her LOL) so let me know when qnd where
Sue
PS Dont tell her my secret LOL
When I started counting my blessings my whole world turned around.


frustrated_n_wv
Regular Member


Date Joined Aug 2006
Total Posts : 469
   Posted 6/23/2008 6:21 AM (GMT -7)   
Shelly

Welcome back We all missed you and Good Luck on your book.

Lucy

Caregiverx3<3
Regular Member


Date Joined Mar 2008
Total Posts : 197
   Posted 6/23/2008 10:59 AM (GMT -7)   
Hey John,
 
Are you going to tell us how to find your blog or is it a secret?
 
I think about doing one myself sometimes.
 
Carol 
 


hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 6/23/2008 4:13 PM (GMT -7)   

John, I read Stephen King's On Writing and loved it...particularly the insight into his early life.  I still have the book.  I was a huge SK fan for years, but then he seemed to become a hack writer.  I still think his early work is his best: Pet Sematary, Four Seasons, It, etc.

I'd also be interested in reading your blog, if it's available to us.

Glad you are doing well.  Since you haven't used overnight bags as shoes yet, I think your encephalopathy (if you have it) is minimal.  Let us know how your visit goes!!

Hugs,

Connie


Butterflythree
Veteran Member


Date Joined Oct 2007
Total Posts : 954
   Posted 6/23/2008 6:30 PM (GMT -7)   
Shelly

I am so sorry to hear about your brother. I have not been back in a while, so I had no idea. Good luck with your book.

My prayers are with you.
Butterflythree
 
There is always hope!


JohnCT
Regular Member


Date Joined Mar 2008
Total Posts : 202
   Posted 6/23/2008 11:25 PM (GMT -7)   
Hi Carol and Connie,

Regarding the blog, you need to understand that for me it's a way for me to rant without forcing anyone to actually listen to me. If people voluntarily read it, that's their burden that they've picked up and not one that I've forced on them. I can be most strident and boring. And I have far too many stories and opinions.

That being said, my blog (only 2 posts) is at IndiscreetSage.wordpress.com. Starting a blog while affected by encephalopathy is probably not a very bright thing to do, but what the hey.

You can start your own free blog at wordpress.com simply by signing up. My daughter is very successful with her blogs -- she knows the ins and outs of promoting them (I don't have a clue, so please don't ask). Unless you actively promote your blog, it becomes a personal exercise as opposed to a communication vehicle or income producer. For me, it's the exercise, and if it becomes read, great.

I met with the transplant clinic head today. I brought my friend Lydia so that I would have someone who would actually remember shat was said. She also will be my post-transplant coordinator of John-watchers for the 60 days after surgery. She also will call my mom in AZ to explain what was said, knowing that all I would report is, "The doctor said to stay off 30 foot ladders for at least a month after surgery."

The Dr. was refreshingly frank in discussing the options and dangers. My MELD has only gone up one point to 14 so it will still be a while before we start seriously looking for livers. In this region, 18 to 20 seems to be the starting number with the transplants typically occurring around the high 20's to mid 30's. With the shortage of livers, they lose a lot of patients who are waiting. This clinic has a very low infection incidence level, which is good for me. I have been on most antibiotics, including Cipro, so there aren't many antibiotics of last resort for me.

I trust that you, my extended forum family, will let me know when I am sounding too mind-fogged. As you know, I spend most of my time alone and I'm on best behavior when I am out and about, so I question whether I'll recognize when I become too bizarre. Thanks for watching my back!!

Be well, John
I have to get up the creek! Now where's that paddle?
Mind-fogged again.


exhaused
Regular Member


Date Joined Nov 2007
Total Posts : 445
   Posted 6/24/2008 7:32 AM (GMT -7)   

John  I too would love to read your blog.  Jerry's MELD has stayed around 17 for quit some time.  He is told he will probably get a transplant around 23 to 25.  His son is just now starting the process of live donor.  I'm a little nervous about that because I found out Vanderbilt has only done 4.  The process takes 2 months so that will give me more time to research.  The thought of him hours from death waiting for a liver just starts me shaking thinking about it.  Hope you are having a good day.

JoAnn


hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 6/24/2008 3:30 PM (GMT -7)   

John, thanks for the blog info.  Are you under the same name there?

Hugs,

Connie

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