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hep93
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Date Joined Jul 2005
Total Posts : 12014
   Posted 7/9/2008 8:22 PM (GMT -7)   
Someone was asking about this documentary that takes place within Johns Hopkins Hospital.  It is on tomorrow night (Thurs.) on ABC, 10 PM EDT.
 
Connie

exhaused
Regular Member


Date Joined Nov 2007
Total Posts : 445
   Posted 7/9/2008 8:40 PM (GMT -7)   

Connie

What is this program about.  I think John Hopkins is the hospital that developed the live liver transplant program.  I don't know if that is what the program is about.  Hope your doing well.

 

JoAnn


hep93
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Date Joined Jul 2005
Total Posts : 12014
   Posted 7/10/2008 3:27 PM (GMT -7)   

Hi, JoAnn.  I'm doing okay, thanks.  This program is about life at Johns Hopkins.  Last week they did feature a woman who was getting a lung transplant.  Turns out that the lungs they obtained for her were not in good enough condition, so she had to go home.  However, they had barely gotten home when they were called to come in again...another set of lungs had been obtained for her.  Those lungs worked.  Talk about stress!  They have other stories going on, like a doctor whose wife is divorcing him.  Most people may find this show boring, but I like anything medical, and especially when it's "real life."

Hugs,

Connie


exhaused
Regular Member


Date Joined Nov 2007
Total Posts : 445
   Posted 7/10/2008 8:47 PM (GMT -7)   

Connie

Darn  I totally forgot.  Some nights I don't get to turn my TV on.  Is the show on every week?  Also has anyone heard from John.  I'm getting a little concerned.  Its not like John to stay away so long.  Also where is Carol.  I'm getting worried about her.  I'd call her if I had her number but as usual I have lost it.  Please God help me get better organized!!!!  I hope you are doing better Connie.  Is the drain going OK. 

 

JoAnn


Caregiverx3<3
Regular Member


Date Joined Mar 2008
Total Posts : 197
   Posted 7/10/2008 9:38 PM (GMT -7)   
devil  Dern JoAnn,  
 Am I going to have to come to TN and write it on your forehead?!!! 
 
 I'm still here. I just got so tired and needed to rest and here I am doing the same thing tonight. Laundry and research on IBS and catching up on you all. I don't know that I can talk as much as I want to, but I'll come back ASAP.
 
Dern Connie, I missed it again. I'll have to put a sticky note on the TV. I've been trying to get my insurance straightened out. It's been 2 months since we've been paying Cobra and everyone was still giving me the runaround. I finally found one woman that would do her job. I got my Rx today and will soon get a discount on my phone bill, thanks to "shadowghost".  Really getting down to the final $$$ here. Do you know how else I might be able to save some money or get other discounts? Milk today was $4.75 a gallon. I could put a milk cow in the back yard, if ordinances allow it!
 
Crazy Carol here
 
 
 
 


JohnCT
Regular Member


Date Joined Mar 2008
Total Posts : 202
   Posted 7/10/2008 10:09 PM (GMT -7)   
Hi JoAnn,

I'm doing well. Thanks for the concern. My body is rebelling and it's been a few tough days. I'm due for a good period of time so hopefully I'll be around more. Actually, I've been skulking briefly each day but just haven't felt up to posting. When I'm hurting, I don't feel like I have much to say.

But I will say this: I think that you all are the best -- supportive and caring. Thanks to the caregivers and bless the patients.

I am so sleepy. But last night was the same. Went to bed at 12:30 (I think) but back awake at 2:30 and watched 4:30 go by before getting back to sleep. Maybe tonight will be easier.

Be well, John
I have to get up the creek! Now where's that paddle?
Mind-fogged again.


hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 7/10/2008 10:10 PM (GMT -7)   

JoAnn and Carol, sorry you missed the show tonight.  It was very good.  They did a heart transplant on a young man.  Yes, it is on every Thurs. night, but I'm not sure for how much longer.

JoAnn, the drain is working, but there hasn't been much.  The last few days it's only been about 3 cc in a 24-hour period.  It's inflamed and sore where the stitches are, so I'll probably end up taking it out before next Tues. (my next appt.)

Carol, I hear you on money.  I am so careful...watch for sales and use coupons and store card...but my total today for groceries was $105--that's for a week's worth.  And it's just me and two cats!  I didn't get any meat except for half a pound of hamburger meat that was on sale.

I get a break on my phone bill for local calls.  I basically just pay the taxes.  I recently dropped the wire maintenance plan.  I signed up with Pioneer for long distance at 2.9 cents a minute, but haven't yet gotten a bill.  I may have to switch from AOL to something less expensive.  I took the handicapped van to the grocery store today and a cab home.  Gave the driver a nice tip since he brought all my groceries upstairs.  I saved $10-25 today over what I had been paying my neighbor.  I have my cleaning gal coming tomorrow.  She is a neighbor who is out of work.  I may have to cut down to every two weeks.  I'm at the point where I'm thinking of applying for food stamps.  I would probably only get $10 or so a month, but with the prices on groceries, even that would help.

Hugs,

Connie

 ETA:  John, you were posting at the same time I was.  I hope you start feeling better soon, and that you get a good night's sleep tonight.  I'm headed that way myself in a few minutes.



JohnCT
Regular Member


Date Joined Mar 2008
Total Posts : 202
   Posted 7/10/2008 10:18 PM (GMT -7)   
Thanks Connie,

Sleep well and be well, John
I have to get up the creek! Now where's that paddle?
Mind-fogged again.


exhaused
Regular Member


Date Joined Nov 2007
Total Posts : 445
   Posted 7/11/2008 9:37 PM (GMT -7)   

Hello Everyone. 

You are all so nice to let me know you are OK.  Carol I have saved your phone number so I will call when I can.  We are both still up tonight.  Don't know for how much longer.  Jerry had a Dr. appointment today.  I took him for blood tests on Wed.  One day earlier this week (I really don't remember what day it was I can't even keep track of Carol's phone number.)  Anyway I thought Jerry was in the bathroom.  Well, he was down stairs in his shop then went outside to saw down the tree with a HAND SAW.  He came in the house to get me to help him!  I almost beat him with the saw!  Enought of that.  The blood work came back high amonia after the saw incident I had no problem getting the lactalose down him. He likes it.  His amonia is no longer high.  BUT his blood is low.  I just don't understand that.  He has already had two blood transfusions.  When will it end???? The Dr. is going to wait a couple more weeks because Jerry really isn't feeling that bad.  Would I would like to know if any of you have done research on the live donor program.  Jerry's son is positive he wants to do it.  I would do it if I could but I don't have O blood and I'm too old.  Any feedback you can give me I would appreciate it.  The Gastro Dr. talked to us today but not at length.  I just keep getting the impression the Gastro Dr. are not to crazy about the procedure.  I sure would like to hear from someone that knows more about it.  Hope you all have sweet dreams.

JoAnn


JohnCT
Regular Member


Date Joined Mar 2008
Total Posts : 202
   Posted 7/11/2008 10:06 PM (GMT -7)   
Hi JoAnn,

Just a quick note on what I read about 'live-donors'. It seems that fewer clinics will perform the 'live-donor' transplant because of the risk. The survival rate is higher for the donors than the recipients but the surgery is just as dangerous and complex. According to the Pittsburgh Tribune-Review transplant series, at the University of Pittsburgh clinic, the one-year recipient survival rate is 88%, and the one-year live-donor survival rate is 91%. The Pittsburgh Tribune-Review's series of transplant articles is primarily focused on their local clinics but a lot of information comes out, both on live-donors and the entire transplant process.

There is also a private live-donor organization, matchingdonors, that privately does what UNOS does for the major clinics. I don't know anything about them so approach their information skeptically. And I have no idea how they handle insurance since they are outside the mainstream.

Have the doctors said why Jerry is losing blood? Is he bleeding internally? I don't know enough to know what other conditions cause blood loss. Is Jerry's stool that Lactulose light tan color or dark or black? If dark to black, I would suggest getting a second opinion. My understanding is that any internal bleeding needs to be watched closely and addressed. My varices are headed that way (toward bleeding) and my team makes a big deal out of it. (maybe to justify their billing)

Let me know if Jerry needs help with that tree. My saw of choice is a wonderful serrated bread knife, and if I miss a dose of Lactulose, I'm sure that I can be convinced to take a tree down with it. My Ash tree behind the house is about 24" diameter -- maybe I'll start with that.

It's old Beatles tonight: Meet the Beatles, Rubber Soul, and Beatles for Sale.

Be well, John
I have to get up the creek! Now where's that paddle?
Mind-fogged again.


Pink Grandma
Veteran Member


Date Joined Nov 2006
Total Posts : 2445
   Posted 7/11/2008 10:15 PM (GMT -7)   
LOL guys you're funny. The picture of JoAnn's husband and John sawing down a tree has me rolling. Seriously though John I am glad to see you posting. You have such a wealth of information to share. Hope the Beatles put you to sleep. If I listened to them right now I would be up all night singing along with them. Brings back old memories........... smurf

Thoughts and prayers..........
Pink Grandma
Forum moderator-Hepatitis

When the going gets tough....the tough get going! Don't always know where I going but I get there anyways.


exhaused
Regular Member


Date Joined Nov 2007
Total Posts : 445
   Posted 7/11/2008 10:28 PM (GMT -7)   

John

I need to go to bed but wanted to thank you.  I will check out your info tomrrow if I have the time.  No Jerry's stool is not dark.  According to the Gastro Dr. and Vanderbilt because I keep everyone informed.  He is not loosing blood his body is not making blood fast enough.  His Varices is not bleeding YET.  That is all I know about that but I certainly will watch it.  Also I will be happy to let you know about the tree as I would not be of much help.  You and him could take a ride in his  60 GTO convertible to celebrate.  He also has a pretty good collection of music.  Some you might even like.  I have to warn you he is NOT a good singer. 

Sleep Well

JoAnn


JohnCT
Regular Member


Date Joined Mar 2008
Total Posts : 202
   Posted 7/12/2008 7:55 PM (GMT -7)   
Hi JoAnn and Pink Grandma,

I think that this idea of a Hepatitis Tree Service has merit. We'll just put the GTO up on blocks and make sure that we don't have anything sharp. Jerry and I turn the radio up and 'drive' off to the job site. We'd immediately forget where we're going.

JoAnn, when it's Lactulose time you can roller-skate over to the car like at the A&W, place the tray on the window, and we'll have a frosty mug of Lactulose with the Beach Boys blaring. Pink Grandma, we'd set you up with a video camera and you can do the filming for the documentary. You'd win an Oscar, of course -- for "Best Hepatitis Documentary in a Comedy Format".

What color is the GTO? My best friend in high school had a midnight blue Goat, 326 (I think), dual quads, 4:11 rear end, Hurst shifter. Many great memories of dates in the GTO . . .

Just back from a celebration for a friend who just got her Doctorate in Psychology. Way cool!

Be well, John
I have to get up the creek! Now where's that paddle?
Mind-fogged again.


exhaused
Regular Member


Date Joined Nov 2007
Total Posts : 445
   Posted 7/12/2008 9:17 PM (GMT -7)   

OK John

Metalic blue, 389, three duces (sp) positive track rear end (what the heck is that).  Hearst 4 speed (just like our name)!  OH and how did you know that the Beach Boys were his favorite.  Don't tell me they were your neighbors at one time or better yet your brothers!!   Wouldn't surprise me!!   Oh I forgot the Goat is a convertible.  Hey everyone-- John is back.  I can always tell when he's feeling better.  YEA!    Glad you had a good night.  I have a good friend thats a Phychologist.  They do come in handy at times.  She didn't have a Doctorate but we shared some good times.  I really miss her now.  Glad you are doing good.  I know you are busy with all your musician friends but we need you also.  So please don't stay away so long.  You make us all smile.

JoAnn


exhaused
Regular Member


Date Joined Nov 2007
Total Posts : 445
   Posted 7/12/2008 9:19 PM (GMT -7)   

John

I made a horrible mistake.  The GTO is a 65.  My mistake.  That just shows you how in to it I am.

JoAnn


Butterflythree
Veteran Member


Date Joined Oct 2007
Total Posts : 954
   Posted 7/12/2008 9:36 PM (GMT -7)   
That sounds like a documentary that I would love to see. Hope you guys are doing well tonight.
Butterflythree
 
There is always hope!


Butterflythree
Veteran Member


Date Joined Oct 2007
Total Posts : 954
   Posted 7/12/2008 9:39 PM (GMT -7)   
I forgot to mention, you guys made me smile when I was feeling kind of down. Thanks!
Butterflythree
 
There is always hope!


Pink Grandma
Veteran Member


Date Joined Nov 2006
Total Posts : 2445
   Posted 7/12/2008 10:13 PM (GMT -7)   
John tears are rolling down my face now from laughing so hard. I'd gladly film you two sawing away. But I would probably be filming the tree tops as I would be rolling on the ground laughing.

By the way maybe you or JoAnn can answer a question. Why do they call GTO's Goats????? That just seems like such an ugly nick name for such a cool car. cool smurf Night Night guys.........

T&P..........
Pink Grandma
Forum moderator-Hepatitis

When the going gets tough....the tough get going! Don't always know where I going but I get there anyways.


myfather
Regular Member


Date Joined Dec 2006
Total Posts : 87
   Posted 7/13/2008 11:46 AM (GMT -7)   

 hi everyone, you had me laughing out loud reading some of theese posts, the dog thinks i,m crazy anyway. i just want to say what a  great sinse of humor you all have. i wish i would have found this forum when my father was sick i would have understood more of what was going on with his body, instead i found it the day after he passed, better late than never i guess. you all have a wealth of knowalge here to bad it has to be by life s experience. but now i can put two and two together and know why his body was doing what it was doing. last year when i had my blood work all done i had the dr do a liver panel on me because you never know. he didnt have hep or anything just because if it can happen to him it can happen to anybody. i,m mid 50 or so some people i knew when i was much younger then loved  to shot up drugs i wasnt perfect but never no needles hated that!! just wanted to say thank you to all and what a great job you all do for other people even with the problems you all have to, i just want to get back to work i,m a sub bus driver i really like it. well every body have a great day!! we will have to talk more.

 annette

 myfathers child


hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 7/13/2008 1:54 PM (GMT -7)   

Annette, good to see you post!  Don't be a stranger.  You are welcome anytime.

Hugs,

Connie


Butterflythree
Veteran Member


Date Joined Oct 2007
Total Posts : 954
   Posted 7/13/2008 3:15 PM (GMT -7)   
Hi Annette, That sounds like an interesting job. It is good to hear from you.
Butterflythree
 
There is always hope!


JohnCT
Regular Member


Date Joined Mar 2008
Total Posts : 202
   Posted 7/14/2008 12:05 AM (GMT -7)   
Hi Pink Grandma,

A quickie on GTO. We all called them 'goats' simply because that is the closest short word (one syllable) with most of the letters in GTO (three syllables), which is short for 'Gran Turismo Omologato' (nine syllables). 'Gran Turismo Omologato' is an Italian racing classification and its use on an American muscle car was considered sacrilege by Italian racing purists.

But we loved the horsepower, thought we looked cool, and definitely impressed the chicks, which at that age was a primary goal in life. To drive a GTO, play guitar in a surf band, and have blond hair was almost unfair. Of course, figuring out what to do after the first impression was something that took time and experimentation. I'm confident that I will figure that out soon, I hope. If only I had that hair on top these days . . . Oh well.

Be well, John
I have to get up the creek! Now where's that paddle?
Mind-fogged again.


hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 7/24/2008 12:43 PM (GMT -7)   

A reminder for those who are interested in seeing it:

Hopkins is on tonight at 10 PM EDT on ABC.  They have been focusing on transplants--lung and heart thus far.

Connie


frustrated_n_wv
Regular Member


Date Joined Aug 2006
Total Posts : 469
   Posted 7/24/2008 3:51 PM (GMT -7)   
Thanks for the reminder. I am going to try and stay awake to see it.

Lucy

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 7/24/2008 8:26 PM (GMT -7)   

Good show tonight, as they all have been.  I did miss the first 15 min., though, due to a phone call.  If anyone has missed the past episodes, they can be found on the ABC site online.  I wish they would carry this series into the fall.  I've heard that they have hundreds of hours of tape.

Hugs,

Connie

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