I had a reply from a guy - Way Cool - on my first post, that has had the TIPS procedure.
I've just asked him to tell me where he thinks his Encephapathy (spelling this word is a major problem for me... let's use an abbreviation, like "Enceph'y") is now that he has the TIPS.
We have my honey's Hepatology doctor - who is not really in favor of the TIPS and then we have his transplant doctor - who is in favor of the TIPS.
I am pretty sure that next time he goes in they are going to all agree to do it. And I am really scared about it.
Oh, shoot. Let's be honest. I am really scared about them NOT doing it, too.
I am really just plain scared.
A mini bio of our life.... we've always been 'workaholics' and 'loners'. We just stuck together and did things we enjoyed by ourselves with our dogs. ( We are dog nuts) His small family is all deceased. My family is scattered all across the United States and none of us were ever close to begin with. Except my dad. Whom I buried on July 2 after a long long long battle with cancer. I am still grieving dad's loss and am crying about him right now. OK. Pull myself together now....
Anyway, we've put ourselves in a position of being 'independant'. I am regretting that right now. I could use help. But my nearest and dearest and most valued friend lives 300 miles away. My nearest family lives 200 miles away.
My once perfect and sweet life is now a Made for TV Movie. And a scarey one, at that.
"Courage is the art of being the only one who knows you are scared to death"