My wife has ESLD...I need help with signs please.

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

bobabuhi
New Member


Date Joined Jul 2008
Total Posts : 2
   Posted 7/13/2008 7:51 PM (GMT -7)   
My wife was diagnosed with ESLD 3 weeks ago. This was due to her drinking way to much for way to long. She has swelling in her legs/ankles, and also has ascites pretty bad. The doctors gave her 6 months to a year to live unless she gets a transplant.



I am willing and going to be a living donor for her if I'm a match, however, I can't find out if I'm a match until she is on the donor list....what a pain in the bottom!!!! Anyway, she hasn't been able to stand up off the couch/chair/toilet for the last 3 weeks. She was passing out while walking to the bathroom 4-5 weeks ago. Now she seems to be getting worse, she is kind of unresponsive and just wants to sleep all day. She is on 6 different medications for her liver which she takes throughout the day.



Tonight she can barely walk when I get her up to go to the bathroom, when we get to the bathroom she can't go. She is however pooping, just not peeing as much.



I guess what I would like to know is....has someone seen this with their loved one or friend, and if so, is this a sign of the worse thing imaginable? She is very week and needs help getting around, also she has pain in her stomach and her legs are killing her.



I love my wife very much. I actually did CPR on her when we were living in Oregon. That was scary. We have been together for over 20 years. She is only 37 years old...almost 38.



Any help would be greatly appreciated.



Thanks,



Bob [img]/community/emoticons/sad.gif[/img]

Post Edited By Moderator (Pink Grandma) : 7/13/2008 9:20:01 PM (GMT-6)


exhaused
Regular Member


Date Joined Nov 2007
Total Posts : 445
   Posted 7/13/2008 8:15 PM (GMT -7)   
Hello Bob and welcome. You need to read some of the old posts in this forum. I can say without a doubt that all of us in this forum have experienced what you are feeling and also the symptoms your wife has. I know you are frustated. Its a horrible disease. I can only tell you what I would do if it was me. I would put your wife in a car and take her to the nearest hospital. I am not a Dr. but I have been through some of the same things with my husband. I think she needs to be seen by a Dr. Our family also wants to do the live donor transplant. I can tell you from experience it is a long process. First of all your wife needs to be tuned up (as the Dr. call it). I hope she is not still drinking as that will speed up the damage to her liver. If she stops drinking the damage will slow down. I hope this helps you some. Others here will probably be able to help more. Please keep in touch there are many wonderful people here.

JoAnn

Pink Grandma
Veteran Member


Date Joined Nov 2006
Total Posts : 2445
   Posted 7/13/2008 8:32 PM (GMT -7)   
Hello Bob and welcome to HealingWell. So sorry that your wife has this terrible disease.

Sorry I had to edit your post. We do have kids as young as 13 on HealingWell.

And yes there is lots of us caregivers and former caregivers who have walked a mile in your shoes.

I agree with JoAnn she needs to see a doctor. If she is not urinating much her kidneys maybe having problems.

It's one big balancing act with the meds. Up this..... down that. It was hard to keep track of how much to give my husband as his doctors had to keep readjusting his meds.

Hang in there........you aren't alone in this any longer..........there's plenty of people here to listen and support you.............

Take care...........
Pink Grandma
Forum moderator-Hepatitis

When the going gets tough....the tough get going! Don't always know where I going but I get there anyways.


Butterflythree
Veteran Member


Date Joined Oct 2007
Total Posts : 954
   Posted 7/13/2008 8:56 PM (GMT -7)   
Bob, Welcome to the forum. I agree with Pink Grandma and JoAnn. It sounds like she needs to be seen by a doctor. I am so sorry that you and your wife have to deal with this terrible disease. It can be very scary. I hope she gets listed and receives a transplant soon. There are many people here that have dealt with the problems that you are dealing with now and can give you advice or just listen when you need to talk to someone. Please continue to come back and keep us updated. We all care. Everyone needs a shoulder sometimes. It sounds like you were pretty young when you and your wife got together. I was 15 and my husband was 16 when we started dating. We have been together about 28 years. He and our kids have been my life. When he was diagnosed with cirrhosis it was devastating. He mainly suffers from encephalopathy and ascites now. We haven't had any real scares yet, but the bouts of encephalopathy can be very scary. I started researching cirrhosis on line and found this site. It has been very helpful in helping me to get educated and for support when I am feeling really down.
I will be praying for you and your wife.
Butterflythree
 
There is always hope!


1Shelly1
Veteran Member


Date Joined Oct 2007
Total Posts : 502
   Posted 7/13/2008 9:14 PM (GMT -7)   
Hi Bob, and wecome to HealingWell. I am very concerned about the condition of your wife as you stated in your post. I feel that without a doubt she needs to go to the ER to be evaluated.  
 Shelly
 

“Life is not the way it's supposed to be. It's the way it is. The way you cope with it is what makes the difference."

 


bobabuhi
New Member


Date Joined Jul 2008
Total Posts : 2
   Posted 7/13/2008 9:43 PM (GMT -7)   
Thank all of you very much for your prayers and support. I believe that I am going to take my wife to the hospital tomorrow. She just isn't all there...if that makes sense. It's nice to have a place like this to go to.

Thanks,

Bob

Pink Grandma
Veteran Member


Date Joined Nov 2006
Total Posts : 2445
   Posted 7/21/2008 9:41 PM (GMT -7)   
Bob how's your wife doing? We haven't heard from you a while.

Thoughts and prayers...........
Pink Grandma
Forum moderator-Hepatitis

When the going gets tough....the tough get going! Don't always know where I going but I get there anyways.

New Topic Post Reply Printable Version
Forum Information
Currently it is Saturday, December 10, 2016 7:25 PM (GMT -7)
There are a total of 2,736,162 posts in 301,356 threads.
View Active Threads


Who's Online
This forum has 151449 registered members. Please welcome our newest member, iwanttocry.
279 Guest(s), 5 Registered Member(s) are currently online.  Details
bluelyme, Ides, tickcheckguy, Xmaslover, minnietoty


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer