husband has hep b, cirhosis, and cancerous tumor in portal vein

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jvr
New Member


Date Joined Jul 2008
Total Posts : 1
   Posted 7/14/2008 12:02 AM (GMT -7)   
I need some feedback from anyone who has had this or any knowledge of this.
In the beginnong of March my husband was diagnosed with non resectable HCC.
He has had two chemo embolizations. He has not gone back to work since diagnosed because he feels so horrible all the time.
The first time he received the chemoembolization he had many side effects and set backs because he also had his gallbladder taken out.  He has lost a lot of weight and is very down.  He is in pain most of the time and has not resumed any of his old activities.
The oncolgist says his cancer is getting smaller but I don't then understand why they cannot give him a liver transplant.  I am very confused over how the course of this illness is supposed to go.  The first drs he went to see told him he was going to die and now his new oncologists says he's "un-dieing". 
Has anyone had a similar situation?
Please help.
Thanx

frustrated_n_wv
Regular Member


Date Joined Aug 2006
Total Posts : 469
   Posted 7/14/2008 4:09 AM (GMT -7)   
Hi jvr and welcome to healing well. I personally do not have the experience you are seeking dealing with cancer, but there is a wonderful lady that posts here that has her own personal experience. You may be able to search the old posts and find some information. Also goggling it will help you in finding information. Education is your best weapon in this war. Good Luck to you and your husband.

Lucy

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 7/14/2008 12:32 PM (GMT -7)   

Welcome, jvr.  I may be the person that Lucy mentioned.  I have chronic active hep C and was diagnosed with HCC in the right lobe about 2 years ago.  It had metastasized to the inferior vena cava, so I was told a transplant was out and so was surgery.  However, I went to Mayo Clinic in my city (Jacksonville, FL), and while I was also given a death sentence, there was some hope through a study that was being conducted.  Prior to that, I had a chemoembolization which shrunk the tumor considerably.  Next, I participated in the study drug, TheraSphere, which is actually microscopic beads of radiation that are injected into the tumor.  The result was that the metastasis shrunk into the original tumor and that tumor was killed--along with the right lobe of my liver.  I had surgery to remove that lobe in May '07 and have remained cancer free thus far.  At the time of surgery, they biopsied my left lobe and found "mild" cirrhosis.

I did have some complications from the surgery, namely an incisional hernia that was repaired in Dec. '07, but came back and was repaired again May 29th of this year.  I have also had problems with ascites buildup and am on my 3rd drain.  The previous two clogged up and stopped working.  There has been no drainage in the past 24 hours, so I'm hoping to have this present drain removed tomorrow at my appt.

Everyone's situation is different.  Is your husband getting treatment for the cancer and that's why it is shrinking?  Exactly where is the cancer and is it all over the liver or just in one place?  Has it metastasized?  The answers to these questions may give you some insight about his eligibility for transplant.  Has his doctor told you why he cannot have one?  I was told that if the cancer comes back in the remaining left lobe, that I would then need a transplant.  I think they try to avoid that if there is any other solution.

I hope this helps a little.

Hugs,

Connie


Post Edited (hep93) : 7/14/2008 9:45:36 PM (GMT-6)


Butterflythree
Veteran Member


Date Joined Oct 2007
Total Posts : 954
   Posted 7/14/2008 4:45 PM (GMT -7)   
jvr, I just wanted to welcome you to the forum. I am sorry that your husband is so sick. There are a lot of knowledgable, caring people that may be able to answer some of your questions. My husband has cirrhosis, and coming here has helped me alot. Everyone here understands what you are going through and are always ready to help. You and your family will be in my prayers.
Butterflythree
 
There is always hope!


frustrated_n_wv
Regular Member


Date Joined Aug 2006
Total Posts : 469
   Posted 7/17/2008 4:04 AM (GMT -7)   
Hi Connie

Yes of course I was referring to you. As a liver cancer survivor I knew you would have some great info to share.

Lucy

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 7/17/2008 4:22 PM (GMT -7)   
Thank you, Lucy. :)

Connie
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