Unexplained fever - wierd (plus Big Papi baseball)

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JohnCT
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Date Joined Mar 2008
Total Posts : 202
   Posted 7/27/2008 9:15 PM (GMT -7)   
Hi all,

Just checking in. I hope that everything is as calm as can be expected. I've been trying to keep up on everyone but I think that I need to adjust my Lactulose so that I can keep track of you guys.

It's been a tough week but for good reasons. I went to Maine with a friend to visit his niece and family. They're all Red Sox fans, and 'Big Papi', David Ortiz, was on injured reserve and assigned to the Portland Seadogs for a warm up before coming back to the Sox. Will and Jack, the kids, wanted to see Big Papi play so off we went to the Seadogs game. They were sooooo excited.

I don't know what's going on with a fever because my normal temperature these days is 97.1 - 97.3. Today, it jumped to 103.7 although tonight I got it down to 100.4. I'll call the Dr. tomorrow and hope that it's not Sepsis again. As much fun as health care is, I can do without any more excitement. My MELD is up to 14 so shortly they will mark me as active on the list. Around here, transplants generally occur around 28 - 30 so I think that I have a long wait. I may have to get listed at Mayo in Sun City, AZ if I want to move things more quickly.

I'm going to try for an early bed time tonight. I'm thinking that it should be a Beatles night.

Again, I hope that you all are as well as can be expected. You are in my thoughts and prayers.
Be well, John
I have to get up the creek! Now where's that paddle?
Mind-fogged again.


hep93
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Date Joined Jul 2005
Total Posts : 12014
   Posted 7/27/2008 9:45 PM (GMT -7)   

John, it's so good to hear from you!  We have been concerned about you.  You were definitely missed!

It's great that you were able to make that trip!  You'll have some good memories to draw on when things aren't so great.

Please do contact your doctor ASAP about that fever!!  I, like you, have a normal temp of 97.9 or so--so even 100 is a big deal.

Take good care of yourself and let the Beatles lull you into a restful sleep.  Update us when you can.

Big hugs,

Connie


Pink Grandma
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Date Joined Nov 2006
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   Posted 7/27/2008 10:26 PM (GMT -7)   
Hi John,

Thanks for checking in.

How neat that you were able to go see Big Papi. I'm going to have to tell my great niece. She's a California native but she is a BIG Red Soxs fan too. When I asked how she could be a Red Sox fan??? She said that they were all hot guys. I cracked up. tongue

I totally agree with you and Connie............doctor time. Since your immune system is compromised.... infections come easier......And with infections come that troublesome encephalopathy as you already know. Then you maybe drinking that yucky o'l lactulose by the gallon.

And if you can go to a hospital that has a shorter waiting time.........Go for it!

Good night John...........lot's of thoughts and prayers. smurf
Pink Grandma
Forum moderator-Hepatitis

When the going gets tough....the tough get going! Don't always know where I going but I get there anyways.


frustrated_n_wv
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Date Joined Aug 2006
Total Posts : 469
   Posted 7/28/2008 3:46 AM (GMT -7)   
John

Just wanted to say a quick Hi and I hope that you get into your doc really soon. High fevers (and I agree that sounds high) are nothing to mess around with. Let us know how things go.

Glad you were able to get out and enjoyed a pleasant trip. Sometimes it feels so good just to get out of the house and away from the familiar.

Personally I think every night should be a Beatles night. Hope they helped you get some much needed rest.

Lucy

Butterflythree
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Date Joined Oct 2007
Total Posts : 954
   Posted 7/28/2008 3:52 PM (GMT -7)   
John, It is good to hear from you. I am happy that you were able to get out and enjoy yourself. I hope the fever just turns out to be a little bug. I am still praying for you. Let us know what the doctor says.
Butterflythree
 
There is always hope!


JohnCT
Regular Member


Date Joined Mar 2008
Total Posts : 202
   Posted 7/28/2008 10:46 PM (GMT -7)   
Hi all,

I hope that everyone is as well as we get. Thanks for your concern and encouragement.

Due to the fever I did get to spend the afternoon at the hospital (Woo Hoo, good times!). Since I don't have any other symptoms, there wasn't much to do except for blood work. The vampires (my buddies by now) got to pull out some of their less used containers today. Some sort of small bottles (shaped like the little 1 oz. liquor bottles - ironic, eh?) in addition to the normal vials. By now, all of the vampires know where my best veins are so all of the punctures are clean and painless. I love it when professionals take pride in their work. Even if they are puncturing me. I am guessing that the bottles are for Lyme Disease and West Nile. I haven't had any tick or mosquito bites that I'm aware of so they're just being cautious.

Fortunately, my temperature has come down. Unfortunately, not below 99.7 (my normal is 97.3) even with Tylenol, so I guess if I want to sleep, I'll have to mask the fever with Vicodin. This uncontrollable shivering followed by drenching sweats is getting old. Whine, whine, whine . . . compared to where most of our forum patients are, I've got no problems to complain about yet. So I apologize to to all of you who are dealing with real the problems of this disease. I just feels good to have people that I can talk openly with.

Please be well -- and crank some Stones or Zeppelin for me.
John
I have to get up the creek! Now where's that paddle?
Mind-fogged again.


Butterflythree
Veteran Member


Date Joined Oct 2007
Total Posts : 954
   Posted 7/29/2008 3:58 PM (GMT -7)   
John, You whine all you want to. Everyone knows I've done it a time or two and I am not even the one that is sick. Hope you got the rest you needed and are feeling better today.
Butterflythree
 
There is always hope!


1Shelly1
Veteran Member


Date Joined Oct 2007
Total Posts : 502
   Posted 7/29/2008 7:06 PM (GMT -7)   

Hi John, I was happy to read that you got out for a bit. Fresh air can be healing all in itself. By now you should have seen the Dr and received some care for that fever. I hope that you can let us know what was wrong and certainly I hope that you feel better. I am looking forward to reading your next post.

 


 Shelly
 

“Life is not the way it's supposed to be. It's the way it is. The way you cope with it is what makes the difference."

 


exhaused
Regular Member


Date Joined Nov 2007
Total Posts : 445
   Posted 7/29/2008 8:16 PM (GMT -7)   

Hi John

I'm so glad you are better.  I must admit I was a little scared.  I am one of those people that wants to know whats going on.  It would drive me crazy if they coudn't tell me why I had a fever.  I'm sure you are used to that by now.  Every time this happens to my husband I have lots of questions.  I'm sure they are tired of me.  I hope you are able to get rid of that fever and heal a little.  Maybe you did just have virus and its just taking a while to get over.  I sure hope so.  By now your are probably listening to Zeplen and the Stones.  Good choice. Hope tomorrow is a good day for you.

JoAnn


shadowsghost
Regular Member


Date Joined Apr 2008
Total Posts : 489
   Posted 7/29/2008 9:30 PM (GMT -7)   
John, Sorry to hear you arent well. Love the red sox and happy you got to see Papi play. Those bottles i see alot. They are for different cultures as opposed to regular blood work.. they are used alot for looking for example MRSA in blood etc.  My hubby had MRSA and they check him asap when he has unexplained temps.
Sue
When I started counting my blessings my whole world turned around.


JohnCT
Regular Member


Date Joined Mar 2008
Total Posts : 202
   Posted 7/29/2008 9:55 PM (GMT -7)   
Hi all,

Thanks for the feedback. The hospital called to tell me that the tests so far are normal. They're waiting on West Nile and cultures. My temp is back to within a degree of normal (normal = 97.1 - 97.3) but I am totally worn out. I try to accomplish one thing per day and I was able to do it, but the bed called me back several times today. I'm sleeping with Fleetwood Mac tonight so I'm off to try that sleep thing.

Be well, John
I have to get up the creek! Now where's that paddle?
Mind-fogged again.


Butterflythree
Veteran Member


Date Joined Oct 2007
Total Posts : 954
   Posted 7/29/2008 10:16 PM (GMT -7)   
John, Fleetwood Mac is a good choice. Sleep well.
Butterflythree
 
There is always hope!


DGinSD
Forum Moderator


Date Joined Apr 2007
Total Posts : 839
   Posted 7/30/2008 8:05 PM (GMT -7)   

Hi John,

about 2 months ago I went through fevers for a week, headaches for 3 weeks straight and inappetance...followed by nausea if I did eat.  I finally went to the doc for the fevers primarily.  Initially she thought it was appendicitis but abdominal CT only showed an ovarian cyst and an enlarged spleen (it's been enlarged b4)...so she wasn't worried.  I had a small ear infection too.  However, my LFT's went up a bit.  She conferred with my hepatologist who figured I had some kind of infection (other than the ear) so I went on antibiotics.    So 5 days later (and feeling much better) I went to have bloods rechecked....LFT's still high but apparently I had some hemolysis going on.  Further testing with a hematologist, who was trying to figure out where the hemolytic anemia was coming from, found me positive for CMV (cytomegalovirus).  It's common, 50-85% of the population have it, but us immunosuppressed folk can have more severe issues with it.  I can happily say that the hemolysis is resolving but since I am positive for the virus, I will need to keep on eye on symptom changes.

Anyway, it could be a virus that caused your fevers and your body is taking care of it...CMV could be one to ask them to check for.  I was surprised to hear you were using Tylenol for your fevers....I was told by all my hepatologists to stay away from it.  It's the worst NSAID for liver toxicity.  They said I was allowed Advil (Ibuprofen) when needed but in moderation.

Take care and happy sleeping!


Dany
 
Diagnosed with AIH January 2007
meds: Azathioprine 50mg + Prednisone 5mg


Butterflythree
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Date Joined Oct 2007
Total Posts : 954
   Posted 7/30/2008 9:05 PM (GMT -7)   
Hi Dany, My husband is also allowed to take Tylenol in moderation. It isn't actually considered an NSAID, but you are right that it is toxic to the liver. We were told in small amounts it wouldn't harm him. Due to varices he isn't allowed to take ibuprofen or any other NSAID, because they can cause bleeding. I think it depends on what complications you have with liver disease, because before the varices he was allowed ibuprofen and not Tylenol. I am glad to hear that the virus is getting better.

Take care!
Butterflythree
 
There is always hope!


hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 7/30/2008 9:45 PM (GMT -7)   

John, I'm glad to hear that your fever has come down and your testing thus far has been negative.

Rest up and feel better!

Hugs,

Connie


JohnCT
Regular Member


Date Joined Mar 2008
Total Posts : 202
   Posted 7/30/2008 11:43 PM (GMT -7)   
Hi Dany and all,

Hi Dany,
Yes, I was told that the Tylenol was safer than aspirin and I must stay away from the NSAIDs. I used to gobble Ibuprofen like candy for arthritis when the Vioxx scandal hit and while I was still in pain prior to hip replacement. I'm sure that helped kick my liver and the Varices. I'll bring up the cytomegalovirus to my doctor since I have minor symptoms of everything listed on the mayoclinic site. Thanks!

Hi all,
No additional news on the blood work but our town became the 4th in the state with confirmed West Nile. My temp is staying at about 99.1 instead of dropping to my 97.3 so I'll be asking the doctors what the next step will be. Or maybe this will be my new standard temp.

I just saw Gonzo, the new Hunter Thompson movie. I had fun seeing all of the old scenes (some that I might have been in). There also were a lot of his home movies and personal tapes, along with comments from his wives, presidents, publishers, and other writers including Tom Wolf. It could be sad if you don't buy into Hunter's basic life theology (he blew his brains out).

I didn't know he had a thing for Gracie Slick. Maybe I need some White Rabbit and other Jefferson Airplane tonight.

Be well, John
I have to get up the creek! Now where's that paddle?
Mind-fogged again.


hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 7/31/2008 3:30 PM (GMT -7)   

John, I haven't seen Gonzo, but I do have Life and Work of Dr. Hunter S. Thompson on my queue at Netflix.  It's not yet known when it will be available on DVD, but possibly Sept.

Was your hip replacement a result of arthritis or osteonecrosis?  Mine (both hips) was from the latter.

How about Eric Clapton Unplugged for tonight's music?

Hugs,
Connie


JohnCT
Regular Member


Date Joined Mar 2008
Total Posts : 202
   Posted 8/3/2008 10:54 PM (GMT -7)   
Hi Connie,

I hope that you are doing well. It seems that things have calmed down a bit for you. I hope that continues and you can focus on building strength rather than revisiting problems.

Sorry to be delayed in getting back to you but I had to spend some time at the hospital. It seems that I had not had my minimum degradation for the quarter. It is amazing how dehumanizing hospitals can be. I was there for my 9 day unexplained fever. No resolution but plenty of abuse.

15 hours in the ER for 15 minutes of tests; then checked into a room less sanitary than almost any motel room I've been in, including areas where it's not safe to drink the water. I couldn't get out fast enough and the doctors wouldn't take responsibility for a treatment / observation plan. So I said that unless they had a good medical reason for me to stay, to please discharge me. So they discharged me. I can call in my temperatures.

Anyway, hips went from arthritis necrosis, beginning when I turned 40. I was a runner so I don't know how much that contributed but due to my age they made me wait for replacement. I know that you know the pain. Replaced L at 46 and R at 50. Both are great at 57 but I'm concerned about my reduced walking due to the ESLD.

Clapton's Unplugged is one of my all-time favorites. With his life history, he is one artist who is truly qualified to sing the blues. Good suggestion; I'll dig it out before bed.

Thanks and be well, John
I have to get up the creek! Now where's that paddle?
Mind-fogged again.


hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 8/4/2008 3:37 PM (GMT -7)   

John, that ER sounds like a nightmare!!  Well, Shands here is kind of like that.  Thank God Mayo finally has their own hospital and ER here.  The ER is open to anyone in the community and not many people know about it yet.  I had to go once when one of my drains clogged up, and I only had one person ahead of me.  They have carried over the same great medical care and respect for the patients in the hospital, as they have in the clinic.

So how is the fever now?

Yes, I know about the hip pain.  I had the left one done at 59, and redone twice.  The right one was done at 60.  I still have some pain, especially in cold weather.  Climbing stairs is difficult, but I do it.  Mostly, I have stiffness and my legs tire and hurt when walking more than a few blocks.  I'm doing a lot better now, though, than I have in a long time.  I pray it lasts for awhile!

Do you have any Richie Havens?  I have The Classics CD and love it.  Or how about John Lee Hooker's The Healer?

Hugs,

Connie


Butterflythree
Veteran Member


Date Joined Oct 2007
Total Posts : 954
   Posted 8/4/2008 8:51 PM (GMT -7)   
Hi John, I'm glad you are back. I hope the fever is gone now, and you are feeling much better. ER's can be a nightmare.

Take care.
Butterflythree
 
There is always hope!


JohnCT
Regular Member


Date Joined Mar 2008
Total Posts : 202
   Posted 8/4/2008 9:44 PM (GMT -7)   
Hi Connie and Butterflythree,

I hope that you guys are well. No, the fever is not yet gone. It's very low at this point and I am following up tomorrow with the drs. The hospital called today to follow up on my ER experience and how pleased I was with the level of service. They got an earful.

Connie - no Ritchie in stock but John Lee Hooker is here. I haven't unloaded all of my CDs yet but maybe next week I'll finally have this one part of my life organized. I don't want to accomplish too much at once. If I do, what will I obsess on? I don't want to run out of things.

I'm going to try pushing a forced schedule to get closer to a normal awake day so I have to run.

Be well and keep the faith, John

Pirates Rule! Yar, yar, yar!
I have to get up the creek! Now where's that paddle?
Mind-fogged again.


Butterflythree
Veteran Member


Date Joined Oct 2007
Total Posts : 954
   Posted 8/5/2008 4:18 PM (GMT -7)   
Hi John, How did the doctor's appointment go? Were they able to narrow down the source of the fever? I hope so.

You are still in my thoughts and prayers.
Butterflythree
 
There is always hope!


hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 8/5/2008 4:25 PM (GMT -7)   

Well, John, good luck with forcing "a normal awake day."  I try, but get to where I can't keep my eyes open.  Like now.  Zzzzzzzzzzzzzzzzzzz.

Hugs and later,

Connie


JohnCT
Regular Member


Date Joined Mar 2008
Total Posts : 202
   Posted 8/5/2008 10:54 PM (GMT -7)   
Hi Connie and Butterflythree,

Nothing new on the fever front. It is hovering only a degree or degree and a-half above normal but every test and culture is negative. I'm going to suggest Cipro since that did it last time.

I'm trying to get onto this more normal schedule since my parents are coming out to visit. It's tough on them to travel but I know that they feel awful that I don't have a caregiver. I just explain that I was built for this sort of medical abuse. Of course, they don't buy my bull -- they had to put up with a lot of it from me when I was young.

So on that note, I think that it's a BB King night, and off I go. I hope that is not too voyeuristic -- BB king and his love Lucille (his guitar).

I better up my Lactulose, I definitely losing it.

Be well, John
I have to get up the creek! Now where's that paddle?
Mind-fogged again.


hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 8/6/2008 2:42 PM (GMT -7)   

John, if the Cipro has worked before to lower your temp, it's definitely worth suggesting to you doc.  Glad you are having family come visit.  I can understand that you want to get on more of a "normal" schedule for them.  If you find you can't, just tell them you need a little nap and excuse yourself.  I've had to do that with my sister in the past, even at her home in SC.

Do you like Simply Red?  I like the early stuff (If You Don't Know Me By Now, Money's Too Tight To Mention, etc.)

Hugs,

Connie

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