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bratnewton
Regular Member


Date Joined Aug 2008
Total Posts : 131
   Posted 8/23/2008 6:45 PM (GMT -7)   
Well I just got back from San Francisco from getting a liver transplant evaluation. Bottom line is; I am a great candidate for a liver. My liver disease (cirrhosis) has not worsened in a year.( guess thats from giving up alcohol) also quit smoking on July 2. Anyways I have not heard back in regards to how much my Hep C has progressed, but I have portal hypertension and sometime in near future will be going back to SF (if I can find financial help again) for a "tips" procedure to where they insert a stent in portal vein to help blood flow or something like that. Got to read up on that more on internet. Anyways after they do that and everything is OK they will give me treatments for the Hep C (which from what I understand can be as bad if not worse than chemo). Is this true??? and hopefully get rid of Hep C so when I get my new liver in won't get infected with it. If by some reason the Hep C does come back after new liver it won't be as bad.Is this true???
Other than that when all appts. were done for the day (we were there for 3 days), we went sightseeing. Went to fisherman's wharf, downtown city hall area, farmers market and china town. What a city. Way too many people and cars.Live in a small town. AM exhausted but in a good way. Everyone is in my thoughts and prayers

Karen in Nevada

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 8/23/2008 8:42 PM (GMT -7)   

Hi, Karen!  It sounds like your evaluation went well.  Glad you were able to do a little sight seeing.  I had to giggle a little about your assessment of S.F.  I grew up in NYC--Manhattan.  When I went back in April for a visit, I felt like I was in heaven.  I love all the activity, things to see and do, at all hours of the day and night.  I live in a big city now, but they basically roll up the streets by 9 PM, and it's certainly nothing like NYC.

Anyway, I am going to see my hepatologist on the 9th of Sept. to discuss treatment.  She told me that most people in the U.S. have genotype 1, which is the hardest to treat, and requires nearly a year on treatment.  Everyone I know who has gone through treatment says it's really awful...makes one really sick.  She assured me that they now have medications to counteract the bad effects, including low white count. 

It's going to be a difficult decision.  I'm tired of being fatigued all the time, but also don't look forward to being sick for 11 mos.  On the other hand, if I don't get treatment, the hep C could again cause liver cancer in my remaining lobe...in which case I would need a transplant.  I seem to change my mind about it every other day.  So you will need to do some research and ask plenty of questions.

Hugs,

Connie


Butterflythree
Veteran Member


Date Joined Oct 2007
Total Posts : 954
   Posted 8/24/2008 8:22 AM (GMT -7)   
Hi Karen, Congratulations on the good news. I am glad you had time for sight seeing. The Hep C treatment can be really tough, but my husband said he would do it again if he could. Treatment or non treatment is a hard decision. It can be really hard on the body. I have researched and found that some people handle the treatment alot better than others with minimal side effects. That was not the case with my husband. He would get very irrational at times. It really scared me and my kids. We were not sure about what he was capable of at times. Even after all that we went through with my husband and treatment, I think if the doctor's give a person the ok to start treatment they should go for it. My husband was in remission for 6 months and then it returned. But we think it was due to his alcoholism.

Connie, I will pray for God to help you make the decision that is right for you. I know you have been through so much already.
Butterflythree
 
There is always hope!

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