Hello Pink Grandma,
Thank you for your response. I did not receive the bumped posts but have been digging around through the forums. There are so many people that this horrid disease has affected. It does seem that many have the same questions and concerns. I wish I knew what the rapid weight loss meant even without her liver looking distended. It seems that she is better one day and down again the next. I assume some of this is depression but am concerned that she doesn't seem to grasp the importance of taking her meds. She has had every symptom of this disease. The bleeding from both ends, severe confusion, fluid retention, swollen feet, hands...all of this started about 4 or 5 years ago with the first instance of bleeding. We all thought she had an ulcer then more symptoms followed but as many of the members on here she wasn't given alot of information. Obviously, this last trip to the hospital when her kidneys failed and she was in a coma for a day and a half were the most serious. I guess all of us had become a bit complacent about her health as she always recovered very quickly until now. We need to know what we are dealing with. Every other time she was taken to the hospital she had been drinking. Can she get worse when she is not drinking? It almost seems like she is.
Post Edited (hep93) : 8/24/2008 9:47:25 PM (GMT-6)
Cin cin, she could very well be in denial. In addition to abstinence from drinking, her diabetes must be under sustained control before she would even be considered for a transplant. I'm not sure if diabetes itself would be reason enough for her to be denied a transplant, but it surely would if she is not taking her insulin or monitoring blood sugars. The patient has to be an active participant in handling and treating this disease. She is also still withdrawing from alcohol. It does not totally clear the system for many months, so that is one reason she may seem "loopy" at times. It could also be that her amonia is elevated. It's hard to get through to someone who is in denial or doesn't want to change anything. She has to be willing.
Cin cin, I'm sorry that your friend's life is coming to an end. The CHF and kidney failure are very bad signs. It's probably going to come down to the husband making a decision about "extraordinary measures," since she doesn't have a living will and isn't coherent enough to make her wishes known. I'm sorry it had to end this way.
I appreciate your note on my update thread.