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Pink Grandma
Veteran Member


Date Joined Nov 2006
Total Posts : 2445
   Posted 9/6/2008 4:40 PM (GMT -7)   
Has anyone heard from Rainbeau? She hasn't posted in a long long time.

Rainbeau if you read this please post. Thoughts and prayers
Pink Grandma
Forum moderator-Hepatitis

When the going gets tough....the tough get going! Don't always know where I going but I get there anyways.


rainbeau
Regular Member


Date Joined Feb 2008
Total Posts : 39
   Posted 9/7/2008 8:39 AM (GMT -7)   

Greetings my fellow Hep Healingwell friends!!

Yes,  I'm still around!!  Thanks for thinking about me Pink!  I should have posted awhile ago, but my situation has stabled, and I am not nearly as informative as the others who post...but I should have posted supportive thoughts to those who have helped me.  joann, I'm keeping tabs on you and jerry and although I may not be very vociferous with my sentiments, rest assured I pray for you and many others every night!

As for Mr. Wonderful, he's doing great...he got a new knee in June and his mobility has improved tremendously.  He is back to doing everything he wants to do.  He had a zero tolerance policy for many months, but unfortunately he recently fell off the wagon.  I'm learning to let go and let God!  And I'm living my own life!  I lectured for awhile and refreshed his memory about how hard things were a year ago, but to no avail...I've seen this movie before, and the only way it works is when he wants it to work...not me.  so, I lovingly discourage his desire to drink, and in no way facilitate it.  but he is back to feeling 100% now, and I can;t control him. 

as for me, I'm going back to work!  And I couldn;t be more excited...we are taking a trip to AZ thru the end of september, and in october, I shall hit the ground running! 

I pledge to improve my post count, pink.  Congratulations on the new house!  I'm very proud of you!  And am grateful for your continued thoughts and prayers!

With my warmest regards to all,

Rainbeau


hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 9/7/2008 12:32 PM (GMT -7)   

Rainbeau, it's good to see you post and get the current state of affairs.  Congrats on going back to work soon!!  However, I have to tell you I am alarmed to read that Mr. Wonderful is drinking again!  Didn't he get a transplant?  You are 100% correct in thinking you cannot control him--you cannot.  But PLEASE encourage him to go to AA!  What a slap in the face to all that helped him get to his current state of good health--including God!  And you might want to tell him that.  I'm not above a little guilt-tripping if needed for a higher good.

Please take care of YOU (as you seem to be doing), and keep us informed!

Hugs,

Connie


exhaused
Regular Member


Date Joined Nov 2007
Total Posts : 445
   Posted 9/7/2008 2:09 PM (GMT -7)   

Hi Rainbeau

It is so good to hear from you.  I'm glad you are doing good.  I guess hubbie just isn't there yet.  I can tell you that from experience.  I have hope he will get there  Hopefully not when its too late.  I wish he could have know Jerry before and see him now!!  People that knew him and see him out with me once and a blue moon don't even recognize him.  He has managed to stay out of the hospital now for almost three months which is a new record for him.  So that is good new.  Our new home on the coast is (sort of) done but we haven't been able to enjoy it much.  As you know I would give it all up for him to be in better health.  But we are on the transplant list and have good feelings about it.  I did put my stain glass classes on hold for which I am sorry but S### happens.  I just might start back.  Please don't stay away so long.  We love hearing from you.

JoAnn


Butterflythree
Veteran Member


Date Joined Oct 2007
Total Posts : 954
   Posted 9/7/2008 2:35 PM (GMT -7)   
Hi Rainbeau, It is good to hear from you. I am glad that you have decided to live your live, and so sorry to here that your husband has decided to drink again. I will keep praying that he can get control over it so that you can have as many days as possible with him.

Take Care!
Butterflythree
 
There is always hope!


Pink Grandma
Veteran Member


Date Joined Nov 2006
Total Posts : 2445
   Posted 9/7/2008 7:51 PM (GMT -7)   
Boy Rainbeau, When I realized how long it had been since you posted my heart hit my feet. So glad that everything is okay.

Have your husband come online.........I'll give him something to think about concerning his drinking. Spouses do not realize what it is doing to their mates. I can enlighten him a bit.

So glad that life has turned around a bit for you. Have a nice vacation and good luck with going back to work.

Thank you about my house...........We should have the docs tomorrow....we better have. Between the bank I am buying it from, my loan officer and FHA they are driving me nuts...........hopefully we close by Friday.

Lot's of thoughts and prayers..........
Pink Grandma
Forum moderator-Hepatitis

When the going gets tough....the tough get going! Don't always know where I going but I get there anyways.


rainbeau
Regular Member


Date Joined Feb 2008
Total Posts : 39
   Posted 11/20/2008 8:09 PM (GMT -7)   

Greetings my fellow healing well friends,

I may not post daily, but this site is bookmarked and I keep up with posts daily.  Lots of new friends as well as the old faithfuls.  And as wicked as it sounds I find comfort in both.  I feel bad for all those who are challenged by elsd, but also glad that you've found the support of this wonderful website.  I rejoice in hearing the stories of successful transplants, and relate to those who are just hanging on by a thread. Either way, each and every one of you have helped me along my journey.

And here we go again.  The tell-tale signs of esld have returned.  Mr. Wonderful returned to alcohol 4 months ago, and he is headed right back down the path he was on.  Funny thing was, when we had our 3 month check up earlier this week, his GP said you look great, bp is good, just keep doing what your doing...I says, he has returned to alcohol, and I am seeing some subtle changes(Lethargic and forgetful).  Can we get a blood test please>? Long story short, GP calls today, says we need to see you tomorrow to discuss your test results, and I am scheduling you to see a hematologist on Monday, and you should schedule an appt. to see your Gastro asap. 

so while mr. wonderful sleeps with a cat on his lap in front of a cozy fire, I'm seeking the comfort of release at this website.  he needs a wake up call, and whether he likes it or not, he's about to get one. 

and with thanksgiving around the corner, I just want to say how thankful I am for all of you.  And I pray that mr. wonderful is listening to the call he's about to get.

love and light to all!  rainbeau

 


exhaused
Regular Member


Date Joined Nov 2007
Total Posts : 445
   Posted 11/20/2008 8:25 PM (GMT -7)   

Hi Rainbeau

It was really good to hear from you but you better get ready!!!  The ride your about to get is not going to be fun.  As I'm sure you know.  I guess I am fortunate that the minute that cirhosis was mentioned Jerry NEVER went near another drink.  And our home was full of it.  Mainly gifts he has received through the years that he hadn't touched.  Mr Wonderful just has to get scared enough.  He must believe that it will kill him before he gets that scared.  I'm glad you are doing well.  Jerry is still holding on.  The month of October was wonderful but since then its been down hill.  This is the absolute craziest disease anyone can immagine.  There no way to understand it all.  I have to research daily but have tryed to have some normal in my life lately.  I was just getting to close to going crazy.  We are heading for the coast for the holidays with the entire family including Mamaw (Jerry's mom).  She is by far the dearest person I have ever know.  She doesn't realize how sick her son is because when we go to see her we only stay for a short time.  He talks to her every day on the phone and the poor dear thinks she can't understand him because of her hearing.  She doesn't  realize he is too week to talk loud enough.  I'm sure she will figure out alot staying in the same house with us for a week.  But I just feel we all need to be together this Thanksgiving.  So i"m doing my best to make it a good week.  I'm hoping Jerry will make it.  He got another transfusion last week so I'm praying it will  give him a little boost!  Please try and keep us posted on how Mr. Wonderful is doing and you also.  I hope you and your family have a wonderful Thanksgiving.

JoAnn


hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 11/20/2008 9:53 PM (GMT -7)   

Hi, Rainbeau!  It's good to see you post.  Maybe we can pray that Mr. Wonderful gets scared sober.  wink   In AA, I've seen over and over how people start to feel good and think that they can handle a few drinks, only to find out it takes them down that same old road to destruction.  In people with liver disease, the destruction is guaranteed to happen quickly.   cry   I can't help but be grateful that they've had "slips" so I don't have to...I've seen first-hand what would happen if I should drink.

Remember to take care of YOU.


Hugs,
Connie
 
"But that was yesterday, and I was a different person then."
 
Alice in Wonderland, Lewis Carroll


Pink Grandma
Veteran Member


Date Joined Nov 2006
Total Posts : 2445
   Posted 11/21/2008 7:43 AM (GMT -7)   
Hi Rainbeau it is wonderful to hear from you. I am truly sorry that Mr. Wonderful has resumed his drinking again. Alcohol is such a hard vice to quit, but hopefully he will see the light with his next appointments and be able to do it this time.

I love roller coasters but I got to admit.........the liver disease ride is one that I hope that I will not go on again. It did kill my husband way too early...........and it almost killed me along with it. God must have been watching out for me though.

I hope your holidays are filled with love,peace and happiness.....

As always..........thoughts and prayers.........
Pink Grandma
Forum moderator-Hepatitis

When the going gets tough....the tough get going! Don't always know where I going but I get there anyways.


Butterflythree
Veteran Member


Date Joined Oct 2007
Total Posts : 954
   Posted 11/21/2008 9:49 PM (GMT -7)   
Hi Rainbeau, I too have been wondering how you and Mr. Wonderful were doing. I'm glad you posted and gave us an update on everything. I am so sorry that alcohol still has it's hold on Mr. Wonderful. It is such a terrible disease. I watched my husband killing himself for many years. When he received the news of cirrhosis, he stopped. I was very thankful for that. I still wish that he would have stopped when he was diagnosed with hep C, but there is nothing that I can do or could have done to change things. I'm sure that you realize that this is in Mr. Wonderful's hands and not your own. So I hope you are not feeling guilty. I still catch myself trying to figure out what I could have changed. But I do realize that it was totally in his hands. Now I pray for the good days and for God to save my husband from this terrible disease. I'll be praying for Mr. Wonderful also, to overcome the disease of alcoholism and be cured from cirrhosis.

I hope you will have a nice Thanksgiving.
Butterflythree
 
There is always hope!

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