Liver biopsy results

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hockeygal
New Member


Date Joined Sep 2008
Total Posts : 19
   Posted 9/11/2008 2:19 PM (GMT -7)   
Hi everyone, just wanted some input on liver biopsy results: I was diagnosed with hepc 2005 Dr said probably had for about 15, 20 years 1st biopsy 2/06 states chronic hep c with mild activity minimal portal fibrosis mild steatosis, portal inflammation 2/4, lobular 1/4 fibrosis 1/4...
 
Then did treatment (only six mo) but virus came back then in 6/08 , new Dr. did another biopsy with : moderate macrovesicular steatosis, portal inflmmation moderate to high 3/4 & lobular 1/4, but now no signifigant fibrosis or cirrosis?
 
New Dr wants to do treatment for full year due to high inflammation when I go to Dr I ask alot of questions & he tells me good info but I do not retain it well anymore.... do the recent results mean its getting worse or ok? anyone who is in same boat or has higher results can you help, Dr says liver is still working but I have days that I am so fatigued, no appetite, nausea, dizziness, major night sweats(gotton worse) sharp contant pain in right side & has gotton worse since the beginning of year.. also have problems with gums bleeding alot & brusing they just pop up without any injury(mostly on legs) just recently my legs tend to swell up but not in ankles mostly in thighs, groin area & calves, Weird huh? anyway just looking for some 1st hand experience info  thanks for listening.
 
Oh last thing does anyone else lay on heating pad for pain in side? that seems to be only thing that helps??? lol
 
God bless
 
Leslie

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 9/11/2008 4:37 PM (GMT -7)   

Leslie, it sounds as though the inflammation is getting worse.  I have grade 3-4.  Even when I had liver cancer, though, I did not have right-sided pain...just a couple of twinges in the weeks immediately prior to liver resection.  I have had a nagging kind of pain on the left side, just under my ribs.  I've had this since around '03, but nobody has ever been able to diagnose it and nothing shows up on scans, including MRIs.

A heating pad has helped some hep C/cirrhosis patients with pain.  They have posted here about it.

Hugs,

Connie


hockeygal
New Member


Date Joined Sep 2008
Total Posts : 19
   Posted 9/11/2008 7:46 PM (GMT -7)   
Connie, thats what I thought. even after doing treatment did not help? what tests do u get to check for cancer? I am just concerned about the pain is worse than is ever has been . I had a mri done 10/07 & had several hemangomias on my liver, but that Dr told me was nothing (it was done at mayo clinic) I have been all over the place & really not getting anywhere. something does not feel right , I have had lots of blood tests, cts mri's but are told the same thing. If I lose some weight I may feel better, diet etc.. well I am eating healthier, no alcohol, but getting worse. My mom metioned a Pet scan? thats a test I have not had but is it necessary? I dont know, I want to catch b4 2 late. My stepfather died in 2006 with cirrhosis and lung cancer & it was horrible to watch. I can bear to see my mom go thru that again...

thanks for listening
Leslie

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 9/11/2008 9:05 PM (GMT -7)   

Leslie, I get my liver and orthopaedic care at Mayo.  They literally saved my life.  Did you go to the one here in Jacksonville?  If so, who did you see?

I get CT or MRI scans done every 3 months, but now they are going to start extending the time in between to 4-6 mos.  The MRI is done with gadolinium contrast.  That is the contrast that will show cancer, although the CT scans can give a pretty accurate idea, too.  With the CTs, I drink 1 1/2 to 2 8-oz. cups of a contrast material and also get an IV contrast.  The report says they gave me 100 mL of Visipaque.  I'm guessing that's the IV contrast material.  They did a "triple phase liver protocol."  These are from the scans done on 09/08/08.

As far as blood work, they do alpha fetoprotein as a tumor marker, though it has never really reflected what is going on, in my case.  The best indicators have been the liver profile and the CT and MRI scans.

A PET scan is usually used for the head, though it can be used for other areas.  It's a 3-dimensional picture that is broken down into small pieces, so each of the pieces can be minutely examined.

If you feel something is not right, you should continue to get checked out.  However, it could be something altogether different from liver disease.  How is your thyroid?  Do you have diabetes?

I must tell you that my liver cancer was discovered during a routine yearly ultrasound.  I had no symptoms.  However, my Mayo hepatologist and I feel that the tumor was there the previous year and was missed by the radiologist.  (The ultrasound was taken and read at Shands.)

I hope this has been of some help to you.

Hugs,

Connie


hockeygal
New Member


Date Joined Sep 2008
Total Posts : 19
   Posted 9/12/2008 7:19 AM (GMT -7)   
Connie , Yes I went to Mayo in Jacksonville I saw Dr Rolland Dickinson in 10/07 & in 1/08 I have had those blood tests as told they were ok, I was reffered to a endocrinolgist for Thyroid levels were slightly elevated but then back to normal, just monitoring that, no diabetes but do need to lose some weight. blood pressure always been good, choelestral good, liver tests higher than 2 years ago but not off the charts, they go up & down. so will keep going.. thanks for info

Leslie
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