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Judith
Regular Member


Date Joined Apr 2008
Total Posts : 131
   Posted 9/12/2008 10:38 AM (GMT -7)   
Hi all,
 
My husband is involved in a study group and is currently taking 550mg. of Rifaximin twice daily, the results have been very impressive yeah , confusion is GONE and he can actually have a conversation, fill out paperwork etc.!!! He is still extremely fatigued and has sleep problem's but at least the mind fog seem's to be gone.
 
 
 
Judith

CaryF
Veteran Member


Date Joined Nov 2007
Total Posts : 505
   Posted 9/12/2008 11:15 AM (GMT -7)   
Hi Judith,

I wish you & your husband well. Rifaximin is used in place of or in addition to lactulose & is pricey. Are you getting it free due to this study?

Best,
Cary

Pink Grandma
Veteran Member


Date Joined Nov 2006
Total Posts : 2445
   Posted 9/12/2008 1:16 PM (GMT -7)   
Hello Judith, My husband took it also. And it worked great for him too. It's actually an antibiotic. With the suppressed immune system patients get infections frequently......at least my husband did. He also acquired that highly resistant Staph infection MRSI by visiting the ER and being hospitalized so much. So between the infections and high ammonia levels they tend to have frequent bouts of encephalopathy. So if the patient takes both Lactulose and Rifaximin it really helps them not have the encephalopathy so often.

And Cary is right it is very expensive. So I do hope that your husband is getting it free.

Both of you have a great day.......... turn
Pink Grandma
Forum moderator-Hepatitis

When the going gets tough....the tough get going! Don't always know where I going but I get there anyways.


Judith
Regular Member


Date Joined Apr 2008
Total Posts : 131
   Posted 9/12/2008 1:44 PM (GMT -7)   
Thanks for the information yeah , and yes he get's it free as long as he is in the study!  They are hoping to get it on the market at a lesser cost is what we were told so hopefully this study will accomplish that.

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 9/12/2008 3:03 PM (GMT -7)   

Judith, I'm glad to hear that it is working to eliminate brain fog in your husband.  I think this is the med you said he was going to take for hep C.  If so, it is actually for encephalopathy and is already in use, as stated in the above posts.  Since it is free to your hubby, this is a good move for him.

Hugs,

Connie


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