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candlelight
Regular Member


Date Joined Aug 2008
Total Posts : 54
   Posted 9/12/2008 11:49 PM (GMT -7)   
hi everyone
             sorry i havent been in touch for last few days having a harder time bouncing back from rejection this time,had another shot of epogen today hopefully it will help.I hope everyone is well will go thru posts tomm
   Hugs & Hope
      Joelene


Pink Grandma
Veteran Member


Date Joined Nov 2006
Total Posts : 2445
   Posted 9/12/2008 11:53 PM (GMT -7)   
Joelene, you never have to apologize here.......So sorry you are having a rough patch right now. Hang in there.....you are tough.

Thoughts and prayers for a speedy recovery........
Pink Grandma
Forum moderator-Hepatitis

When the going gets tough....the tough get going! Don't always know where I going but I get there anyways.


candlelight
Regular Member


Date Joined Aug 2008
Total Posts : 54
   Posted 9/13/2008 12:33 AM (GMT -7)   
Pink GRandma
Thank you you are the best!!!!
   Hugs & Hope
      Joelene


Pink Grandma
Veteran Member


Date Joined Nov 2006
Total Posts : 2445
   Posted 9/13/2008 12:40 AM (GMT -7)   
That goes ditto for you Joelene..........Anyone fighting these liver diseases and still trying to help others ............are just over the top in my book.

So thank you Joelene. smurf
Pink Grandma
Forum moderator-Hepatitis

When the going gets tough....the tough get going! Don't always know where I going but I get there anyways.


Butterflythree
Veteran Member


Date Joined Oct 2007
Total Posts : 954
   Posted 9/13/2008 6:58 AM (GMT -7)   
Hi Joelene, I am glad to hear from you. I'm sorry that you are not doing well. I will keep praying for you.
Butterflythree
 
There is always hope!


hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 9/13/2008 1:01 PM (GMT -7)   

Our thoughts and prayers are with you, Jolene.  :-)

Hugs,

Connie


La Bunna
Regular Member


Date Joined Jul 2008
Total Posts : 100
   Posted 9/14/2008 8:00 AM (GMT -7)   
Hang in there Joelene.

I'm praying for you.

Sending you lots of love and loads of hope....
La Bunna

"Courage is the art of being the only one who knows you are scared to death"


candlelight
Regular Member


Date Joined Aug 2008
Total Posts : 54
   Posted 9/14/2008 9:19 AM (GMT -7)   
LaBunna
Thank you how is your hubby doing I have been meaning to ask you what kind of dogs u have. I have a cream cocker spaniel named bj he is 11
and a black cocker spaniel whose name is Bailey he is 7 thank god for them
   Hugs & Hope
      Joelene


La Bunna
Regular Member


Date Joined Jul 2008
Total Posts : 100
   Posted 9/14/2008 12:00 PM (GMT -7)   
YOU ARE RIGHT about "Thank God for them"

I would not have made it thru all this drama, crisis and depression if it weren't for these two mounds of unconditional love and affection!
Not to mention, non stop humor!

Zoey is 2.5 yrs old. She is a scrappy little mutt that seems to be part yellow lab, part springer spaniel, part terrier and part billy goat.:) She is a stubborn girl! But, also very laid back and loves to get comfy and just SNOOZE. She is apricot and cream. Mostly cream.
Nicky is a pure Wheaten Terrier. He is 2.9 years old. He is a bundle of energy... to say the least! Some folks think the Wheatens are too much energy, which is why there are so many in rescues. Nick was actually a 'reject' - not a "rescue". A (stupid) family bought him from the breeder and then proceeded to keep him constantly in his crate. They claimed - at 9months - that he was untrainable, and brought him back to his breeder to get a refund. Jerks. Guess what? After we 'rescued' him from his breeder - Nick was completely housebroken in 2 weeks! And now he sits, stays, lays down and walks on his leash like a prince.

I love 'em, love 'em, love 'em to death. They lay in bed with me when Hubbie is in the hospital and they make me feel very safe and secure. I have "the pack" to protect me!

This is all 'off the track' of this forum.... but a dog lover like yourself will understand where I am coming from.
I'd rather talk about my dogs than anything else!!!
La Bunna

"Courage is the art of being the only one who knows you are scared to death"


exhaused
Regular Member


Date Joined Nov 2007
Total Posts : 445
   Posted 9/14/2008 6:39 PM (GMT -7)   
Labunna

Just wanted to let you know my Mother in Law had to start taking Tramadol for her arthritis because her anti other meds were giving her kidney problems. Once she started the Tramadol it affected her appetite. She lost 30 lbs in about 6 months. It might be that your hubbie lack of appetite is due to the Tramadol. Just a thought.

Also Jerry has started getting blisters on his leg (just one). They are like big water blisters. One big one popped and now he is getting them all over that leg. Just wondering if your hubbie experienced it or if anyone else had heard of this.

By the way, we have a grand daughter named Zoe. Just love that name.

JoAnn

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 9/14/2008 6:49 PM (GMT -7)   

Hmmm...maybe I should ask for Tramadol.  I have a few more pounds I'd like to lose!  smilewinkgrin

JoAnn, are your hubby's legs very swollen and edematous?  When my feet, ankles, and calves were like that, they "wept," but no actual blisters.  If not enough fluid is being eliminated via urine, it has to go somewhere.  Speaking of which, with the 90+ heat we're having and the Lasix I'm on...I sweat buckets outside.

BTW, I'm a cat person myself (have 2, both 18), but the feelings are the same as La Bunna and Joelene about their dogs.

Hugs,

Connie


La Bunna
Regular Member


Date Joined Jul 2008
Total Posts : 100
   Posted 9/15/2008 4:37 AM (GMT -7)   
Hi JoAnn

I am sure the tramadol is affecting his appetitie. Along with all the other drugs. (I can't really eat even if I'm on a simple anitbiotic!)
But, he'll get better as time goes by.

And - blisters? No, hubby never got blisters. He had the dry, scaling skin on his legs and stomach caused by the ascites. (Skin was too stretched out). But, the symptoms of this awful disease seem to go all over the board!
La Bunna

"Courage is the art of being the only one who knows you are scared to death"


exhaused
Regular Member


Date Joined Nov 2007
Total Posts : 445
   Posted 9/18/2008 7:51 PM (GMT -7)   
Hi LaBunna
I have a few more questions for you.  First of all I hope your hubbie is doing good.  Haven't heard from you for a few days.  Jerry is haning in there. One more week before we do blood tests again.  I was wondering if your husband was still on his meds for fluid retention right before his transplant.  I remembered you said he was really swollen.  So I wasn't sure if he had to quit taking them due to Kidney problems or if they just were not working.  No hurry I was just curious.  I hope your getting some rest.  I'm so excited for you that your light at the end of the tunnel is getting closer. 
 
Also, has anyone heard from candlelight.  I'm getting worried again.  The last I heard was Sunday 9/14 and she wasn't feeling good at all.  Also how about John.  OH JOHN, where are you!  Just a couple of words to let us know how you guys are.  PLEASE
 
JoAnn

rainbeau
Regular Member


Date Joined Feb 2008
Total Posts : 39
   Posted 9/18/2008 9:56 PM (GMT -7)   

Hello Joann!! Just wanted to say a Howdy!  hopefully Jerry is holding his own, thanks to you.  the blisters are something new and different.  I am making a note of it...

mr. wonderful has been great and active and back to his old self up until a couple of weeks ago...he is back at the bottle.  so i am sad.

but i cannot control it..am working on me and not him this time.  anywho, i check in here everyday to see if you have posted.  And i just wanted you and jerry to know that you have been a light...an incredilbe light of knowledge and symmetry that makes me feel like i am not alone. mr. wonderful refuses aa...so i told him the other night...baby, I've seen this movie before...pardon me while i check out...i love him madly in the morning, but by the end of the day he is not the same man..

anywho, just wanted to say howdy! and I think about you two daily and you are not alone.

sincerely, rainbeau

 

 


candlelight
Regular Member


Date Joined Aug 2008
Total Posts : 54
   Posted 9/19/2008 6:16 AM (GMT -7)   

Joann

    dont worry all is ok having trouble w/ computer may have to get new one i will call u this weekend

hi to everyone miss you all alot


   Hugs & Hope
      Joelene


exhaused
Regular Member


Date Joined Nov 2007
Total Posts : 445
   Posted 9/19/2008 2:02 PM (GMT -7)   

Hi Rainbeau

I was so glad to hear from you.  You are absolutely right about nothing you can do.  I do remember hanging on to the mornings!!!  Its been so long and are lives are so wrapped up in this disease I had forgot about wanting to have hubbie around in the mornings!!!  I did learn at Alanon that trying to get them to quit drinking is a form of control.  If you hae a video camera you should try to video him in the evenings.  They do not like to see themselves like that.  Just keep working on you.  It does wonders.  Please stay in touch.

 

JoAnn


bratnewton
Regular Member


Date Joined Aug 2008
Total Posts : 131
   Posted 9/19/2008 2:35 PM (GMT -7)   
Rainbeau....

Completely understand about mornings. Of course in all reality, I did not wish mornings as bad until a year ago Aug 23rd when I stopped drinking. My husband still drinks..mostly beer but when you start drinking red beer at 10 AM and still drinking beer at 10PM...gets rough. Then when his best bud comes over, they get drinking whiskey and it is all over. I call it the brown sh%%&. I call my husband when he drinks whiskey..Dr Jekyll, Mr Hyde and the other guy all of whom I can do without. I will say he drinks in his hobby shop most of the time except around dinnertime and then he comes in house and watches TV (except when the whiskey is around). And then there is the smoking. I quit cold turkey July 1st and my husband still smokes. Got him smoking outside though. But come bedtime, all I can smell is beer and cigarettes and it makes me sick. And of course that is all I need with my ESLD, Hep c, and everything that goes with it. I go to AA and sound off there so that helps alot. I know now and regret that I drank and smoked while my boys were growing up. They always told me to quit, how stupid I got when I drank and the "2nd hand smoke".

Hang in there but know that I as well as others understand and sympathize with your situation.
Prayers for you and praying your hubby will stop drinking and face up to your illness in stead of running away like a child. (my opinion)

Take care

Karen

bratnewton
Regular Member


Date Joined Aug 2008
Total Posts : 131
   Posted 9/19/2008 2:40 PM (GMT -7)   
JoAnn

I have the opposite affect with the tramodal, I have been eating alot and especially sweets. Although nnow that I think about it I started taking tramodal (which really doesn't help much with the muscle aches) about the same time i stopped smoking
Take cares and prayers for you and everyone

Karen

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 9/19/2008 2:55 PM (GMT -7)   

Rainbeau, are you going to Al-Anon?  It may help you cope with your husband's drinking.  CoDA (Codependents Anonymous) also has very helpful meetings.

Hugs to all,

Connie

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