La Bunna, I know your hubby wasn't first put on the transplant list in '09, since we're not there yet. Could you correct that, please? Thanks!
La Bunna, thanks! I know that was the longest 6 months of both of your lives!
Silvermint, I'm glad your mom was able to have a transplant that saved her life. However, she has already healed from that, if it's been 6 yrs. Also, an operation doesn't cause diabetes. It may have kicked in around the same time, but operations don't cause diabetes. I suggest you research these things.
John, Congratulations on your transplant! I have not posted here in a long time. But I have spent some time catching up on the post. My husband had his transplant March 16th, 2007 at UAMS in Little Rock AR. He is doing very well and is actively seeking employment. He did shake alot after the transplant and had trouble with sleep. I know it was the prednisone he was taking. He was weaned off of it in 3 months. The anti-rejection drugs can also cause this. It does take a few months for their body's to get accustomed to the new drugs and the "precious gift of life". My husband had diabetes prior to the transplant, it was liver induced. He still has diabetes now, it is controlled with Lantus. It was also found that his old liver did have cancer, when it was biopsied from transplant. He had Pet Scans every 3 months post transplant for a year. Thankfully they have all been negative and now he does the Pet Scans every 3 months. He had to have a hernia repair, caused from the ascites. He also has HepC and will have to do treatment. The hepatologist is hoping to wait for a new treatment, which he believes will be approved in 2012. While the road to recovery may seem long, the road getting to transplant was harder! My husband is a walking miracle and a day does not go by without thanks!! This forum helped me get through some of the darkest days while we waited!! Thank-you Pink Grandma and Connie!
Hi, Teresa!! So good to see you posting and know that your husband is doing so well. And finding out that the old liver was cancerous...whew! I am still hanging in here and doing fairly well, though very tired from having to go out of town over the weekend and trying to play catch-up at home. And Christmas is nearly upon us and I haven't decorated yet or finished shopping...nevermind wrapping and sending!
I don't have to go back to Mayo for blood work and scans until March. So it's good to get a little break. I'm going to have to ask my hepatologist about the new hep C treatment. Don't know if I can hold out that long (2012), but am not really keen on doing the current treatment.
Don't be a stranger here!
Pink Grandma, I have missed you too!!! There is just so much to tell you! Guess I am going to have to e-mail you to catch up! I was glad to see that you were moderating here! Your doing a great job!
Connie, I just got my Tree up today and still have half of my Christmas shopping to do. I meant to say...I just saw on the Pet Scans 3 months..it is every 6 months now. I am hoping Mark can hold out for the new treatment, his viral load is 20 million now. Normal HepC patients have a 50/50 clearance, Transplant patients clearance rate is lower. So we are praying he can wait that long. So far no damage to the liver yet. He has lab work every other month now. He now has annual check-ups at the transplant clinic. I actually think he is healthier than I!!!
Hope that you all have a Wonderful Christmas!!!
Ranger, that's great news that you are doing so well!!
Teresa, from my research, of the 50% who do clear the virus 25% relapse. So it's really only a 25% success rate.