I take my hubby back to the hepatologist for a "visit" on Thursday this week. They are running labs, including MELD score, and I am hoping that they will re-list him. The most recent MELD score he had before being temporarily being inactivated on the list was only 11. Couple of questions....do they re-list at whatever the score is that they run on Thursday?? And, the other part to my question is what circumstances would give him "extra" points on this MELD score?? As sick as he is, it is hard to "accept" the fact that he is not sick enough to get transplanted yet....I know, that just sounds wierd, doesn't it??? He is in so much pain and it so miserable that I cannot see him having to wait forever!!! But I know this is not in my control.......
Hi Mer, I'm no expert but have learned quite a bit in the last six month's! My husband is also very ill (but not enough for a transplant yet) he is on the list with a MELD of 16, it has gone as low as 13 and as high as l7! The MELD is determined by a blood test which includes their blood clotting, bilrubin etc. you can find more information on the National procurement and transplant network. My husband's doctors tell us it could be up to two year's for a transplant but that he can move up if he get's "sicker" geez . Your right, it is out of our control and very frustrating!!!
There is a web site that will calculate the MELD score. You need the three things that Shadowgoast just mentioned. It will calculate it for you. My husband was a 17 for three months then went down to a 12. I have a prescription that I take to a lab monthly to get a new MELD score. I freaked when his score went to a 12. They have told me his MELD will catch up with his body. He has been sick for a year and a half. I have tried with everything I have to understand all of this horrible disease. I finally just decided (due to exhaustion) that I have to take one day at a time. I have noticed that the kidney function seems to make the score go up or down more then the other two blood levels. They also told me that at Vanderbilt. So keep praying and just hang in there Judith. The only thing that keeps me going is the fact that there is still HOPE.
JoAnn, when the liver isn't functioning well, it affects the kidneys and they don't function well, either. In discussing diuretics with my hepatologist last week, she said since my kidneys are working well it was okay for me to reduce my diuretics. Kidney function is determined by the BUN (blood urea nitrogen.) A low number means they are working well. Normal is 6-21. My BUN is always between 13 and 16.
I just looked at Jerry's blood work. His BUN is 26. The blood test before that it was a 31 His MELD was higher then. I'm really concerned about his kidneys giving out. They had his on such high doses of diaretics to keep the fluid down. We finally have that under control. He hasn't been drained in two months. Prior to that it was every week sometimes twice a week. Hae your heard from Candlelight.