MELD score questions

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mer
Veteran Member


Date Joined Aug 2008
Total Posts : 613
   Posted 9/15/2008 6:49 PM (GMT -7)   

I take my hubby back to the hepatologist for a "visit" on Thursday this week. They are running labs, including MELD score, and I am hoping that they will re-list him. The most recent MELD score he had before being temporarily being inactivated on the list was only 11. Couple of questions....do they re-list at whatever the score is that they run on Thursday?? And, the other part to my question is what circumstances would give him "extra" points on this MELD score?? As sick as he is, it is hard to "accept" the fact that he is not sick enough to get transplanted yet....I know, that just sounds wierd, doesn't it??? He is in so much pain and it so miserable that I cannot see him having to wait forever!!! But I know this is not in my control.......

 

Thanks!

Mer 


Judith
Regular Member


Date Joined Apr 2008
Total Posts : 131
   Posted 9/16/2008 9:55 AM (GMT -7)   

Hi Mer, I'm no expert but have learned quite a bit in the last six month's!  My husband is also very ill (but not enough for a transplant yet) he is on the list with a MELD of 16, it has gone as low as 13 and as high as l7!  The MELD is determined by a blood test which includes their blood clotting, bilrubin etc. you can find more information on the National procurement and transplant network.  My husband's doctors tell us it could be up to two year's for a transplant but that he can move up if he get's "sicker" geez confused .  Your right, it is out of our control and very frustrating!!!

 

Judith


shadowsghost
Regular Member


Date Joined Apr 2008
Total Posts : 489
   Posted 9/18/2008 6:52 PM (GMT -7)   
Hi Everyone,,, meld score is based on age, billiruben( actual liver function), creatin ( kidney function) and INR which is a group of test for platelets (clotting) red cell count and oh darn i forgot. My hubby bounces between a 17 to 24. Your most recent labs determine your meld for that time. Meld scores are usually very fluid and have to be kept up to date when you get around 20 they want labs monthly as you get higher it becomes weekly.
Hope i answered your question.
Sue
When I started counting my blessings my whole world turned around.


exhaused
Regular Member


Date Joined Nov 2007
Total Posts : 445
   Posted 9/18/2008 7:16 PM (GMT -7)   

Hi Everyone

There is a web site that will calculate the MELD score.  You need the three things that Shadowgoast just mentioned.  It will calculate it for you.  My husband was a 17 for three months then went down to a 12.  I have a prescription that I take to a lab monthly to get a new MELD score.  I freaked when his score went to a 12.  They have told me his MELD will catch up with his body.  He has been sick for a year and a half.  I have tried with everything I have to understand all of this horrible disease.  I finally just decided (due to exhaustion) that I have to take one day at a time.  I have noticed that the kidney function seems to make the score go up or down more then the other two blood levels.  They also told me that at Vanderbilt.  So keep praying and just hang in there Judith.  The only thing that keeps me going is the fact that there is still HOPE. 

 

JoAnn


hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 9/18/2008 7:43 PM (GMT -7)   

JoAnn, when the liver isn't functioning well, it affects the kidneys and they don't function well, either.  In discussing diuretics with my hepatologist last week, she said since my kidneys are working well it was okay for me to reduce my diuretics.  Kidney function is determined by the BUN (blood urea nitrogen.)  A low number means they are working well.  wink   Normal is 6-21.  My BUN is always between 13 and 16.

Hugs,

Connie


exhaused
Regular Member


Date Joined Nov 2007
Total Posts : 445
   Posted 9/18/2008 8:00 PM (GMT -7)   

Connie

I just looked at Jerry's blood work.  His BUN is 26.  The blood test before that it was a 31  His MELD was higher then.  I'm really concerned about his kidneys giving out.  They had his on such high doses of diaretics to keep the fluid down.  We finally have that under control.  He hasn't been drained in two months.  Prior to that it was every week sometimes twice a week.  Hae your heard from Candlelight.

 

JoAnn


mer
Veteran Member


Date Joined Aug 2008
Total Posts : 613
   Posted 9/18/2008 8:21 PM (GMT -7)   
Hello, all!! We went to the hepatologist today and they did do MELD labs, but the labs were not back yet by the time we saw the doc.....hopefully a phone call tomorrow. However, that is all a mute point due to the fact they my husband has a tooth that is bothering him and the doc won't relist him until we get the tooth fixed......grrrrrrrr!!  cry So, calling the dentist tomorrow and hoping to get that all worked out. The dentist told us last week they would not touch him until clearance from the doc.....so, the doc gave us a "permission slip" today with copy of lab work showing his platelets are okay......this is so frustrating because it's like a carrot dangling in front of us and everry time we make a step toward that, something happens...sorry did not mean to whine. But, with regard to his last labs from 3 months ago....his bilirubin has been elevated, INR at the higher end of "normal" range and creatnine is okay.....his last MELD score was 11 before get got put in inactive status. So, anxiouis to know what it really is. He is on diuretics right now, and so we have not had fluid retention too bad, blood pressure today was really high, so we are also now on bp medication. He is just so tired and weak right now.....so, trying to take advantage of good days when we have them......thanks for all the info
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