Went to UM yesterday. Saw the former head of the Hepatology dept.
He reviewed my records, biopsy results, blood work results, and checked my hands and eyes and said I don't have chirosis, and does not agree with the other Dr. about needing a transplant. He said I definately have AIH , and he does not accept the Chronic Fatigue syndrome diagnosis over 20 years ago. He feels it was AIH all along.
He wants to see the actual slides from the biopsy, and wants me to try Imuran again, I had tried it before but I felt like crap, but that could have been from being temporarily drug induced diabetic which was not under control at the time.
I am not diabetic now. Everything went back to normal with the reduction of the pred.
I am obviously very relieved, but still don't know what to think..
I have 2 totally different opinions.
I feel ok, tired sometimes, but generally ok. I have energy, I am not yellow.
Going to get more blood drawn today, and start Imuran tomorrow, blood will be checked monthly, and Ultrasound every 6 months.
I am just numb from over the past 1 1/2 years from almost dying, as my liver was shutting down when I first got sick. To going thru hell for over a year, then being told I need a liver, and now feeling ok, and being told I don't need al liver. Does this make sense to anyone.... I just want to cry and its a mixture of tears of joy, to sadness...