Someone Help!!!!! Insomnia

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lavendar
Regular Member


Date Joined Nov 2007
Total Posts : 450
   Posted 9/23/2008 2:18 AM (GMT -7)   
I really am hoping someone can offer me some advice. Most people who have this terrible disease , (as I understand) sleep all the time. I"m the Horse of a Different Color.
I know why I am having problems sleeping. Im afraid I will sleep walk and do who knows what. I was told not to take benzos. for insomnia by the eveluation phys. I was taking them for severe anxiety attacks. and  occationally for insomnia but can not take them now, because of my upcoming routine blood work. The nurse cordinator had suggested Benadryl but I have sinusitus and that did not work for me. On my report they suggested Ambion but didn't give me a prescription . My Dr. prescribed Temazapam (which is a benzo.) so that was money down the drain. When I figured it out.
I am so tired and know I need my rest but my mind is spinnig with all kinds of thoughts. I am conserned about going through another Echocardiogram. Which is on my itinerray for my next visit to Mayo. I have hypertension and the last time I thought I would have a heart attack. That was the scarriest test I had. Since I haven't been able to exercise for the past 5 months due to my foot surgeries. I am really out of shape. To top it all off I can't take my BP meds. prior to the test. 
Brain fog and no sleep. How does that sound . I feel like a zombie. (must feel eyes eyes ). The other morning I went into the kitchen to find , it seemed like an entire bottle of lactulose all over my kitchen stove and floor. rolleyes rolleyes Can't remember spilling it. I may have done it in my sleep. My husband tells me , when I do doze off I talk alot and make motions with my hands. I know I dozed off the other day and woke up telling my grandson "Don't Do That" poor baby was just sitting there watching his cartoons. I need sleeeeeeep any suggestions. Ive already tried the relaxing music. It worked for a while. turn turn turn turn june

CaryF
Veteran Member


Date Joined Nov 2007
Total Posts : 505
   Posted 9/23/2008 7:02 AM (GMT -7)   
June,

I know I am worthless without rest. I take Ambien the controlled release kind. It works really well for me.

Best,
Cary

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 9/23/2008 12:57 PM (GMT -7)   

June, I have that problem, too.  I had asked my primary care doc for Ambien, but she refused.  She does not want to prescribe any type of sleep med due to my (very distant) drug history.  I really should ask my hepatologist for something...but I don't see her for 4 mos.  Anyway, I am just up very late--usually to 3 AM or later--and then sleep until 2 or 3 in the afternoon.  I can't get much done in the daytime that's left to me, and nothing at night.  I do take Flexeril (a muscle relaxant) to help me sleep, and was also prescribed Paxil for sleep--but it makes me gain weight, and over time it makes me too groggy the next day.

So I have no solution for you.  I'm sure you've tried the dark bedroom, nothing active or upsetting prior to bed, no TV in bedroom, etc.

If you come up with a solution, please post for your fellow insomniacs.   smilewinkgrin

Hugs,

Connie



Butterflythree
Veteran Member


Date Joined Oct 2007
Total Posts : 954
   Posted 9/23/2008 6:46 PM (GMT -7)   
June, I am so sorry you are having so much trouble sleeping. My husband uses Benadryl, but I know you said it doesn't work for you. I wish I had an answer for you. You are still in my prayers.
Butterflythree
 
There is always hope!


hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 9/23/2008 11:23 PM (GMT -7)   

Benadryl does nothing for me, either.  I literally laugh when they bring that to me in the hospital, and tell them to take it back...it's wasted on me.

C.


lavendar
Regular Member


Date Joined Nov 2007
Total Posts : 450
   Posted 9/24/2008 2:10 AM (GMT -7)   
Thanks everyone for just being here. At least I know it isn't just me. (not that it is any consolation to every one else with this problem. I just sometimes am overloaded . This "unknown" disease really caught me off guard. Especially since I never had any symptoms ,till it was to late. The only thing I know is that it may turn out to be AIH and is compared to NALD. Although I have never been overweight till now, ten extra pounds in a year and a half. Have been told it is one of the most aggressive of the liver diseases, and may turn for the worst within 48 hours. Three of the Dr.s on the transplant team are hepatologysts. I guess I should ask them for a prescription for Ambion although I don't quite understand why that is safe and the benzos are not.
Connie on week ends I get to sleep till three then I feel great. During the week my husband and I take care of our grandson and he really keeps me going. I am trying to teach him how to read before he goes to kindergarden, hopfully he will be like my son and be able to read to his class before they learn to read.

I read the posts every evening and pray that everyone is doing as well. as possible. I went to a very special chapel where miracles are supposed to happen and lit a candle and prayed for all of you. take care and thanks . LOL june

jvargo
New Member


Date Joined Aug 2008
Total Posts : 13
   Posted 9/24/2008 7:21 PM (GMT -7)   
My boyfriend likes to go for drives...Recently went at 3am for about 1 hour and he slept the whole time...We came home and went right to sleep for about 1 hour and woke me up to see when we could go for our drive...uuuggghhhh!!!! Couldnt remember it.

lavendar
Regular Member


Date Joined Nov 2007
Total Posts : 450
   Posted 9/25/2008 1:24 AM (GMT -7)   
jvargo:

I wish I could get my husband to take me for a drive at 3:am . That really does work though. When we go out for a scenic drive. I sleep like a baby. My grandson and I found ouselves parked back home in the dark garadge after our last drive . We both had a very nice long nap. june

Butterflythree
Veteran Member


Date Joined Oct 2007
Total Posts : 954
   Posted 9/25/2008 6:29 AM (GMT -7)   
June, Thanks for keeping us all in your prayers.

Connie, Benadryl doesn't help my daughter either. She says it actually wakes her up. I think it must have an opposite effect on some people. It knocks me right out.
Butterflythree
 
There is always hope!


hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 9/25/2008 9:09 PM (GMT -7)   

June, that was very sweet of you to think of us at the chapel.

Kids that age wear me out just looking at them...they are so energetic!  My youngest g'daughter was born the year prior to my hep C diagnosis.  I didn't keep her often overnight, but when I did she absolutely did me in.  When she got a little older, it was okay as she could entertain herself.  I read to her from the time she was a baby, as I did with my daughter and other grandkids.  They all became proficient readers and also read for pleasure.  I was reading before I started first grade (no kindergarten back then), as did my daughter and grandkids...before kindergarten for them.  :-)

I use Benadryl for my sinus allergies occasionally.  It dries up my nose, but I have no side effects from it at all.

I can never sleep in a moving vehicle, not even on a plane.  rolleyes
 
Hugs,
Connie

bratnewton
Regular Member


Date Joined Aug 2008
Total Posts : 131
   Posted 9/26/2008 7:11 PM (GMT -7)   
my hepatologist prescribed Remeron to be taken in the evening. It was to replace my ativan for anxiety, panic attacks and depression and also Temazapam which was to help me sleep. Remeron took a good month to kick in. It doesn't work as well but it helps.
I still have my nights, like last night when I can't fall asleep until about an hour before I have to get up and get my kids off to school

a short update on myself...went to primary Dr yesterday and for monthly bloodwork. My MELD score is way down to 6 but my ammonia doubled to 54. I had told my Dr I had been feeling very punky this past month. I guess this was why. Got to double up on lactulose.
While I was at TP eval in August and at a support group meeting a tp recipient said and I quote"LEARN TO LOVE LACTULOSE"

My thoughts and prayers to all......anyone heard from JohnCT, I miss his posts. Hope you are doing OK if you read this. I kknow you are going through quite an ordeal right now.

Again thanks to everyone for their input , thoughts, friendship and info and just saying HI !!


Karen
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