First if all, I would like to "congratulate" you guys.....I know that sounds so weird, but in a way, it's like you have finally reached a goal at the end of a verry looooonnggg race!! When my husband was referred by his PCP to the transplant center we are near, and we went to evaluation, got accepted, etc....I was almost jumping for joy....mainly because we have been battling this for four years and finally feel like we are in a "direction" toward healing, if that makes sense!!! He was taken off the list temporarily, but we were told by our coordinator today that we can be re-listed....so high tailed it down to the hospital for bloodword so that hopefully by this time tomorrow will be back on the list....whew....got all that out!! Secondly, I wanted to tell you thank you for mentioning the kidney issues!! My husband has had alot of trouble breathing lately, went for a pulmonary work up (which is what got him off the list) and also a nephrologist......pulmonary is fine....nephrology says not bad enough to keep him from being transplanted, blah, blah blah....but, he still has trouble breathing from time to time and also has protein in the urine.....cannot help that the kidneys are finally being affected....he is also complaining alot of his back hurting, as well......I though maybe I was going crazy until I read your post about the trouble breathing, etc.....so, I find "comfort" in knowing that maybe I am not crazy after all...I also am a little worried about what his MELD will reveal, because oddly enough, the last several days we are having the best we wee have had in a very long time.I will pray for you guys, and pray that a donor becomes available VERY SOON!! You hang in there....try to get some rest so you can be able to take care of him, as well......
Congratulations, that is the greatest news and has made my day. Take care of yourself, you still have a long way to go, but know that is all a means to him getting better and you getting to get married and having a great life together.
That is such wonderful news! We hear so much bad news here, it lifts everyone's spirits to know that things can go well and have a (so far) happy outcome! I wasn't aware that a bile tube stays in that long. Is this standard?
Please continue to post and let us know how the "home recovery" is going, once you get there.
Thank you so much for keeping us informed on your fiance's transplant. My husband is on the list and we also live 3 hrs from the hospital. His MELD was 17 and 18 for about 8 months now is a 13. There have been times when I didn't think he was going to make it. They now have his fluid problem under better control and he's feeling better (probably due to 2 blood trunsfusions in the last week.) Pleae keep us posted about his condition as it give us all so much hope. Also what do you mean by and "extended critea" liver?