I'm doing a different Hep C treatment

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CaryF
Veteran Member


Date Joined Nov 2007
Total Posts : 505
   Posted 9/25/2008 6:47 AM (GMT -7)   
I've been approved to do Valeant Infergen. Its not new, just Pegasys x 7, interferon every day + similar higher doses of Ribaviran. Some European studies have shown these high doses to be very effective in eradicating the virus - if the patient completes and lives through the treatment.
 
I was approved based on the folowing criteria:
 
- I've done Pegasys twice, was a responder, but did not clear the virus. I'm very famliar with the side effects and am willing to take all the added drugs to combat them. I'm a 1a
- I'm under 50
- I'm weight appropriate (5'4", 130) one can not be overweight as the virus loves fat
- I'm Caucasian
- I'm considered very healthy generally with a great attitude, diet & lifestyle 
- I have excellent Drs. I trust & a great support system
- My Drs consider me a warrior
- I'm going to take this chance - if only 20%
- My ins. will cover it (now or never I figure - before they go broke)
- I've talked to 2 people who did it and cleared - still clear after 2 years - they almost died - but it worked 
 
I will have extra counseling assistance from Valeant & an on call person throughout. A few other people at Temple University are doing it too. I have their names & #s so we will have a built in support group. I plan to start before the end of the year. I'm doing Procrit & Neupogen now to build blood cells and ramping up on anti-depressants - doubling my dose. I'm expecting a 48 weeks acid trip - I'll keep you all informed as I can.
 
Thanks for your ongoing support. You are all wonderful folks & deserve only the best.
 
Cary
 
 
 
 
 
 

Pink Grandma
Veteran Member


Date Joined Nov 2006
Total Posts : 2445
   Posted 9/25/2008 5:43 PM (GMT -7)   
Wow Cary, I admire your courage so much. I hope this new treatment goes easier on you then it did on others.

Thank you for sharing your wisdom with everyone. It's always better to hear things from people who have actually experienced them.

You will continue to be on my prayer list. Good Luck.......
Pink Grandma
Forum moderator-Hepatitis

When the going gets tough....the tough get going! Don't always know where I going but I get there anyways.


frustrated_n_wv
Regular Member


Date Joined Aug 2006
Total Posts : 469
   Posted 9/25/2008 5:59 PM (GMT -7)   
Cary

Congrats on being a candidate for this new treatment. I wish you the best of luck that this will be the one that clears you of this disease. As PG has said I admire your couirage and committment to getting well. I will keep you in my thoughts and prayers.

Lucy

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 9/25/2008 8:56 PM (GMT -7)   

Cary, it's terrific that you are willing to tackle this treatment.  It sounds pretty harsh.  I applaud you!  I'm sure I wouldn't be eligible due to age, and perhaps also because of the previous liver cancer.  Otherwise, I meet the criteria.

Best of luck to you!  It would be great if you could post every so often and let us know what you are experiencing and how you are doing.

Hugs,

Connie


Butterflythree
Veteran Member


Date Joined Oct 2007
Total Posts : 954
   Posted 9/26/2008 6:37 AM (GMT -7)   
Cary, Good luck with treatment. I agree with everyone else. You have a lot of courage, and I also would like to thank you for your knowledge. Your posts are always very informational. I will be praying that treatment is not as hard on you.
Butterflythree
 
There is always hope!


CaryF
Veteran Member


Date Joined Nov 2007
Total Posts : 505
   Posted 9/26/2008 9:37 AM (GMT -7)   
All,

Thanks for your kindness and support. I will definitely check in as I can as I think this experience will be valuable for several of us.
So far I've learnt how very important it is to be entirely prepared for treatment by attempting to nip some of the side effects in the bud before
they occur. Side effects are still expected to occur but I am building an little arsenal now by increasing my red & white blood cells & hematocrit
because they will drop. The side effects of these medications is pain - as they force large bones to grow. I'm also ramping up to a very high dose of anti-depressants with the plan to be on 2 anti-depressants (to cover all the SSIs?) before my 1st shot. I'm also planning to be a Vegan throughout treatment.

Thanks again,
Cary

bratnewton
Regular Member


Date Joined Aug 2008
Total Posts : 131
   Posted 9/26/2008 6:37 PM (GMT -7)   
Cary, I admire your strength and your willingness to do this treatment . I'll be praying for you and keep up yoiur positive attitude

Karen
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