Welcome to the forum!! I think you will find this forum to be very informative. In reading your post....first of all, has the doctor run tests to find out what liver disease she has??? Is this a regular primary care doc??? I think you need to see that she gets in with a GI doc or more importantly a hepatologist....there is no reason she should have to wait a year to get any other follow up!!! depending on what liver disease she has, there may be some treatments out there, or possibly a candidate for transplant...but, she needs to see a liver specialist, no a regular doctor. There are several threads that are very educational on end stage disease....and I would encourage you to read them. Also, with regard to some of the symptoms, there are medications that can help......my husband has stage 4 cirrhosis and hepC, and is on a transplant waiting list waiting for a new liver, and he is on Lactulose to help w/ high ammonia levels (which causes confusion, etc) and also diuretics to help with fluid retention. Know that we are here to help you.....do ask lots of questions and get educated, educated, educated!!!
Hello Generation and welcome to HealingWell. Mary gave you excellent advice. Please do go over some of our old posts. You should find out many of the answers to your questions.