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ABM
New Member


Date Joined Oct 2008
Total Posts : 7
   Posted 10/8/2008 8:11 AM (GMT -7)   
My husband had a liver transplant on June 24, 2008. He has had a few complications. His incision has opened up twice in two different places, and he has had to return to surgery to repair the hernias. His last surgery was a little over three weeks ago.

He is having the problem with low magnesium. I know this is not uncommon with transplant patients, but even the doctors and nurses are having a hard time understanding why he seems to be having more trouble than most. He takes 3600 mg of mag oxide each day and still has to go in twice a week to get a mag infusion of 4 grams each time. This takes about 4 hours each time he has to have it. I would like to hear stories from others who have had this issue to deal with and how long it has taken to even out. He is also confused some of the time, and his memory is not good. From what I've read and from what the doctors way, I believe this is caused by the overabundance of anesthesia due to the three surgeries in three months AND by the low magnesium. I'm just hopeful that it gets better over time. I realize three months is not very long. I have read that it is advisable to start magnesium treatments prior to the transplant . . . or even during. Unfortunately, this was not done in my husband's case. We didn't know this was an issue, and no one mentioned it.

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 10/8/2008 12:56 PM (GMT -7)   

ABM, welcome to the forum.  And congratulations to you and your husband on the transplant!  I have hep C, cirrhosis, and had liver cancer necessitating removal of the rt. lobe of the liver.  However, I haven't had a transplant (yet!) and I had problems with low potassium as the result of diuretics, not low magnesium.  We have finally gotten that straightened out.

I had 7 major surgeries in 5 years, and had a lot of memory problems.  Still have some.  I'm convinced that a lot of the "brain fog" was the result of all the anesthesia.  A nurse once told me that the side effects from anesthesia can last up to a year (per anesthesia.)


Hugs,
Connie
 
"But that was yesterday, and I was a different person then."
 
Alice in Wonderland, Lewis Carroll


ABM
New Member


Date Joined Oct 2008
Total Posts : 7
   Posted 10/8/2008 2:18 PM (GMT -7)   
Connie, thanks for the response. I wish you well in your journey. Sounds like you may be a transplant candidate as well some day. I guess I just have to be patient with the "brain fog" and hope it clears up for the most part. That is not something they had warned us about and so it has been a little disconcerting. My husband was diagnosed with liver cancer as well. The doc said if he operated to remove the lesions, they would just grow back. That's why he wanted him to go the transplant route. As it turned out, there was no cancer; but there was cirrhosis so it really needed to come out anyway. Can your Hep C be treated to slow down the cirrhosis?

Judith
Regular Member


Date Joined Apr 2008
Total Posts : 131
   Posted 10/8/2008 3:12 PM (GMT -7)   
Hi ABM and my congrat's to you both also yeah .  My husband is currently on the transplant list and has been taking Mag.+ protein orally for several months
as well as vitamin A (25,000 units 3X daily)  because he is deficient in both.  Thank you for the head's up, I need to be prepared for anything and everything with all of this!  Please keep us advised ok,
 
 
Judith

ABM
New Member


Date Joined Oct 2008
Total Posts : 7
   Posted 10/8/2008 3:53 PM (GMT -7)   
Hi, Judith. My heart goes out to you. We were on the transplant list for almost 2 years, and it can be very draining. Hopefully, you will not have to wait that long. It's a good thing your husband is taking those meds pre-transplant. That should help him. I only wish we had known about that beforehand. Maybe because we were on the list so long, they didn't know when to start giving him the meds. My husband is a large man, and they just weren't getting any big livers. Oh well, what's done is done. We will live with the consequences. The doctors tell us it may take awhile but that things will eventually even out. Having been through this so recently, everything is pretty fresh on my mind. Please don't hesitate to let me know if you have questions. There's another complication that sometimes comes into play with liver transplant patients. Kidney failure can be a big issue, but it is most often only temporary. My husband had to have dialysis several times while he was in the hospital. Thanks goodness things turned around so he didn't have to continue with that. We also didn't know that the gall bladder is automatically removed with the liver. That was a surprise. I hope you don't have to wait long. Best wishes. Remember to write if you have questions or concerns.

Butterflythree
Veteran Member


Date Joined Oct 2007
Total Posts : 954
   Posted 10/8/2008 4:25 PM (GMT -7)   
I just wanted to welcome you to the forum ABM and say that you and your husband will both be in my prayers.
Butterflythree
 
There is always hope!


ABM
New Member


Date Joined Oct 2008
Total Posts : 7
   Posted 10/8/2008 5:49 PM (GMT -7)   
Thank you butterflythree for your welcome and for your prayers. We appreciate them, and I KNOW they help.

Pink Grandma
Veteran Member


Date Joined Nov 2006
Total Posts : 2445
   Posted 10/8/2008 7:37 PM (GMT -7)   
Hi ABM, I glad you found us too. We could use more active post- transplant members. We have so many pre-transplant members that have a lot of questions about the transplant process.

Thoughts and prayer for a full recovery for your husband....and a new beginning for you both...
Pink Grandma
Forum moderator-Hepatitis

When the going gets tough....the tough get going! Don't always know where I going but I get there anyways.


exhaused
Regular Member


Date Joined Nov 2007
Total Posts : 445
   Posted 10/8/2008 9:21 PM (GMT -7)   

ABM

It is so glad to hear from you.  I have been wondering about the kidney problem.  Wouldn't you know it I got my answer from you.  I have been concerned my husbans kidneys.  I do know that the kidney function is a big part of making the MELD go up.  My husband was an 18 for quite some time and is now a 13.  We finally got the fluid problem under control after a year.  One thing I need to check is the magnesium.  My husband is on the list at Vanderbilt and they haven't told me a thing about magnesium.  He does take a multi vitamin every day.  Also I wanted to ask you if your husband had a lot of Blood tranfusions while he was waiting.  My husband has been getting them now about every 6 weeks.  I forgot to welcome you to the forum.  I think you will be a big help to our members waiting for a liver. 

Thanks Again

JoAnn


hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 10/8/2008 10:05 PM (GMT -7)   

ABM, I agree...you will be a valuable asset to this forum.

My gall bladder was also removed when they took the whole right side of the liver. 

ABM, I am not seeking treatment at this time for the Hep C.  I hear it is brutal and I'm basically still recovering from the last surgery (incisional hernia repair.)  The surgeon had told me that if the remaining lobe of the liver gets cancer, I would then need a transplant.  However, my hepatologist told me that they will keep a very close check on me with both CT and MRI scans, so if something is found it will be in the beginning stages and they can treat it.

Basically, I am just eating a very liver friendly diet--lots of fresh fruits and veggies and little meat.


Hugs,
Connie
 
"But that was yesterday, and I was a different person then."
 
Alice in Wonderland, Lewis Carroll


frustrated_n_wv
Regular Member


Date Joined Aug 2006
Total Posts : 469
   Posted 10/10/2008 3:26 AM (GMT -7)   
ABM

Just wanted to add my welcome to you and my best wishes to your husband for a full recovery. It is wonderful to hear from someone that has been through this process and made it through to the other side. It gives us all hope.

Lucy
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