Groomergirl, I am so sorry you are seeing your husband go through this. I have bumped a thread about new Hepatitis B treatment to the top of this forum. Perhaps you will find some information there useful. Basically, it involves low-dose Naltrexone combined with alternative therapies.
Your husband's diet should be high in fresh fruits and vegetables, and no red meat. Fish and poultry are okay. The liver has a difficult time processing red meat, which is the reason for eliminating it. It also causes inflammation. A good diet can go a long way towards better health.
His lack of concentration can be a symptom of encephalopathy. Usually Lactulose is prescribed for that. Ask his doctor about the possibility of your husband going on Lactulose. He may feel he does not need it yet.
I'm sure you will find a lot of information and support here.
Post Edited (hep93) : 10/12/2008 10:29:21 AM (GMT-6)
Butterfly, I know it must be discouraging. Unfortunately, fatigue is a big part of liver disease. I usually sleep for 10-12 hours at a stretch if I don't have somewhere to go or some other reason for getting up. And of course it doesn't solve the fatigue problem. Some days I really must force myself to get out of bed and get moving. Believe me, your husband misses doing things and being more a part of your life, also.
You know we are always here for you.
Welcome to the forum!! I think you will find that this is a very educational place to be and also very supportive. My husband also has HepC and cirrhosis of the liver. He was diagnosed 4 years ago with the HepC and cirrhoses, stage 4, and really did not start having major problems associated with it until the last couple of years. He tried the interfuron treatments, but had to discontinue, and most recently have been put on the transplant list. He also goes through phases where he has NO energy what so ever! Right now, he is sleeping, has been sleeping since about 2:00 yesterday afternoon. When he gets up it is not for long periods of time. I don't know so much that it is caused by the cirrhosis as it is the hepatitis, which can really make you exhausted, achy, etc....as far as "time frames" go, it really depends on what stage of cirrhosis, etc.....some people can live for years with cirrhosis. But, they have to make some major lifestyle changes. No drinking what so ever, watch the protein, especially red meats, etc.....this disease affects everyone differently. I am so sorry you are having to go through this, but know that we are all here for you......
Groomergirl, is your husband on blood thinners? Is his blood not clotting as it should? I'm trying to determine why he has frequent nosebleeds. Have his doctors said anything about it? Liver disease can affect the blood's ability to clot. That is why when routine blood work is done on hepatitis patients, it always includes a PT and PTT. Bruising easily is something liver disease patients also experience. I find bruises on my legs all the time, and have no idea how I got them. It doesn't take much for me to get bruised. I can understand your husband not wanting to expose anyone to his blood, but it takes more than just getting his blood on someone for them to contract hep B from him...such as an open cut or sore on that person's body which his blood gets on. When he has blood drawn or has other invasive procedures, he should always let the tech or doctor or whomever know that he has hep B--which he probably already does--so they can wear gloves and possibly masks or goggles. I have that same concern as a hep C patient. If I cut myself and am bleeding....even when I'm alone...I instinctively panic a bit--just a knee-jerk reaction.
For anyone who might not know, the correct way to stop a nosebleed is to pinch the nose on either side with middle finger and thumb and lean forward with the head almost between the knees. Maintain that for a minute or so and the nosebleed should stop.
Post Edited (hep93) : 10/13/2008 8:27:39 PM (GMT-6)