It's official - Off the UNOS Transplant list until / unless

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JohnCT
Regular Member


Date Joined Mar 2008
Total Posts : 202
   Posted 10/15/2008 11:59 PM (GMT -7)   
Hi all,

I hope that you are all doing as well as can be expected. We all know that if we're on this forum, things aren't normal.

The letter came today: UNOS has taken me completely off the list due to the throat / neck cancer. I was hoping for simply an 'inactive' status that could be reviewed after 6 months of remission and doctors' review. They left the door open to get back on the list, but without any specific requirements to meet.

Fortunately, the cancer is easily treated; unfortunately, it has a 50% recurrence rate.

In my work during the mid-70's, I used to spend one week a month in Vegas and understand statistics. This means I see two things: first - not much attraction to gambling since the odds almost never favor the player (craps, the exception; cards, except for the house overhead); and second, cancer 50% recurrence is only a number, not looking at the particular case - its treatment (sophisticated), location (well understood) or stage (localized).

But, I ramble. Morphine and I and Norah Jones for music.

Goodnight, be well, John
I have to get up the creek! Now where's that paddle?
Mind-fogged again.


Butterflythree
Veteran Member


Date Joined Oct 2007
Total Posts : 954
   Posted 10/16/2008 6:14 AM (GMT -7)   
John, I'm sorry to hear the news about the transplant list. I know that you are going to beat this cancer and be back on the list in know time. I also believe that you are going to beat it for good. No recurrence for you. So, my bet is on you. You hang in there John. You have been on such a tough road, but things are going to get better. I am praying everynight for that. You hang in there.
Butterflythree
 
There is always hope!


Pink Grandma
Veteran Member


Date Joined Nov 2006
Total Posts : 2445
   Posted 10/16/2008 6:16 AM (GMT -7)   
Oh John, I am sorry they took you off the list. Miracles do happen.....everyday.........with the door still open... there's always hope.
God has a plan for you and there is a reason for everything that happens. So hang tough and don't give up. Hope you had a restful sleep.

Thoughts and prayers.........
Pink Grandma
Forum moderator-Hepatitis

When the going gets tough....the tough get going! Don't always know where I going but I get there anyways.


Judith
Regular Member


Date Joined Apr 2008
Total Posts : 131
   Posted 10/16/2008 10:30 AM (GMT -7)   

John,

I too am sorry to hear your news shocked .  Norah Jones is a good choice also maybe some Clapton!  I am not good with words but will keep you in my prayers,

 

judith

 


hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 10/16/2008 4:19 PM (GMT -7)   

Well, that's crappy news!!  mad    However, I do feel you will beat the cancer...and hopefully have a long enough period of remission that they will consider relisting you.  If not...you can join me in living the most health-conscious life possible and keeping the liver disease from progressing.

How much more chemo must you undergo, or are you done with that?  How about the radiation?

My thoughts and prayers are with you, as always.


Hugs,
Connie
 
"But that was yesterday, and I was a different person then."
 
Alice in Wonderland, Lewis Carroll


bratnewton
Regular Member


Date Joined Aug 2008
Total Posts : 131
   Posted 10/16/2008 7:40 PM (GMT -7)   
John

I wish they could be on the other side of that letter. well not really cause I wouldn't wish this disease on anyone. Well as already stated, things happen for a reason. Hope the chemo kicks ass and u get back on the list again shortly.
My thoughts and prayers are with you tonight and every night

Karen in Nevada (45 miles no of Las Vegas.no gambling for me)

okielady
Regular Member


Date Joined Sep 2007
Total Posts : 77
   Posted 10/16/2008 8:51 PM (GMT -7)   
John
Take my word for it, you don't want a transplant until you beat the cancer.  The cancer will go crazy and I don't believe there is any beating it then.  Sometimes I wish we had know Jerry had cancer before his transplant, but then we wouldn't of had this year that we have had as  of the 17th of Oct.  His cancer is slowly, sometimes quickly, but surely killing him.  So have patience, which I know is easy for me to say, because I'm not where you are and going thru what you are, but I'm in my own hades here watching Jerry.  Nora Jones sounds good to me.
Helen

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