My father and liver disease

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MMB
New Member


Date Joined Oct 2008
Total Posts : 2
   Posted 10/30/2008 9:23 PM (GMT -7)   
I found this forum while researching what I went through the past month and a half.  Not really what I went through, what my dad went through.  We just had his funeral last Friday and I am reeling for answers, because he had no advanced healthcare directive and it was all on my shoulders at the end.  I read on these forums these people who had miraculous recoveries...I'm so happy for you.  My dad was at a VA hospital for over a month in ICU, and despite what some people say about VA hospitals,  I felt that he had he had great care.  But I also watched him suffer as he had severe infections, three chest tubes draining his lung from an infection abcess that was growing on his liver.  This all happened seemingly over night.  It is so confusing but I have to believe he had several of these issues masked by his steriod use (He was a severe asthmatic and was on Predisone for years). 
Am I looking for a shoulder to cry on?  Probably a little bit.  I'm looking mostly for answers.  I spent almost every day of the past six weeks watching my dad die of liver disease, of some sort.  Cirrhosis? Probably.  When all of the doctors on every team tell you that he will not leave this hospital, I guess you aren't supposed to give in to that but I guess I did.  I guess it's not like what you see on the movies... without an advanced healthcare directive, I had to base my decisions on what my own will states.  I have ordered an autopsy and will not have those results for a few weeks.  I think that will help close this door.  My dad was only 64, but did have a few medical issues such as irritable bowel syndrome, maybe hepatitis at one time but not while he was in the hospital.  The infection they think started in his bile ducts, and his liver could not start to function again as it couldn't completley rid itself of the infection despite the draining.  Towards the end he had esophigal bleeding as well as very low blood pressure, and several other issues.  His white blood cell count never stablized.  It is so frustrating because he was definitely not a candidate for a transplant due to the fact that he was septic with infection.  But nobody could tell me anything specific except the fact that he wasn't going to make it.  My dad was a great man and I feel like this all could have been avoided. 

MMB
New Member


Date Joined Oct 2008
Total Posts : 2
   Posted 10/30/2008 9:26 PM (GMT -7)   
I forgot to mention that my father was not an excessive drinker his entire life.  He did have a few beers from time to time but I would say average to slightly above average for his age at best. 

hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 10/30/2008 9:53 PM (GMT -7)   

MMB, I'm very sorry for your loss.  I think you will probably find more answers through the autopsy than by anything we can tell you.  I have never heard of someone having liver failure as a result of a bile duct infection, but apparently that's what happened to your dad.  The infection gets into the blood stream and if he didn't respond to antibiotics, he became septic.

I wish I could tell you more, but without more information it's impossible.  He didn't seem to have the risk factors for liver disease.  I'm not sure if there is a correlation between steroids and liver disease.  That might be one possibility.  You may never fully know what happened.  It's best if you can remember that he is no longer suffering and is now at peace, and just recall the good times before he became ill.

Big hugs,
Connie

Butterflythree
Veteran Member


Date Joined Oct 2007
Total Posts : 954
   Posted 10/31/2008 6:57 PM (GMT -7)   
MMB, I am so sorry for your loss. I wish that I had answers to give, but I don't. Liver disease can be so confusing and heartbreaking. My dad is 63, and I don't know what I would do if I lost him. My husband is 44 and suffers from cirrhosis and hep C. I know that you must be suffering so much heartbreak right now. I wish that I could find the words to make you feel better. Your dad is in a much better place now and will never have to suffer again. I know that you have probably heard those words a hundred times by now. I will pray for you and your family. I hope you get some answers from the autopsy.
Butterflythree
 
There is always hope!


Raverbavers
New Member


Date Joined Nov 2008
Total Posts : 2
   Posted 11/12/2008 1:08 AM (GMT -7)   
Dear MMB: I am so sorry for you... you are not alone. My mother's funeral was November 4th. My head is still spinning with so many emotions. Guilt being at the top. Wishing I had done more research on this disease... wondering what if I had done this.. or said that... would things have turned out differently. The only thing I know for sure... mother, like your father, is not suffering anymore. Knowing that does not make us miss them any less... but hopefully it was will console us. I'm glad you and I found this site.

lavendar
Regular Member


Date Joined Nov 2007
Total Posts : 450
   Posted 11/12/2008 3:26 AM (GMT -7)   
MMB: So sorry for your loss. I have an unknown liver disease that they tell me must have been on going for over 20 years. I am at end stage liver disease . It was never diagnosed since my lab work had never shown anything unusual. Till I had the encepalopathy attack. That is now under control. I have been told that even though I have no severe symptoms, and am low on the MELD score, I could turn for the worse in a matter of hours. There is no treatment, I just have to watch my diet .
 
A few months ago while visiting one of my sisters in another city I walked past her ((sister inlaws house)). I stopped to visit her because I had heard she was ill , she also had the same disease I have . She looked quite well. She passed away about a month ago, suddenly.
         She had given me my first hair cut when I was around 8 years old.
 Her husband was the one on kidney dialisis. He passed away last week. Just gave up.
 
 You did every thing you could just being there with him. My prayers go out to you and your family members.
 

Post Edited (june17) : 11/12/2008 3:48:04 AM (GMT-7)


hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 11/12/2008 12:40 PM (GMT -7)   

Raverbavers, welcome to the forum.  I am so sorry about your mother's passing.

{{{June}}}  My heart goes out to you, as well.


Hugs,
Connie
 
"But that was yesterday, and I was a different person then."
 
Alice in Wonderland, Lewis Carroll


Butterflythree
Veteran Member


Date Joined Oct 2007
Total Posts : 954
   Posted 11/12/2008 8:12 PM (GMT -7)   
Welcome to the forum Raverbavers. I am sorry to hear about the loss of your mother. I doubt there is anything that you could have done for your mother to make the situation any different. My thoughts and prayers will be with you.

June, I am also sorry to hear about your loss. I continue to pray for you.
Butterflythree
 
There is always hope!

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