Karen, I am so sorry that you are being given such a hard time. But definitely find out what they wanted to see you for. Maybe you should consider a different transplant center...... Each have a little different criteria for listing. But definitely keep up with the fundraising.
After my husband died......I was very bitter about
the CPMC transplant program. Most of the Hep doctors were great......but my husband's evaluation coordinator was almost useless. She dropped the ball more than once on my husband's case. I'm sure that she was instrumental in it taking so long for my husband's second evaluation. So I really understand your frustration. But you have come this far so don't give up......If plan A didn't work go to plan B.
Hope you start feeling better soon........lot's of thoughts and prayers...
When the going gets tough....the tough get going! Don't always know where I going but I get there anyways.
Post Edited (Pink Grandma) : 11/11/2008 9:41:25 PM (GMT-7)