Hi, Linda. I was out all day...shopped for groceries in 3 different stores, trying to make my food dollars stretch. I had someone driving me, but I am soooo exhausted tonight. Not sleepy, just that feeling like I've run a marathon or been digging ditches all day. When I try to do things a normal person would do, I'm brought back to reality very quickly. This disease reminds me all the time that I am not normal.
I'm sorry you are so sick. But please don't stop taking your meds. It wouldn't get you on the transplant list any faster and would mess up your labs worse than they are now. It took months of changing diuretic dosages and trying different things before my fluid problem finally got under control. I'm currently on 40 mg of Lasix and 100 of Aldactone. The Aldactone balances out the potassium. Do you move around much? I know that when I was having swelling in my feet and legs, it was much worse when I sat for any length of time. I often had to lie down with feet higher than my head until the swelling went down. Walking some (not overdoing it) also helps.
I had liver cancer and beat it. Have been cancer free for 17 mos. now. It seems with this disease, one has to get worse before getting better. So hang in there!!
Lin, I am not "disease free"---just cancer free. I still have hep C and cirrhosis. I passed on trying hep C treatment again, at least for now, as my body has been through so much trauma the past 6 years or so.
Getting out with a friend should do you a world of good mentally. We are alone with our own thoughts too often.