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diggin4moreinfo
New Member


Date Joined Nov 2008
Total Posts : 1
   Posted 11/16/2008 8:45 AM (GMT -7)   
Hi- I found your site recently and I have spent the last couple of days reading every chance I have. I am 38 years old. I have two little girls and a very busy life. I am diabetic. My mother has recently been diagnosed with HepC and I have a very close friend dying from HepC right now. First I will start with my friend. She is currently in the hospital in the final stages of hepC and cirrosis. She developed (ascites) build up of fluid within the past month and had it drained 2x with over two gallons each time. They have put her on water pills and told her to limit her salt. I called her this week to check on her and she is in the hospital. I then called her mother in Florida as she has no family here. I asked her mom if there is a plan in place for her care. My friend never looked into treatment or transplant as she is a type 1 and did not feel she would benefit from it. She chose to treat with herbs and diet.
My mom, on the other hand, just found out she too has hepC. She is a type 2 and will start interferon tx with oral meds in January. She had a liver biopsy within the last month and has mild inflammation. She is young-in her 50s- and in all other aspects is healthy. She doesn't drink or smoke and exercises daily. She eats mainly a vegetarian some chicken diet and really very little prepared foods. She thinks she may have picked up the virus working in a hospital in the late 70s. Her test came back positive after a route physical. She did have gallstones last year and had her gallbladder removed and did mention her enzymes were elevated at that time but they stablized after the surgery?? Her viral load is 5 million. My mom is having a VERY hard time mentally with this. She is depressed and they have prescribed antidepressant.

I am concerned over many issues: the first is that I had a tatoo within the past 10 years with my friend that currently hospitalized. I have been tested for hepc as soon as I found out and they said it was negative. But since the virus lays dormant for many years is it possible that it is not at a detectable level. Also, like I mentioned I have diabetes type II and during my initial diagnosis the endocrynologist mentioned I had a "fatty liver" could this also be an indication of a problem for me?

I am very concerned for my mom. I wish the treatment was easier. We kind of went down this road with my stepdad as he had thymic cancer a few years ago and was not able to work and had to do go through chemo, surgery and radiation. He is now fine and I am sure my mom will be too. It is just hard to picture her as sick as she has always been the picture of health.

There are some things that I have picked up that maybe mom should ask before she begins treatment. Is it possible to "ramp" up your system by taking procrit and another drug to get your cell count up and ready? Does wheatgrass and milkthistle help? Is it possible to take your first interferon shot and take your blood within 24 hrs to tell if the viral lode has gone down as this an indication of how your body will respond over the full 6 months?



This is what I found to support this:




- Now thats very cool news .... ' -



I guess that is it right now. I am just "diggin" for information from all you knowledgeable folks out there and thankful that we have this forum available. [img]/community/emoticons/turn.gif[/img] Thanks and Godbless.



8. No posts of copyrighted material. Information copyrighted or owned by any individual or entity other than the person posting should not be posted on the message boards without the consent of the owner.

Post Edited By Moderator (Pink Grandma) : 11/17/2008 11:39:21 PM (GMT-7)


Butterflythree
Veteran Member


Date Joined Oct 2007
Total Posts : 954
   Posted 11/16/2008 9:59 AM (GMT -7)   
Welcome to the forum Diggin4moreinfo. You said you friend has never looked into a transplant? Do you know if she has talked to her doctors about this more recently. People that have developed cirrhosis from hep C are not ruled out based on the hep C.

Hep C type 2 is one of the easier types to clear with treatment. I'll be praying for your mom.

I have included a link regarding fatty liver. I don't have a lot of knowledge on the subject.

http://www.liverfoundation.org/education/info/fattyliver/

I am glad you found us. There are alot of knowledgable people here that should be able to help you.
Butterflythree
 
There is always hope!


hep93
Elite Member


Date Joined Jul 2005
Total Posts : 12014
   Posted 11/16/2008 1:22 PM (GMT -7)   

Diggin4moreinfo, welcome to the forum!  The good news is that your mom is basically healthy and still young.  Her diet is also good, and she doesn't drink or smoke.  Those factors alone are very favorable to her prognosis.  She sounds like a very motivated person, so I think she will do well.

Whether or not your friend has looked into transplant, the hepatologist at the hospital may consider it, depending on other factors.  OTOH, if she is as ill as it sounds, they may feel she is not healthy enough to make it through surgery.  With so few organs available, they want good candidates for transplant and survival.

The data you provided is interesting.  I knew that they can tell if the treatment is working at one month.  Whether a treating physician wants to base withdrawal of treatment on a 24-hour test would be up to that physician.  If I were the patient, I'd want to give it more time--at least a month or more.

In your particular case, I can understand your concern about hep C.  My suggestion would be to request a hep C test every 6 months, as well as liver enzyme levels every 3-6 mos.  It usually takes several decades before symptoms of hep C surface.  I have hep C, diagnosed per bx in '93, but my liver enzymes were never triple high-normal, even when I had liver cancer.  I first had elevated enzymes 2 years before I was tested for hep C.  There was no test for hep C prior to '92.  My doctor at the time just said my liver enzymes were a little elevated, but it was nothing to worry about.  I changed docs due to insurance the following year, and the new doc followed up with hep C testing, which was positive.

Was your friend's hep C contracted during that tattoo session?  If not, you are probably okay, but it's best to be tested every so often for your own peace of mind.


Hugs,
Connie
 
"But that was yesterday, and I was a different person then."
 
Alice in Wonderland, Lewis Carroll


Pink Grandma
Veteran Member


Date Joined Nov 2006
Total Posts : 2445
   Posted 11/17/2008 11:46 PM (GMT -7)   
Hello diggin4moreinfo, Sorry, I had to edit your post. Please read over our forum rules.....the link it to the right.

It's great that you are getting educated on this disease. But you can not copy and paste articles from copyrighted materials on this forum.

Take care...........
Pink Grandma
Forum moderator-Hepatitis

When the going gets tough....the tough get going! Don't always know where I going but I get there anyways.

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